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Posted 10/23/2012 7:59 PM (GMT 0)
So I am getting very aggravated. Last week I was feeling great, almost all my symptoms were gone, I thought that the antibiotics we finally working! But then I had a stressful day at a funeral yesterday and by the end of the day all my symptoms were back. Now I don't know if this was just a coincidence or if it was due to the stress but now my cheek is numb again, neck pain and headache, and I have the chills. Just when I thought I was getting better it came back with a vengeance. Now am I back at ground zero?! Do I have to start getting better all over again? I have no idea. And my antibiotic prescription is done next week. I'm not sure what my next step is
Posted 10/24/2012 12:28 AM (GMT 0)
Hi Irishgirl,
Forgive me as I have trouble keeping track of everyone's progress and what they are doing. Are you seeing a LLMD?

Stress is a huge issue for us. It hampers the immune system and so the infections can move around more freely, and as you have discovered, increase symptoms. You don't have to necessarily start back at square one, but as you can see, you aren't ready to be out of treatment yet either since a little stress bring back your symptoms.

I don't remember what you are taking or what kind of a doctor you are seeing (sorry!), but I would suggest that you stay in treatment!
Posted 10/24/2012 1:13 AM (GMT 0)
I know all too well how frustrating that is , Its been going on like that for me for years ... I was not on any formal treatment but have tried making changes and they seemed to turn my symptoms off then boom they are back .

Stress or stimulation def makes mine flare . . for example when I have to leave the house I start to feel  panicky /nervous and then my elbows will feel all heavy and real stiff like  , my coordination and jerky movement issue will come back full force , and sometimes even my legs will get all heavy and feel strange like its hard to lift them . The list goes on , just weird ..

I wondr what exactly it is about stress that will make your symptoms come up like that ??? I wish I knew sad

Posted 10/25/2012 6:52 PM (GMT 0)
Traveler,
I am not currently seeing a llmd. I have been trying to find one that takes my insurance since funds are somewhat low due to a previous hospital stay I'm still paying off! My current dr. Doesn't know too much when it comes to the proper treatment. I've been on previous abx but this time around she put me on doxy 2x a day 100mg per does. From what I have read, that's not a strong enough dosage to really kick it but my current dr keeps saying how weve overkilled with antibiotics already.I'm trying to find a more educated dr but its hard to find on that also accepts my insurance...my other question that ive had on my mind is, how do you really know when then antibiotics have worked and its not just symptoms that will be hanging around for awhile. I'm not expecting to be better over night but I feel like the antibiotics I'm currently on must not be doing much. I just don't want to get any more serious symptoms or cause any perminant damage to my body.
Posted 10/25/2012 7:00 PM (GMT 0)
I just posted about the same exact thing! I was feeling pretty good for a couple of days, then bam, all my symptoms plus new ones returned. It is def very frustrating. Someone on this forum had described lyme as a roller coaster, and I think that is a perfect analogy. For me, the key to this disease is acceptance. I have to accept that some days I will feel okay, and some days I will feel like I am on my death bed. However, from what I understand, once you really start treating the disease, the bad days get fewer and far between (I hope!).
Posted 10/27/2012 12:01 AM (GMT 0)
It can be pretty rough when you are starting out, that's for sure! If you are just starting treatment, or if you've never been up to the required amounts of abx (* see below), then it's just the 'cycles' that the bacteria normally has and each infection has it's own schedule.

*For a general idea on what abx at what dose is required, please read Dr. Joseph Burrascano's paper, Advanced Topics in Lyme Disease, which can be found in our 'New to Lyme?' thread, and here: betterhealthguy.com/joomla/images/stories/PDF/lymdxrx2008-october.pdf

As Maxam has said, once you get well started into the proper treatment, then the bad days will start to get farther and farther in between.

Also, be sure you are detoxing, dry skin brushing & drinking lots of water, as those toxins will overwhelm your body causing even more issues, even if you aren't on abx or on a high dose of abx!!
Posted 10/27/2012 12:10 AM (GMT 0)
Irishgirl, try to locate an ND or an integrative medicine doctor in your area. Often times they are more open to treating and testing for Lyme even if they aren't on the "LLMD" lists. The downside is, you will need to do a LOT of research to really be an active participant in your treatment if you choose a doctor who is not specifically focusing on Lyme.
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