Hi Sqwa,
Having test results that don't show a Lyme infection is actually quite common, and no, it's not too late for you to receive treatment!! I went undiagnosed & without proper treatment for 42 years after being infected with Rocky Mountain Spotted Fever at the age of 7. I've had remarkable healing (most in my area now don't believe I actually had Lyme to begin with simply because I did heal/am healing so well!!! UGH!). I'll likely never be 100%, but 90% is okay with me!!
What you really need to do now is to find a LLMD, LLND, or other Holistic Practitioner to treat you for your infections. Did you ever find one close to you when you first joined us here? If so, just contact them. If not, you can start a new thread titled something like:"Looking for LLMD in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can also email our long time member, Dan's Mother at:
[email protected] You can also email Stephanie at:
[email protected] You can also go to:
www.turnthecorner.org/ if you want to learn a little bit more about
Lyme Disease.
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74 You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. The ILADS site is another great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html If you didn't have a chance to before, I would encourage you to read through our "New to Lyme?" thread as it's packed full of information that you will likely need as you go through treatment.
And last, but definitely not least - you are not alone in this!! We are here to help you find the info you need and to help you with lots of suggestions as you go through treatment.