anyone know of protomyxzoa - FL1953?

My LLMD is having me tested for protomyxzoa from Frylabs.com.

Apparently this is a new parasite found that many Lyme patients have.
My LLMD has 10 Lyme patients, including myself, not responding to or plateaued on all meds. Three of the ten have been tested for protomyxzoa and are positive. They've been started on Stramectal/Ivermectin (spl?)

I haven't found much info on this. Anyone know of this or being treated for it?

http://www.iadvocatehealth.org/protozoal_infection0.aspx

The link is above. Note that dr. Fry believes this is a very common infection and that most people with Lyme also have it. But I'm can't remember if he discusses Lyme directly in this article. He believes it affects those with CFS and fibro as well.

Lupner: It's so funny that you mentioned this. I have a sticky note on my computer to remind myself that I want to talk to my LLMD about being tested for this on my next appt! ha ha I saw a video about a couple (it was on the Calda website and came thru my facebook page). She was a very ill woman who wasn't responding to any treatments and then was tested for this, started treatment and got her life back!

Yes - Zeusy - my LLMD is of the same notion, as her training parrots well with Dr. B's current philosophy - you get rid of the Lyme, all the other stuff takes care of itself because your immune system is back to working order. Even Babesia falls into this category - it typically is eradicated by the body's immune system but, in a body wracked with Bb, it flourishes and can make treating the Bb more complicated.

It us hard to say if my treatment is working b/c my symptoms are mild compared to others. My real problem is frequent UTIs and I still get them after 3 months of treatment. But I do think I'll need to treat for a while to be cured.

Interesting that you've taken biaxin, plaqenil and artiminisin b/c those are common options for this bug.

Lupner - how about heavy metals? Esp HG (mercury )? It won't show up typically in a standard blood test so you have to do a "challenge test" with a known chelator.DMPS is one. Might be worth looking into. Heavy metals often stymie treatment at some point.

A doc would have to get the DMPS for you. You take it and it mobilizes any mercury in your body and you do like a 6- hour urine collection and test for the levels. It's usually the best indicator of mercury load in the body. Google mercury challenge testing...

Bump

Lupner, a good thing to help you absorb more mag from food is to keep your gut healthy. When we take all these meds, our guts are so out or balance, it's close to impossible to absorb all the nutrients from the foods and supplements we are taking.

I tested positive for Dr. Fry's protomyxzoa in November. Have never been positive for Lyme or co-infections, just the protomyxzoa. Lupner, your summary reflects Dr. Fry's protocol very well. He has me on an extremely low fat (under 15 mg / day) diet and doxycycline. Still having trouble adjusting to the doxy, so can't report any progress yet. But one interesting thing: Dr. Fry says he suspects the diet may be the most effective part of treatment. Eliminating fat, animal products and magnesium removes the materials needed for maintaining biofilm, the critters become exposed, and your immune system can see and go after them.

He also feels that left untreated, the protomyxzoa eventually causes ALS, MS, etc. He says virtually all of his ME, chronic fatigue, ALS, MS patients test positive for the protozoa.

WOW WEE.
IVERMECTIN is what I took when my Metemetrix stool test came back for
strongylides and that was what made my naturopath send me to the tick borne specialist. It was supposed to be a one shot dose but the tick borne specialist in Seattle, Dr S.M. gave it to me to take for about a month because i was on prednisone at the time and it makes it harder to get rid of.

I don't think she tested me for the Fry bug in Dec 2009 but she did tell me that Fry was cutting edge. and she also was a NO MAGNESIUM doctor and so was my other Arizona Lyme doctor.

Lupner..what is your dosage on the ivermectin?

I think my first day was 12 mg and then 3 mg per day. But I remember after my FIRST does something incredible happened like an elephant was lifted out of my chest. I was able to walk up the hill to the mail box and was JOGGING down the street and SINGING. It was amazine.

This is why I always say to take the Metametrix stool test. I don't know if this protozoan shows up in stool as something else or if there is a connection for this being found n stool or if the Strongylides which horses get all the time is what mosquitos or ticks are carryin around??

I wish I felt as good as I did back in thanks giving 2009 when I first took that Ivermectin that one day dose. It lasted about 2 to 3 weeks and then I started feeling lousy again and then that was when I met Dr. S.M. who gave me the daily dose for a month. But I also went on doxy the same time and got so sick.

I just took ivermectin 12 mg today because for last 2 days that olld symptoms are coming back.


i can not say it is what cured me but I can say it was incredible for 2 weeks how I felt after that first dose.

I have read ivermectin helping lyme patients before. and I think they took it all the time. It is expensive.

I have done the heavy metal chelation IV detox and this also made me seem like a miracle healing. it was IV and then that night I had to pee for 24 hours and they tested at Dr Data lab.

These IV treatments are like tune ups I thing I will always need along with the heparin for thick blood.

Has anyone ever heard of heparin for thick blood and biofilms.

If you have very thick blood you will have intense reaction to a heavy metal detox. It was much different after using heparin for a while.


Luper please keep us posted. I would like to know how long you are supposed to take the ivermectin and how much??


Bucci

I would like to know also the ivermectin dosage and how often.

As I said before the first time I did Ivermectin the very next day I
thought I was cured. I was sprinting up the hill to the mail box and then
singing and jogging. It was incredible. Then I did only 8 days of 50 mg of
doxy and thought I would die.

I did 12 mg that first day and then was put on 3 mg a day for about a month
and then taken off and on to the doxy.

Is anyone doing heparin to deal with the sludgieness>

I am doing shots twice a day and if I lag on the shots I get very sick again.

This is not easy to do because of the swelling and bruising.

some people can get away with lubrokineese and nantokineese and other pill forms but others heparin is needed.

Also there is no sense trying to do heavy metal detox with sludgie blood.

The test for the blood is an ISAC panel by Hemex labs which is Lab Corp.

google Dr Carol Ann Ryser about thick bood and heparin.
Tere is also a troche form of heparin that melts in mouth.

also good news I just found out that Metemetrix labs takes medicare and bluecross blue shield.

For me the strongylides showed up in the stool test and back then I paid $400
for it.
If you google metemetrex labs there is a way to find a doctor in your area who has the kits of you can ask your own doctor to get one.

I would love to hear more about this protocol from Fry but have no money for testing.

Ivermectin is not cheap either but can be bought on line or over the line without a script.

Hey Nefferdun thanks. I'm going to try the loubrokeneese.
The ivermectin I topless 3 mg pills from pharmacy.

What is the dosage?

Are you in pain?

Do you have veins in legs bubbling out?

I'm so twisted now about the diet thing after

After reading Dr Jack Kruse and Latin and Lyme
And now Fry going with Raw. Vegan.

I love the way I feel on raw food and have
Lived in raw communities. Cafe Gratitude is my family
So I really have Eaten it as a whole great prepared meals.

It lightens me up but there is no B12 in vegan
Food and I could not supplement enough.

Then I saw the paleo diet and meat. It felt great for 2 weeks
And then I felt worse.


Food is definitely key but there is something
Else that is taking over my everyday .
Between brain fog and pain and flu like.

I love when the good days come .