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IV Treatment Options--Currently on Rocephin and Coinfector--Babs and possible Bart

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Posted 2/8/2013 4:32 PM (GMT 0)
Hi there everyone and Happy Friday! I have a few questions for the group. I'm undergoing a Rocephin IV Treatment (1-2 times a week), coupled with supplements to help out which are listed in my signature. I also detox at home (sea salt baths or foot bath), infrared sauna at my doctors practice and colonics.

First time I had a treatment was Jan 4th and I had a really bad herx on January 6th.

I didn't get another one until January 25th (my doctor ran out of medication because 4 new cases of Lyme disease infected folks walked in a week after my treatment). The one on the 25th wasn't that bad...I lasted 4 days before I started crashing (muscle weakness, fatigue and had a bad balance coordination issue and slight dizziness). I had treatment #3 on January 31st and #4 on Feb 2nd because she wanted to bump up my IV treatment to two a week. I think I had them too close together or there is a major issue happening with the co infectors. I had the worse air hunger on Sunday and my nerves were shot (but I still watched the Superbowl)!. But the air hungers was horrible and all week I've been up and down with air hunger. Then anxiety kicked in on Tuesday and yesterday and I was dizzy/out of balance. This is my second good day this week (knock on wood).

Here's the deal...I told her I want to start dealing with the Babesia, I tested negative for it but have a lot of the symptoms and the Bart because it is probably interfering with the Lyme treatment. She said lets only focus on Lyme.

So here are my questions...Are any of you on Rocephin, if so did you ever feel dizzy, had a lack of coordination, out of sorts? What other IV treatments are out there? And if you have Babs and Bart or another co infector how are you handling treating all? I heard that my Lyme treatment might not take effect at all after a while if the co infectors aren't treated and my IV treatments might be triggering the co infectors to really act up.

Also any advice on relieving the symptoms of air hunger. I heard Turmeric is good.

Let me know everyone! Thanks!

Posted 2/8/2013 7:21 PM (GMT 0)
I'm not sure about IV meds because I'm on oral, but from everything I've read, yes, co-infections need to be treated first or along with the Lyme. Otherwise, healing isn't possible. That's just what I've read and heard. Is your dr. a LLMD? Did you watch the video I posted by Dr. Horowitz about Babesia? It's very informative.
Posted 2/8/2013 8:09 PM (GMT 0)
Hi Mystery! Yes I watched it and even before the video I told her we must treat these first or along with it to really make my treatment a success. Thank you for the link because I sent it to her as well. She isn't a LLMD but we (her and I) are looking for a specialist that accepts insurance (at least for my IV treatments). This is upsetting, I feel like time is being wasted. But I have an appt on Monday and pray that I walk out with resolution because Babs is making itself known and it's time that it be kicked to the curb!
Posted 2/8/2013 8:55 PM (GMT 0)
Im being treated for everything at the same time.  I take ammoxicillan and I also take

rifampin, and supplements for the rest of the infections.  He took me off of azthromycin

just now starting flaygl.  I have babs,bartonella, hhv6, mycoplasma.,clamydia.  So

my Dr. is treating everything at once.  He wanted me to start something else, and I told

him I couldn't i take to much stuff now.  I sometimes don't think there is enough time in

the day to take everything.  Oh and plus I have yeast/fungal issues.  So sometimes

I feel overwhelmed...... to say the least to be honest I'm suppose to take the ammoxicillan

3xday I usually only take it twice.  Theeir such high doses, so I don't feel to bad about that..

Posted 2/8/2013 9:45 PM (GMT 0)
Moon, you really do need to take the right dosages in order to be able to kill the bacteria, otherwise they will only rally once again later. You are taking so much that I don't blame you, but you are only shooting yourself in the foot by not taking the full dose.

Maybe you should just tackle about 1/2 of that at a time. All of that has to be really hard on you and your body.
Posted 2/10/2013 3:27 AM (GMT 0)
Moon, yes, like Trav. said, you do need to take the proper dosage. A couple suggestions:

First, make sure that the dosage your Dr. prescribed is the recommended therapeutic dose for lyme. My first LLMD put me on WAY to high of doses, even for Lyme and Trav. had a similar experience with minocycline.

If it is the correct dose, start anything new slowly and add one med. at a time to lessen herxing and be able to determine side-effects.

Then, if it's too much on you, talk to your Dr. about lessening meds. and what to tackle first.
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