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just got diagnosed 2 months ago =[

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Posted 9/12/2012 8:50 PM (GMT 0)
hey, my name is cassie i am 22 and live in the hudson valley of ny. long story short i have been sick my whole life whether it be from strep/ food intolerances/ mono/ whatever you can think of ive probably had it. i dont have tonsils. i puked up everything the first year of my life, i have severe anxiety, depression, obsessive thinking and emetophobia. (phobia of vomiting) i am on prozac, welbutrin, xanax, A-L complex tincture, 2 probiotics, b12 shots daily, methyl-protect because i have a gene mutation (MTHFR) and i have an extremely strict diet. i do not eat wheat, gluten, dairy, eggs, casien, pork, or beef. i eat no junk food. and i still feel VERY sick. my mother has chronic lyme disease and she got me tested and guess what. mine is actually worse. go figure. so im in a rock and a hard place because i have seen her through so many treatments where she almost died. and i still see her suffer. i dont want to be that person. i feel like i would be fighting to win a battle that i am never going to win. so between all that and my severe emetophobia i just need a break. im going crazy! im only 22 i should be able to have a life and be in college and working. and i cant do anything but lay down take pills and eat salad. thats what my life has become. thank god i have an extremely supportive boyfriend. and a very supportive family. i just dont know anyone my age who has the problems i have and someone who can understand. so if anyone can email me at [email protected] i would love a penpal. it would mean alot to have someone i can talk to when times get hard.

thanks again good health to all! <3

Post Edited By Moderator (borderlyme) : 9/12/2012 7:25:52 PM (GMT-6)

Posted 9/12/2012 11:52 PM (GMT 0)
Hey Cassie!

I am no where near as bad as you are. I've been suffering for the past 7 months since February, and was just diagnosed around 2 months ago as well. I'm also 22 years old. I kind of have a feeling about what you are going through. Before all of this, I was extremely athletic, energetic, and would love to go out and hang with friends. I was an overall happy person. Now, I can barely run as much as I used to. Before I would be able to run 7+ miles (I ran cross country and track throughout high school). I m still able to practice Bikram Yoga as it helps my joints and cleanses me. Its very hard and saddening to see everyone around my age happy and care free about their health. I am invited out to the bars and clubs and I can no longer go. I used to love my occasional glass of wine sitting on the couch, and I can no longer enjoy that. Everywhere I look there are eye floaters. I never no when I'm going to get a tensed up pressure headache or when my heart will start to hurt. I never know waking up if it will be a good day or a bad day, if my legs will twitch or if I will be severely fatigued and tired. My anxiety gets out of whack. So many others symptoms. What's most upsetting of all is that we still have a life to establish... job, partners, career, money.. etc. And Lyme makes it 10x harder....

All I can say from what I have gathered is the following..
1. See a GOOD LLMD (be prepared for $$$)
2. Stay on antibiotics even after you feel symptom free for a few months
3. Stay away from all sugar, read labels, do everything you can to stay away. It will starve the bacteria.
3. Take herbs... I started the Cowden Protocal, and also take Vitamin C, Garlic, Milk Thistle, Resveratrol, and oregano oil.
4. Take detox baths... set the water to hot, add 2-3 cups of epsom salt, a little hydrogen peroxide, and baking soda. Try to to build up the amount of time you can stay in the tub. Drink some lemon water along with a lot of water and lye down afterwards. You'll feel like absolute crap but you are helping your body so much.
5. Stay active as much as possible, stretch as much as possible, anything you can do!
6. Don't hide inside... enjoy life right now as much as you can.

Keep your head up!
Posted 9/13/2012 1:29 AM (GMT 0)
Hi cassie - welcome to the forum! I'm so sorry to hear of all you've been through - I've been in a similar situation - only 25 and I've been through the ringer since I was a kid! I know it can be overwhelming to find out that you have lyme after years of being told your symptoms are caused by everything else under the sun, but hopefully being here on the forum can help you find the right treatment for you, and maybe find some tips for your mother as well! Doctors and alternative practitioners are learning so much about these infections and it's getting easier to treat them effectively, so please understand that there is a light at the end of the tunnel!

You can email me any time - my email address is available in my profile section - I'd suggest you add yours as well as sometimes posting an email address online makes you a target for spam. xrunnerx08 gave you some great advice - I'd also suggest looking through the "new to lyme" thread as there's plenty of great information there put together by our members that can help. And please let us know if you need help finding a LLMD! Hang in there!
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