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Posted 3/7/2012 2:17 AM (GMT 0)
I am sorry, I cannot see well enough on here to review old posts -- I thinik I can type, but I can hardly read and it is painful.

2 weeks ago I came down w/ an eye infection in both eyes.  Eye Dr said it is a virus, not bacterial.  I called my Lyme Dr and what do you know, he never returned my call.

At any rate, my eye pressure was quite high -- 33. Both eyes.  Eye Dr did not believe pressure had to do w/ infection. Unfortunately it had been 5 yrs since having the pressure checked and at that time it was normal  Both eyes(14).

I have become blinded by light and have had to drive home couple of times w/ eyes almost closed. Sometimes I've had to stop for 15 or so min w/ them covered before I could set out again.

Yesterday eye Dr said infection has spread into my corneas (not good), my eye pressure was up to 38 and my vision is extrmely blurred.  And the light still hurts very bad.

I already understand that Lyme can attack any organ or system in our body. but I would like to know if anyone has had any problems like this. The eye Dr does not know anything about Lyme or my chronic infections.  And I don't really know that it would make any difference.  Sorry, vision's getting much blurrier.

and fyi, I have been on high doses of Augmentin for a couple of yrs.  wouldn't help a virus, tho.

Posted 3/7/2012 3:14 AM (GMT 0)
Make sure you're using single use eye droppers and not the bottles. Some are wetter then others which will help. I really like the Alcon brand.

I do hope this passes quickly and you are feeling better soon.
Posted 3/7/2012 4:35 AM (GMT 0)
I'm so sorry to hear this! Many years ago, I supposedly had a parasite in my eye - can't say I don't wonder if it was really Lyme. Other than that though, I don't have any experience with Lyme causing eye infections. Whatever the cause - I'd say follow the usual orders for an infection - extra rest and taking it easy!

Are you seeing just your regular eye doctor, or a specialist? I'm not sure how common eye infections are, but if it's not something your eye doctor is accustomed to dealing with, it definitely wouldn't hurt to see someone more specialized.

A quick aside...you're not taking plaquenil, are you? I know this can cause changes in eye pressure.

Keep us posted! I hope you feel better soon!
Posted 3/7/2012 4:22 PM (GMT 0)
my eyes got pretty bad in august las year whcih i now thing was asame time bartonella flaired up

i did not realize what it was until it started to get worse a few months ago. seems a lot of herpes virus's types have affinity for eye ..you may want to google some of these treatments..my dr who is an ND did not put me on anything but i think he should have..virus's in the eye are pretty serious

however my combination of HH for bart, diflucan 200 mgs evry day) and these living streams probiotics in eye, seem to have lessened

my symptoms were both visual and neural (ie neural in that i found it hard to watch sports on TV as the movement wa too fast, it actually irritated me..too much movement)..but i had a puss-eye morning after about 10 days on the HH and that seems to have helped clear it up..ie must have been mostly virus
Posted 3/7/2012 5:20 PM (GMT 0)
HI +Lyme, no need for apologies!! We are here to help!!

I found several places where different tick-borne infections have been documented

to cause at least the ocular pressure, and usually with the potential to do even more

harm. Lyme, Bartonella and Mycoplasma infections were the infections mentioned.

Here are the links to the different infections and the eyes:

For Lyme: emedicine.medscape.com/article/1202521-overview#aw2aab6b5


For Bartonella: www.drjoneskids.com/ Look on the left side of the

page and click on "ocular(eyes)" under symptoms.


For Mycoplasma: www.lymediseaseblog.com/mycoplasma-overlooked-lyme-co-infection/

and cid.oxfordjournals.org/content/14/5/1137.short

Hopefully these articles and information will help in some way! Please let us know

how things go!
Posted 3/7/2012 10:40 PM (GMT 0)
jess

well i am just not sure which exactly is helping and its "improved only slightly 20-25%), so i think it is somehow viral related

i am doing the Zhang HH protocol..varies from 0-3 tabs a day; diflucan 200 mgs every day; living streams probiotics in eyes-derma gold-this helps clear a little...this is the combo that seemed to help eyes I would say aprox 20-25%..they are stiill strained but do not seem to have that white-filmy slime on them and i can see slightly better to read (maybe 10-15%)

cold-damp weather in past had made it worse, so think it is a combo viral-yeast/fungus-parasite. It does seem to be a little worse with this recent full moon, (last 3-4 days) and I know I have parasite issues


