It had been 6 weeks since I've seen my doctor, and there was some drama there in the middle where I wasn't sure if I would continue seeing her.
I spent all day yesterday preparing for my visit, and it paid off (I think). I made a list of tests that I wanted done, and she photocopied them and said she'll take a look so (hopefully!) she'll test some of those things, which, by the way, if anyone's interest here's my list (it's mostly repeats of abnormalities I had while seeing Dr. Shoemaker...)
obviously mycoplasma & CD57
osmolality
DHEA
MSH (melanocyte-stimulating hormone)
ACTH
ACLA (cardiolipin autoantibodies)
VEGF (vascular endothelial growth factor)
MMP-9 (matrix metallopeptidase 9) (good measure of inflammatory cytoxines)
C3a
C4a
Anyway we're restesting my CD57 so in a few weeks I'll have the results and I hope that's gone up (or down, I forget which is good) in the last 6-7 months of treatment.
I also added cat's claw...which is apparently for biofilms? I've heard of this but don't know much about it...is anyone taking this?
I also had her order me the cholystramine powder that I used to take because apparently I have this messed up genetic something or other (which is interestingly enough correlated to my wingspan i.e. monkey arms)...and I'm pretty sure that worked in the past (and got me to the point where I was feeling the best I had in years)...
I'm also starting a new multivitamin/mineral which is 8 SERVINGS A DAY! ...I'm only 24 and I already need to buy a bigger pill organizer!!!
She's still holding off on testing for/treating bartonella even though I'm pretty sure I have it (the inexplicable stretchmarks on my always been 130 pound body and unbearably sore feet in the morning/misdiagnosed plantar fasciitis are unignorably coincidental)...and that's one thing I'm not thrilled about. I know one of my abx (Ceftin, Doryx, Tindamax) is supposed to work on that, but I was reading Burrascano's guidelines last night and it said that there's a better drug which also treats mycoplasma (which I have)...so I guess I"ll bring it up yet again at my next appointment. She's waiting to see if the Lyme clears and THEN treat Bart if necessary...but I read that Bart has to go first, or something.
Anyway for anyone who got through all that rambling thanks for reading. I'm just at a point where I feel like Im starting to improve, I have so much hope and have been having unbelievable mental clarity and bursts of energy AND I started driving again today (like an hour trip there and back kind of driving) without having to pull over to rest! Oh hope, how I missed you!!