I have permission to re-post this from another conversation that was posted recently between GWB and by Tala3. For those who wish to see the entire thread, please follow this link:
www.healingwell.com/community/default.aspx?f=30&m=1869528&p=1"Would you be interested in sharing which FB sites are the best in your opinion? I've checked into them, but found some to be "cult-like" in their opinions and others to be pretty inactive...haven't checked in several months because I was disappointed in what I found before."
"Lyme-ies With a Real Heart is a good one for support and light hearted fun and laughter. They're a fun group to hang out with.
Lyme El Natural is a pretty good support group too.
Lyme Dis-ease Support Group is a smaller group, not as active as the other ones, but a good one.
Lyme Disease Awareness is a good group, however, they are an "
open group" unlike the others who are "closed groups".
I prefer closed groups as I don't like my Lyme conversations to be out in the
open for everyone to see. I mostly lurk there and don't post much, but it's got some good information.
There are others that are good, but like you say, they aren't that active, or the leaders of some of the FB groups are pretty closed minded and don't allow free flowing conversation to take place.
The FB lyme forums are not the same as a forum like Healingwell. I believe forums like Healingwell are far better for information and support for one another than most of the FB forums.
Plus we get to develop relationships here that we don't usually develop on the FB forums.