I have been also doing a hybrid viral treatment for about amonth -
50,000 IU Vitamin A; about 1400 mgs olive leaf 3 times a day
--one dr says that Olive leaf has blood thinning and is anti viral, but i do jot see how it can be both as usually anti-viral and viral killing will create fibrin
1000 mgs lactoferrin 3 times a day
2000 mgs lysine w/4 grams vitamin C (this is said to be both a treatmeny for virus's and clears plague from virus's
-i do this 3 times a day as well
heparin injections as an anti-coagulant per david Berg-hemex lab protocol
Fish Oil-Evening primrose oil for blood thinning
100 mgs B6_source naturals P5P type -3 times a day

i had tested as having high fibrin-(arteriosclerosis-plague) 5 -6 years ago and both heavy metals and viral-parasite-yeast and die offs are said to increase fibrin

I seem to have plateaued out though on the HH and sure hope its only due to effects of this full moon-parasites
and will be better tomorrow as last 3-4 days, its been slightly worse which with me often happens the week before ful moon

a week ago, i had one episode of heavy morning gunk in eye when i woke up, and my eyes have been a little better since then

sorry brain is having heavy fog day,
Posted 3/8/2012 12:30 AM (GMT 0)
+lyme

this is from a search on " herpes viral infection of the eye." it could be any umber of virus's or even parasite related which mine seem to have some relationship to

I am not saying what you have is a herpes outbreak or eye infection, but given the viral coinfections of most lymies, and that it is in the eye and irritating, i would suggest you consider some form of treatment even if its self administered -it was this type of reading that lead me to the fact that everything i had going on for the past 8 months-2 years was likely all lyme related -eyes-watering-strained (sometimes feels like dry eye, sometimes its very watery) burning in leg-neuro symptoms were all lyme related

there are anti-viral drops for the eyes, that you may want to search on and provide your dr or provider.

search under herpes viral infection of the eye

http://www.allaboutvision.com/conditions/ocular-herpes.htm
Iridocy***is is a serious form of eye herpes where the iris and surrounding tissues inside the eye become inflamed, causing severe sensitivity to light, blurred vision, pain and redness. Iridocy***is is a type of uveitis that affects the more frontal portions of the inside of the eye.
Posted 3/8/2012 1:00 AM (GMT 0)
Right around the time I took a western blot and tested positive for Lyme, my eyes went bad..I had cysts in both eyes, they were painful and I couldn't drive. I have had a lot of eye problems for years like that. Those cysts, red dry eyes, or watery eyes..bloodshot. I am so sorry you're experiencing such a horrible thing like that! My eyes are generally better the past year or so for some reason. But I do have extreme sensitivity to light. I hate driving at night. I hope you can get some good answers and I also hope your LLMD is better at calling you back!! Maybe it's time for a different LLMD? Or call him back and demand to speak with him saying it's kind of urgent!
Posted 3/8/2012 2:15 AM (GMT 0)
Hi +Lyme- I know that lyme can cause a lot of eye issues but what you have sounds pretty severe. So I would be VERY dedicated about checking other things (I know there is a parasite that can cause increased pressure and infection, and you can get herpes in your eye...). What does your eye doc have you doing? I wouldn't wait on this- some of the other infections can cause damage. Call your LLMD back and tell them it is urgent, and make sure you keep on top of the eye dog.
Posted 3/10/2012 1:15 AM (GMT 0)
Thank you everyone for your posts -- it is deeply appreciated. I have only just now been able to read all your posts and am not going to be able to read many articles yet, but will as I can.  Now I am getting scared.  Was going to the eye Dr (yes, full Opthamologist) every other day. He only had me on anti-inflammatory drops and had just started drops to lower pressure.  I had to call in  and to go in one day because vision was getting blurrier and I saw the partner.  When he noted my viruses in the file, he kind of jumped into action and came back w/ 3 new eye drops and an oral anti-viral (Acyclovir).

The pressure is under control and won't know if it's glaumcoma til inflammation clears, which it hasn't -- this has gone on now for over 2 weeks. They have made me come in every day now and my vision is getting blurrier.  It feels like they are scrambling. Today, both Drs examined them and they changed the steroid drops to something stronger. I don't think we are supposed to be taking steroids, but will drops hurt? We have GOT to get this under control.

