I don't know if anyone has any answers for this but I am throwing it out there. I am currently not on any treatment/protocol and am in the process of finding an LLMD. That said, I do a lot of proactive healthy things - eat gluten free, dairy free, meat free diet. Juice wheatgrass almost every day. Do carrot and kale juice everyday. Do green smoothies almost every day. Try and walk on the treadmill - not breaking any speed records, I assure you. I dry brush and take Epsom salt/peroxide baths. I take probiotics, digestive enzymes, glutagenics, etc.
I have been on this Lyme Journey for 8+ years (unknowingly until the last 4 months when the pieces started falling together. That's when I happened to watch "Under Our Skin" documentary and the light bulb when off. I remembered getting a Lyme test 4+ years ago that was "negative" because I only tested positive on Band 41. So, that got me thinking ... all of these strange bizarre symptoms that no one could figure out could be Lyme! It was truly a huge relief and a huge scary realization.
What I am curious about is what causes things to get better, worse, to stay bearable, to stay horrible, etc and then ... seemingly out of the blue -things "shift" - either shift for the better or worse. For me, my "shift" from bad to good is usually in a remarkably short time frame - 24 hours or so - no matter how long I have felt terrible. I guess what I'm trying to say is that I can be sick, hurting, in a really really bad state to where I feel like I truly cannot go on anymore and it can stay that way for days on end. Then, I can wake up one morning and I'm about 70% better.
I've just come off one of the worst times ever with my stomach and back. I truly felt like my back was breaking in half and my stomach was in its own intense misery. I couldn't sleep, I couldn't sit for long, I looked and felt like Sh*&*. Huge bags under my eyes, my color was bad and my nausea was another factor. It didn't seem to matter what I ate or didn't, what I did for detox or didn't - there doesn't seem to be any pattern/plan/logic to any of this. I think this is in part why people around me think "how can she really be sick when today she seems pretty darn good?" I don't know myself.
Today is a great example. I have been so so so sick of late that it was taking everything I had to be able to go to work and do my job (that I LOVE). My boss is great and supportive. I told her yesterday that I was feeling so very bad I wasn't sure I was going to be able to make it all day. She said, "I can tell from looking at your eyes that you aren't doing well at all." I ended up working only part of the day and going home. I came home and felt so so bad. Then, I get up this morning and I'm better - markedly better. Am I back to "normal" (what is that?)?? ...far from it. But I am light years better than yesterday and the past couple of weeks. When I got to work today the minute my boss saw me she said, "Wow, you are looking so much better-do you feel better?" I say that because that's how obvious it is.
So what does this? I don't see any pattern to any of this for me. Can anyone relate or explain this? I am so grateful to be feeling better today and I hope each person here gets much needed relief as well. Thanks much, kathleent