Congratulations Teeners!
I'm so glad to hear that you have finally found another LLMD!!
Since your new LLMD has worked with Dr. Jones, have you read through his site? (
www.drjoneskids.com/) I like to use it especially for the symptom lists on the different tick-borne infections, most of them are pretty complete. Here is what his symptoms list for Bartonella is in case you haven't seen it:
"Fatigue, dizziness, stiff legs, pain in feet (especially bottom of feet), sweats, restlessness, myalgias, heart attacks, heart valve problems, endocarditis (mortality 25%), cardiomegaly, strokes, skin rashes, skin tags, streaks (reddish/purple) that look like stretch marks, aseptic meningitis, encephalopathy, fever, panic attacks, liver or spleen abnormalities, abscesses, hot flashes, muscle cramps, confusion, abdominal pain, hepatitis, seizures (mild to severe), numbness in hands, rage, depression, difficulty walking, facial numbness, urinary problems or arthritis.
Some patients experience headaches, lymphadenopathy, cognitive dysfunction, CNS lesions, red splotches or slightly raised red spots on skin, spider veins, bone pain- especially in shins (Bartonella quintana, aka shin bone fever) and along the rib cage, subcutaneous nodules, softening of bone, bone infections, radiculitis, transverse myelitis, polyneuropathy, slurred speech, respiratory complications, personality disorders, bipolar disorder, irregular pulse and an array of eye related problems such as dry eyes, conjunctivitis, neuroretinitis and a distortion or loss of vision."
There are 26 different strains of Bartonella in the world, and there are only a few strains that are tested for, so the fact that you had a test for Bart and it came back negative is a lot like getting a negative test result for Lyme - it doesn't mean that you don't have the infection, it means that you don't have the strain(s) that are being tested for.
Please do let us know how your treatment goes!!