It is $60 per visit and my funds are depleted, yet they say I must come in again on Monday. I miss hours of work and have gone broke now.  Work also hurts my eyes tremendously, but Dr said it would not damage my eyes to use them. Had to drive home after dark last nite (nite court, I'm a clerk) and it was worse than trying to drive drunk (yes, I did that before yrs ago....). I could only see the lights of the cars and those hurt. Had trouble staying in lane. It is still getting blurrier and I'm getting more scared.

Plus, right now I feel like they are 'taking me for a ride' -- this is an extremely busy clinic. The Drs are highly rated, but they pack us in and go thru us like an assembly line.  I've probably paid for 10 visits that could/should have been done in 3. I don't know what to do.  I guess I need another Dr/opinion, but even more scared of starting all over and who knows about the next one?

This infection is viral, he is certain of that, but he does not know the 'agent'. They are scrambling because of past, and probably current CEBV and HHV6. I am afraid that if this is a herpes infection I will not make it. I can hardly take the pain at work and when driving, along w/ all my other crap, collapsed spine being my other worst pain.

What should I do? Who can I turn to? I did communicate w/ my Lyme Dr who wants me to see the eye specialist.  Should I keep on w/ these Drs or start over? Should I flat tell them I have no more money? Why should I have to keep paying a full co-pay every day when every day is a 'follow up'?

I realize my eyes and my sight are worth tons of money, but there just isn't tons of money. ( My dog and my car need help too!)

I'm getting scared that this may be very serious. I'm scared that if I still have Lyme, my eyes are probably done for. I am so SO sorry for the bad attitude but I'm just beat down and the constant pressure and pain in and around my eyes has gotten to me, along w/ everything else.  I dont know if I should have faith in this Dr or not. I feel like I'm going to go blind and it's to the point I don't know if I even care anymore, as long as the pain will go away and I can just lay down and rest.

Anyone want to shoot me??

Posted 3/10/2012 1:20 AM (GMT 0)
My heart breaks for you, I can only imagine the pain and frustration that you are going through.

I would definitely tell the eye doctors that you can't afford this and see if they can work something out. There must be something that can be done. I'm sorry I don't have more to offer. I just wanted you to know I'm here and listening.

Big hugs to you
Posted 3/10/2012 1:30 AM (GMT 0)
I have to second what LoveHealth said. I am so very sorry to hear this. My heart goes to you. Please don't drive though if your eyes can't see. It could be very dangerous to both you and somebody else. Prayers to you and know you are in my thoughts. We're all pulling for you.

BTW--please check out other LLMD's. Let us know your area and somebody can refer you to one in your are if possible. I don't think your LLMD is being very sensitive to your urgent needs.

Post Edited (SleeplessNJ) : 3/9/2012 6:35:53 PM (GMT-7)

Posted 3/10/2012 2:04 AM (GMT 0)
I'm so sorry you have to deal with this! If you're not happy with your current doctor, I'd suggest getting a second opinion - better safe than sorry. I don't really know the different eye specialties all that well, but I know that I went to a retinal specialist back when I was having problems with my eyes and they were able to diagnose a parasite right away - maybe you can try a retina/retinal specialist? They were covered in my insurance under opthamology so it seems likely it'd be covered for you as well.

Is there another way for you to get to work - have someone drive you or take public transportation? If you don't feel safe to drive, please don't.

I can only imagine how scary and frustrating this must be for you - just try to stay calm and make sure you get the best medical attention possible.
Posted 3/10/2012 5:59 AM (GMT 0)
Gosh, thank you so much for all the thoughts and sympathies you guys. Seriously, that was not the purpose for me to go bezerk on here, I just felt at a loss of what to do next, because of my fears and frustrations. Sleepless (bless your heart), I already know of all the Lyme Drs in my area and I waited a year to get into the best one here, so it is told. He is actually an infectious disease Dr who specializes in Lyme, CFS, MS, and AIDS. But somehow, he doesn't seem to put everything together w/ Lyme --- he treats w/ long term to lifelong abx, but when I have had questions about other issues that I suspect are related to Lyme, he refers me to a specialist in those issues, ex: This eye infection and my mental, psychiatric issues.

