JUST TESTED POSITIVE FOR LYMES:Long Journey Ahead

 This was me before...

This is me after!

Before Lymes Disease and After Lymes Disease...

     Hi everyone, I just was diagnosed with Lyme's Disease. One year ago today, I woke up one morning with severe groin pain; both sides... I was later tested for lupus and the test came back positive; although the doctor could not really say I had lupus, because the other five tests he ran came back negative. This left me very confused... Months later, the pain went down both legs and into my upper back and neck, which caused me to know something was terribly wrong. I went back to the rheumatologist and said the pain was worse. He said I needed to start medication for lupus. I didn't buy it! It took a year, but I finally went to a neurologist, neuro surgeon and an orthopedic surgeon. Although they found two protruding discs L4 & L5 and L5-S1, traversing on the nerve root, they said there must also be an underlying problem causing my other symptoms: Fogged in, Panic Attacks, Sweats, Chills, Freezing at times, Joint pain, Confusion, Concentration problems, not being able to walk, no longer can exercise, having to think a really long time before speaking what I want to convey, mixing up my words; the list goes on and on!!!

     I found a wonderful doctor who went through Igenix (it think that is how it is spelled), for Lyme's testing. Certainly enough it came back positive. He has placed me on Antibiotics: Week 1 (which I'm in right now) is to start Cefuroxime 500MG 1Tab twice daily. Then Week 2, I'm to add Azithromycin 500MG I tab once daily. Week 3 I will add Tinidazole 500MG 3 times a daily 2 weeks on, then 2 weeks off, etc. Along with these three antibiotics, I'm to take Nystatin 500000U 1 tab daily along with probiotics. I will be on this regimen for the next 3 to 6 months. I pray it only to be 3!!!!

     I don't even understand how I could not know, I have been bitten. After looking on this site, I understand more than ever that those little buggers are nasty and very sly! It scares me to think I could be in a wheelchair someday, but I'm trusting God to help me through this. It is not an easy journey, but one that must me met head on; I wake up and try to walk on feet that do not feel attached to my body; this is one feeling that may scare anyone; but here I am on this journey, and I find myself not alone.

    

     I, who was so healthy and strong, eating well and doing all the right things to prevent disease, I now find myself in a most ironic position of needing to place drugs into my body. I have always uses food to heal my body; never having to take meds in my life!!!! Not so true now!

 

     Like I said before, I am trusting God to take over what I cannot do. For those of you experiencing Lyme's or any other debilitaing disease, I ask for you to first pray about the direction in which you should go; liten to what your body is telling you; get the best possible nourishment you can get for yourself; find an outstanding doctor, and trust God with it all...

 

     I would love to hear from those who are just staring on this journey of healing, like myself.  I would also love to hear about those who are on the road to recovery, or are recovered.

 

     I will post as I go along...

     Best wishes and Healing to all...

   

     Blessings in His Name.

     Fitnesstar         

Hi fitnesstar and welcome to the forum. Please hang in there and think positive. You can and will get well.

It is very easy to not know you were bitten. I myself had a poison ivy like rash which I believe now were tiny tick larvae. I did not experience severe symptoms until 5 years later, which I am told is very common.

It sounds like you have found a good dr. That is half the battle as lyme is such a controversial illness. Sometimes testing and treatment are not easy to come by.

I am feeling fantastic these days after 28 months of antibiotics. I have been off antibiotics since january of this year. I still take many supplements and have mild symptoms and residuals here and there but overall feel well.

Please keep us informed. Remember remaining stressfree is very very important when fighting an illness like lyme.

I just wanted to Thank You;

Summer16: for letting me know you were just diagnosed with Lymes. Let me know

what is going on with you and how you are feeling...

                    Springsjean: Thank you so much for your encouraging words, when indeed it can be quite

discouraging, dealing with all of this day in and day out. What a blessings your words are

to me. I will try very hard to remain stress-free, for I understand the importance of this very good advice!!!

                     Alliann: Thank you for your post! I'm going to be looking up rife/coil machine; you have my curiosity! LOL!    

Well,

     Last night was quite difficult. The pain was just so unbearable. The pain in my upper back, neck, arms, and especially lower back, groin, and down the legs... My feet still feel as though they do not belong to my body. This is really crazy, to think something living within me can cause so much havoc on my body. I am giving myself lots of good nutrition; Juicing carrots, kale, celery, spinach, green apples, romaine, etc. I also start off the day, first thing in the morning on an empty stomach, by drinking, barley juice. I pray so hard that I get through this, for it seems as though I will not make it to the next day! It is still so sureal to me that this is happening. Like I mentioned (or did I? LOL!), I have been a very active person my whole life; Backpacking, Mountain Climbing, Hiking, Skiing, Scuba Diving, Body Building, Running, Etc. Then after kids, my life slowed a little; still kept up with some daily activity, because now I was involved with the kids school! When my kids were both in 6th grade, 2010-2011 year, I had a very stressful year; it was crazy! But, I was excited that next year they would be in Jr. High, and I would be able to get back into what I love; Body Building! But that would never happen...

     When 6th grade ended in May,2011, I was exhausted. Like I said, it was a very difficult year; I had placed way too much on my plate that year. When June arrived, I had woken up one day with severe groin pain on both sides; I could barely walk. This is when everything first started to happen to me. Months later, I was told I tested positive for Lupus. So, for months I thought I had this aweful disease and just began to feel sorry for myself. After about 10 months and things getting worse, I decided, "Okay God, You are going to have to take it from here, because I don't belive I have Lupus!" Well, I was correct. I didn't have lupus! Exactly one year later, June 2012, I was diagnosed with Lyme's Disease. I still cannot believe it! My Dr. is running other testing for these nasty little bacteria, that decided to come live with me; without an invitation! How dare they!

     So, here we go on the Antibiotic merry-go-round! All I can do now is give my body the best nutrition I can give to it, get plenty of rest, reduce stress, exercise the best I can, and breathe.... Everything else, I need to give to God; after all, He made me. He has designed my body in a way that He says; I am Feafully and Wonderfully made. I'm doing all I can possibly do, now I'm trusting Him to take it from here!!!!

Is this going to be an easy journey? I don't believe so... I don't expect it to be... Is it going to be a healing journey? Yes. I believe this with all of my heart, it will definitely be a healing journey. Will I feel doubt along the way as I stuggle from one day to the next? Yes. I'm only human and there will be those days where I must come back and read my earlier posts, and those of others who are not only struggling also, but who are encouragers; this will help me get through.

Enough for now....

Thank you for reading... For those of you who need prayer, just post your need and I will definitely, without a doubt, pray for you!

Until Next time...

Blessings,

Fitnesstar

 

 

     

 

Hello Allieann,
WOW! That is quite a story. I thank you so very much for sharing it with me. You are very correct when you say that juicing cuases one's body to gte rid of toxins... I have been juicing for one year now, so I don't really notice the detox effects now. I don't think I would begin a juicing progam, had I not been doing so for awhile; or, I would under the supervision of a good doctor. When you see your son in so much pain, it doesn't suprise me the thoughts a mother may have. It is never easy to see a loved one go through such a horrible disease such as Lyme.

It amazes me you had to go through this situation, not once, but twice! I'm so thankful to hear that your one son realized the symptoms of his brother; I'll bet that was a big help! And to think he has never been sick again! Awesome to hear!

You have lifted my spirits... Thank you, Allieann.

May God Bless You.

Always Sincere in Him,
Fitnesstar