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feeling disconnected from friends? ugh..

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Posted 12/16/2012 3:59 AM (GMT 0)
Hey,

Tell me if im going crazy or if it could be lyme. Well..had slight hangover this morning on accident. So that did NOT help symptoms and hardly got any sleep. Tonight I went to an ice skating rink with friends. They wanted me to skate..all of them kept telling me to,but didnt want to. I felt weird and disconnected,..hard to explain. After they were all taking off their skates..I just left..walked out and didnt say bye..

venting,..tomorrows my birthday. Hopefully im in better mood. Will be 26. 26 years and aint got **** to show for it. just workin part time going no where in life..
Posted 12/16/2012 4:51 AM (GMT 0)
kds86,

I'm sorry you're feeling this way. I know exactly how you feel! I remember when I first really noticed it in myself. We were on this awesome trip a few years ago (I was 25 or 26 at the time), and there was a ropes course. Every time I started to climb the ladder to do one, I backed out. It was like I'd become a different person! It was so unlike me, I remember my friends were worried. I thought it was because I was hungover from the night before. But the good news is that by the next day I was white water rafting! So try not to worry, take it easy and with any luck you'll be ready to go celebrate your bday tomorrow!

Happy Birthday!
Posted 12/16/2012 11:19 AM (GMT 0)
Hang in there KDS. I'm sure that one day things will get better with treatment. I can completely relate to the frustration of not wanting to do things that other people want you to. I used to be someone who looked forward to each day. I did a lot of skating, skiing, ropes courses, swimming etc... Last year was the first year that I completely was unable to go skiing all winter. Luckily there was no snow so it wasn't too much of a disappointment.

So another winter is here and I'm also very upset at all that I can't do. I have to focus on thinking that there are still some things I can do. I can still think clearly most of the time to research something that I can do to help myself feel better. That's a huge one. I can still get up and walk most days. I'm not bedbound etc.

Just an idea.....Do you have any pets? I find them very helpful. They give me the motivation to get up and keep going every day (especially since I don't have kids). A lot of people with Lyme avoid pets because it can increase the chances of tick exposure, but there are plenty of 100% indoor pets that could be an option and lots of pets for those with allergies as well. It might be a good thing to cheer you up on your birthday.
Posted 12/16/2012 1:16 PM (GMT 0)
I know what you're talking about...

They know you have this disease, you set your bounderies, but still some try to push you into doing things... probably some of them with the best intentions, but they just don't get it.

I feel very disconnected from them: most of them just ignore me being ill, they don't even bother to ask how I'm doing (although I'm their therapist all of the time) - I feel like a stranger when I'm amongst most of them. Can't keep up with their activities, just want to sit home and recuperate from my fulltime job. When we're out, they're having fun, but I'm struggling with my hypersensitivity: too much noice, too much light, too many people, too much impulses... can't find  my words, feel stupid because of my slow brain, and then I just want to go home.

I don't know how to handle this either, this is one of the biggest frustrations I'm dealing with...

 

Posted 12/16/2012 3:24 PM (GMT 0)
@kds, nothing to show for it??? You are 2freaking6. and HAPPY BDAY. Ya know - I struggled a lot growing up financially. I put myself through school etc.(oh I do have something to show for it - a piece of paper and 25k in loans lol) and I never took the time to enjoy life. I always was working, or volunteering or studying or typing resumes and I'm glad that at only 27 I realize *** was I thinking. I should have been out skating with my friends ;).
I've definitely cut back on my commitments with friends but we email a lot and I'm just trying to take care of myself right now. I'm lucky my friends understand when I'm not feeling well! I'm sure your friends do too.
Posted 12/16/2012 4:42 PM (GMT 0)
Yes, Kd Happy birthday!!!
You've made it to 26!! You are on your way to finding a way to heal - that's two somethings to celebrate!

You have a lot of life ahead of you - I only wish that I had known what I was dealing with when I was only 26 - and I'm sure I'm not alone. You'll heal and have an opportunity at a wonderful life!

I would say watch the alcohol consumption - it's almost always hard on those with these diseases and dealing with any kind of hangover can push a person into a bad attitude! LOL! Been there too often myself! :-)

You also have as many friends as you want here! There are quite a few young people here that you could befriend and email.They would completely 'get' what you are going through!! I would have never made it if I hadn't had two very special friends that I connected with from this forum - they were my lifeline many times.
Posted 12/17/2012 8:47 PM (GMT 0)
Hi all. New to this forum and had to briefly chime in on this topic. Just turned 26 myself and absolutely can relate to the OP's feelings regarding friends/life. I've learned to let myself back out of social situations when I am at my worst physically, important to not push yourself to much. At the same time, working friend time into the weekends when possible is a huge help emotionally and even takes my mind off my symptoms. Like you said, some friends just don't seem to get it and it's annoying as anything. I'd say only one or two of my buddies are really open to hearing me out when I want to vent and they make a strong effort to see how I'm doing. Try reaching out to these types if possible and think of some low-key activities that you enjoy with friends. Like Traveler mentioned, watching the alcohol consumption is also a good idea.
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