Meantime, do my anti-viral and steroid drops seem sufficient for now? AND, meantime, I am working up a 'discussion' to have w/ the Dr on Monday, which includes the fact that this cannot continue. And meantime, YES, I CAN SLEEP AS LONG AS I NEED TO TOMORROW!

THANK YOU FOR ALL THE LOVE, HELP AND SUPPORT!

Thank you for your hopes and prayers.
Posted 3/10/2012 10:17 AM (GMT 0)
+ lyme
hang in there, you may want to consider doing what I would consider a broad spectrum anti-viral treatment with some of the things in my earlier post..I am petty new again (last 6-8 weeks) to this whole lyme thing and coinfections as i thought all my problems are metals

when i say broad spectrum i mean a varied herbal treatment (olive leaf-vitamin a-zhang or buhners herbs). As I said I just got back into this and my eyes are a little better, but it does not seem to be continuin to improve and this last full moon, actually got a little worse, so as i believe borderlyme mentioned, it might even be parasite related...

whats really weird for me and i will post this as a separate item, is that in last week, i seem to be getting a different hit (herx) every day on my rifing, meaning one day it comes up that its herpes (2 days ago_thursday), then yesterday a.m. (Friday) i had this huge 2-3 hr head herx from taking my a.m. dose of living streams probiotics(do not know what the heck that was); so yesterday (friday mid day) i did my herpes bank again (the very same one that caused mahjor herx the day before ) and NOTHING-no herx..i was like ***

then tonight ( saturday 2 am) I woke up with first night sweat in 10 years (babesia??) and eyes are pretty misty-[as my one dr made notes which i read later, patient has invisible slime in eyes???..i was like crap no wonder these morons think we are all crazy, as i remmber him looking at me over his glasses and saying hmm uu have invisible slime??- so i poorly described it, but it is almost invisible]

To me all these virals and parasites and even yeast-fungus have the possibility of effecting the eye..so thats why acyclovir as just one r/x may not work..i have ben reading that it (acyclovir) does not have much succcess with the herpes group of virus's for many of us

when these meds fails, i also go back to the home remedies they used 50 years ago, i do not know what that might be, as there is not much yo can put in eye

in chinese medicine eyes are i believe related to liver issues, so it could be some liver detoxing issue which my ND suggested..try to not get too freaked out as stress just feeds the bugs and virals,

prayers a many
M
Posted 3/10/2012 3:27 PM (GMT 0)
Thank you for all of this, Mercury. Please tell me, how do you know when it's herpes?

And: this Dr says he doesn't know what the 'agent' is. Can they test for herpes or parasites?
Posted 3/10/2012 3:44 PM (GMT 0)
there are tests in general for herpes..i will have to lool at the lab who did like 4-5 vioral tests on me a few years ago...but eyes are very sensitive obviously..so i think it would not be much different from an oral or genital outbreak of herpes

but from what little i have read, there can be other viral palyers at play, ie pink eye or conjunctivitis i believe is viral; have you ever had..i did about 11 years ago, just when i started to get much sicker

google search performed under "Nac to treat ocular"

i had come across this NAC which actually i thought was N-Acetyl-L-Cysteine but is N-Acetylcarnosine
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2685223/
N-Acetylcarnosine sustained drug delivery eye drops to control the signs of ageless vision: Glare sensitivity, cataract amelioration and quality of vision currently available treatment for the challenging 50,000-patient population
per mercury-i am not sure if this product is on the market yet, but it seems to be L-carnosine based which is an an acid helpful in braina nd hearta nd who knows maybe ocular-(ie eyes)a s well
========================================================================

some home made remedies here-warm compress-gentle eye massage which makes sense to increase blood flow
http://www.agingeye.net/otheragingeye/blepharitis.php
per mercury-don't get hung up on the many scary illnesses right now, i am sure this is something lyme related that is a detox issue, your body is plugged up and eyes-brain can get infected
========================================================================
Posted 3/10/2012 4:01 PM (GMT 0)
I would be concerned about CS, as you must be sure the nanoparticles are the most smallest imaginable and many are not..

really people have used this in their eye??

silver is still silver if its not this one brand which is said to be the most reputable and even then not sure i would risk colloidal sliver in the eye unless i had no other choices

not trying to sound contardictory..
Posted 3/10/2012 4:15 PM (GMT 0)
I appreciate this, but not sure I'm ready to put something more in my eyes yet. I'm on 4 different drops. One is a steroid. Does anyone think this could be bad?

