Lung problems ???

hi purplegirl, i experienced the same thing when i was first infected. i had a horrible cough and sinus infections constant. dr gave me Zithromax. i always felt better for about 3 weeks. then the symptoms came back and brought a few friends. certain Lyme bugs have a 4 weeks cycle. were you bit by a tick?? if so it is a good idea to start keeping a daily log of symptoms. and start looking for a LYme literate doctor immediately. be careful of the dr's who say.."oh lyme disease doesnt produce those symptoms." Lyme disease has more symptoms than can be listed. Good luck!

If i was bite by a tick I do not remeber it .... The Doc I am seeing said my 23 band was positive and my TGF-B was elevated .. He feels I have Lymes but I have to the Complete Igenex Panel ... I am going also to see a Infectious Disease Doc but dont know how well that will go as I know you have to see Lyme Literate doc .....

Igenex has a test that is one of the more reliable ones for this as well, I believe. Although like the rest of the TBI's (Tick-borne infections), there are many, many (20 I believe) strains of this infection, so you would have to have one of the two or three strains that are being tested for. This is why not only does the CDC state this on their website (www.cdc.gov/lyme/) , but most knowledgeable LLMD's diagnose based on symptoms. It's actually more accurate!

Here is a link to a site that I like to use - it's easy to understand - for symptoms:www.drjoneskids.com/ Scroll down the page until you see the infection that you want to read about named on the left side of the page.

Purple,
Are you aware that this doc is an Infectious Disease doc? Their guidelines for treating TBI's (Tick-borne infections) differs greatly from what the ILADS (International Lyme and Associated Diseases Society) suggest as the proper treatments.

Most ID docs, don't even recognize that there is such a thing as Chronic Lyme, which many of us here have. As a matter of fact there is scientific evidence that Lyme infections can become chronic in less than 2 weeks.

We usually don't recommend anyone to use ID docs for these reasons, but of course there are always exceptions to the rules. I would suggest that you use our search function here (at the top of the page) an type in "ID docs, Lyme" and read some of those posts to get a better understanding of these issues.

Of course if you still choose to see an ID doc, it won't affect your membership here in any way! We will still be here to help you through this tough road.

If I push myself too far physically I get something like an asthma attack - but I don't have asthma, and was tested multiples times for it. I'm thinking this (and my shallow breathing in general) is the result of the Lyme. I was also diagnosed with mycoplasma p. so that may be another explanation in conjunction with Lyme. The important thing is to find the best doctor for your conditions, one who is open to hearing what you already know and working with you to find the best treatment plan. Certainly take into account what Traveler has said. There is so much information on the Internet that it is impossible to make a good, solid decision without receiving feedback from those who have been through it all. I wish you the best of luck in finding a treatment for your problems.

Hi Purple,
Just so that you know, I almost always look to see if I can find info on anything someone posts - helps me to not look quite so silly!!! LOL!

With the additional info that you have now given, it sounds like you may have found one of the few good ID docs to go to when a person has Lyme!! Although I would still caution you to ask -just to be sure - if they follow ILADS treatment guidelines.

There are some other really great and important questions that other members have come up with in the thread titled "All members please read -questions to ask LLMD's?". The last thing any of us needs is to waste time on a doc that can't/won't help us!!

Please do let us know how things are going and what the docs have to say!

LOL! So sorry Purplegirl!!
ILADS = International Lyme and Associated Diseases Society

here is a link to their site: www.ilads.org/

Again, I'm really sorry for that!

Alaskah said...
If I push myself too far physically I get something like an asthma attack - but I don't have asthma, and was tested multiples times for it. I'm thinking this (and my shallow breathing in general) is the result of the Lyme. I was also diagnosed with mycoplasma p. so that may be another explanation in conjunction with Lyme. The important thing is to find the best doctor for your conditions, one who is open to hearing what you already know and working with you to find the best treatment plan. Certainly take into account what Traveler has said. There is so much information on the Internet that it is impossible to make a good, solid decision without receiving feedback from those who have been through it all. I wish you the best of luck in finding a treatment for your problems.

Alaskah,

Did you ever resolve this, or did it pass? It seems like the past few months if I overdo it at work or try to do a little body weight exercise that I'll start to cough and feel congested for a few weeks and nothing will come out. It will effect my sleep for a few nights. I have been positive for Lyme since 2014, and had increasing symptoms since 2011.

Check into cpnumonia ..as it is a common opprtunistic infection with lyme complex ...visit www.cpnhelp.org