Abnormal CBC?

I have had low wbc for over 5 years and was diagnosed with lyme a month ago. Have not started treatment either. I went to the zillionth doctor to figure out why my wbc's were low, thinking maybe it was heavy metals. Then he said he thought I had lyme with all of my symptoms. So, yes it is very common I am told to have low wbc's if you have lyme. How long have yours been low? How long have you had lyme? Did you do a test thru IGenex?

Thanks for the replies! I was hoping it was Lyme-related. I guess it sounds weird to say I was hoping this, but my nephew was recently diagnosed with stage 4 Lymphoma and my oldest sister had a rare type of cancer, so I'm always worried about that.

Therman,

I noticed some things that were slightly off on my last blood work (but I guess not enough for my Rheumatologist to be concerned, he never mentioned it), so I guess it's been abnormal for at least a few months now, but I'm not entirely sure. I haven't actually seen the results this time, so if I seem vague it's because I have no idea what levels are off, just that the nurse called and said my CBC was abnormal. I had a western blot that said I tested negative for Lyme (but the initial test was positive, I'm jut not sure what type of test that was). I think, based on my symptoms, I have probably had lyme for at least 10-12 years, maybe longer. I had vague symptoms throughout my mid-twenties. After my son was born 18 months ago (I was 30), I became very ill. I got the run around from a thousand doctors too. I never suspected lyme until that first test was positive. I have my first appt with an LLMD Feb. 6th. Until then, I'm being treated for hypothyroidism, Vit D deficiency, Fibromyalgia, etc. because my Rheumy doesn't think I have Lyme. Are you seeing an LLMD? Do you know when you will begin treatment? I see you are a new member. Welcome! You'll get so much great advice here. This group has been a huge help to me!

Summer3, do you ever get rashes? I've been getting them constantly, especially after a warm bath or got shower. It seems like herxing, but I'm not on abx yet so I'm not sure. It also matches the symptoms of Bartonella, but I haven't been tested for any co-infections. Anyway, because of the rashes I went back to my Rheumy and they did more blood work. They said it sounded like an infection. After the results came back they said I need to retest in 3 weeks. So what about that infection they suspect?? It's so frustrating. It's so obvious to me that it's Lyme disease causing all of this, but they refuse to look at it as a possibility.

Summer3,

I was also a hiker, mountain biker and trail runner before I got sick. I really miss running! I don't live in an area where lyme is considered common, but I did some hiking in northern VA in my late teens-early twenties. I lived in the Outer Banks in NC for a couple summers and made a lot of friends from VA, so I would always visit them in the summer and fall and we were always outdoors.

Then again, I think it is just as likely that I got it here in east TN. It supposedly isn't common around here, but I believe that about as much as I believe that I tested negative for Lyme! It's such a strange stigma that surrounds this disease. I want to devote myself to changing that so that people don't have to continue to suffer.

I have been having the same problem. I will be going back to my hematologist this week. I have had problems with anemia all the way back to 2008. I had a hysterectomy in 2009 due to some issues and we thought this would fix the anemia but it didn't. Now, after some oral abx and i.v. Rifampin and Cleocin, my RBC is consistantly low. Also, the last 2 months, my WBC has been low. I have no idea why. Also, my eosinophils are usually high. This was thought to be from Babesia but now I am testing negative for that and my eo's still go a little high at times. I plan on asking him if he thinks its the Lyme causing it.

How do I find lyme patients on this board who have had success with Rife machines?