btw, this started as severe conjunct, but spread to my corneas. The inbfection is severe. Dr says sclerokeri*** (I believe that is the word).
Posted 3/10/2012 6:45 PM (GMT 0)
well i still thnk some of these natural cleaning things might alleviate some things, even washing out every few hours with warm moist cotton towel and then washing the towel in hydrogen peroxide..key is to not reinfect
Posted 3/10/2012 7:36 PM (GMT 0)
While steroids may not be the best thing for people like us, sometimes they may be necessary - in which case there's no point in wasting energy worrying about it, you know?

With the drops that you're on, are you noticing any improvements so far? Has your doctor drawn any conclusions as to what might be causing it? Have you seen a retina specialist? Sorry for all the questions - just trying to help!

I can't imagine how stressful this has been for you - you're in my thoughts!
Posted 3/11/2012 12:23 AM (GMT 0)
I agree with you not doing a whole bunch of things on your own, +Lyme. You don't want to risk your eyesight! I also agree with Borderlyme, steroids are not good for us, but sometimes in certain situations a person will still need to use them. You need to get this thing with your eyes under control - then you can concentrate on the Lyme or other infections that you may have.

Have you noticed any improvements yet with the steroids and other drops?
Posted 3/11/2012 2:34 AM (GMT 0)
Thank you again, everyone for all your help, advice, and thoughts (and sympathies). Eyes looked much better this morning and felt better except for blurred vision. Vision has remained blurred and as day wore on, light sensitivity increased again and now feel poorly again. As evening came on, beginning to feel ill all over, think I'm coming down w/ a fever. Hope that is unrelated. 2 different drops brought the pressure down to the 20's, 1 drop is anti-inflamatory, and just started on the stronger steroid. So, thought they might be improving, but now don't feel so well. Hopefully it is just the way illnesses are -- feeling worse in the evening than in the morning.

Have done some research on the opthamologists and they are supposedly excellent. In discussions w/ others, we have decided that they are at fault for overbooking and rushing thru communications, but are most likely doing the right thing, keepiing a close eye on the infection, even if it means going in every day. From what I am able to read in my chart, things started going downhill middle of last week when the infection began spreading into the corneas. Perhaps they were a little too slow in prescribing, but are now taking it very seriously.

Agreed, I need the steroid -- there is nothing but this and the anti-viral to fight the infection because it is a virus (unknown). I will ask if eyes can be tested for herpes on Monday. (I've never had a cold sore in my life!). I believe I must have picked up a little virus and my immune system was not able to fight it. btw, have been on LDN for well over a year -- must not be boosting the way I had hoped.

Well, at least I can see my typing better tonite , so that must be some improvement... Thank you again -- I do not say this enough -- EACH AND EVERYONE of you are in my thoughts and prayers. I realize that everyone here is fighting for their life and what a difficult struggle it is.And I am DEEPLY sorry for those who are suffering the worst -- I cannot believe how some of you keep on going as ill as you are. This whole ball of Lyme is a catastrophe!!

Like many of you(or most), when I first learned I had Lyme, I was happy and relieved to know what was wrong w/ me. It did not take long to become completely overwhelmed w/ all of the ramifications, confusion, and the unknown. Everyone is fighting this in their own way. I do believe that what works for many people does not work for others -- we are all unique and our bodies all struggle differently. Still, I'm glad that so many come here to share helpful remedies, cures, and aids. We need all we can get. Unfortunately, I have been in kind of a downward spiral -- emotionally, mentally, etc, and I haven't had much mental strength to fight with. Somehow, I need to turn that part around.
Posted 3/11/2012 3:13 AM (GMT 0)
good for you +Lyme

personally, i think you may be flushing stuff out of your system, even though steroids are supposed to be immune calming-coming down with a fever, i think is good, as per my recent post

we all should get a medal for the crap we have been through, thats for sure
Posted 3/11/2012 3:26 AM (GMT 0)
Thank you, mercury -- sorry I missed that. I'm sure I've missed a lot w/ the difficulty I've had in reading. I'm going back over all of these posts!

btw, think it's OK to take anti-virals along w/ abx? needs to be.
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