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anyone else use cholestyramine?

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Posted 8/14/2012 5:01 AM (GMT 0)
hi,

i am an infrequent poster, but regular visitor to the forum. i am on my 3rd week of cholestyramine due to exposure to 2 strains of toxic mold in my house (we have had recent remediation work done) and i have been feeling like absolute poo-poo. i was feeling a mild flare simmering in the background before i started this stuff, but now i am fully flaring. i was also in some extremely hot temperatures a week ago which triggered intense pain through my entire body and all kinds of crazy neuro symptoms and fatigue.

my LLND is trying to whittle away at all the toxins in my body, suspected babesia and other viruses (EBV, HHV6) before trying to treat the lyme since i have sensitivities to nearly every antibiotic out there. it is taking a long, long time and i am feeling discouraged.

i have been researching a bit to see if cholestyramine is known to trigger a herx, and have found conflicting info. if anyone has any light to shed on the situation, i would be most grateful.

blessings to you all~
binx
Posted 8/14/2012 4:12 PM (GMT 0)
Hi there binx,

I took cholestyramine for a while and always seemed to herx right after. Sometimes I'd notice feeling much better - less pain, lighter, etc. immediately, but then inevitably I'd always have an increase in pain and cold extremities.

I was told it was because once the toxins circulating around the blood are bound and excreted through the CSM, more will come out of your tissues to be excreted, but the problem is then that they settle on tissues causing our bodies to attack them (and that hurts). Honestly at the time I thought that maybe it was just the drug itself making me sick, but now that I've been doing a lot of active detox, I notice the exact same phenomenon - the more you take out, the more comes out of hiding to ready itself to get excreted too. It's a good thing, but it can be seriously unpleasant.
Posted 8/14/2012 7:28 PM (GMT 0)
thanks for the reply, borderlyme. i am just feeling so cruddy and it is really hard to know whether this would have happened anyway, or if the cholestyramine is causing the exacerbation. i had come off of the longest reprieve of major symptoms since becoming acutely ill--almost 3 months of not feeling like i was about to implode. as a result, it is hard to feel like i have backslid, but if it's matter of things having to get worse before they get better, i can accept that.

blessings and many thanks to you
binx
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