Hi Sofar!
Welcome to out little community!! I'm so sorry that you have a need to be here, but I'm sure glad you found us!
First of all, ID docs don't even admit that chronic Lyme exists, and they believe that Lyme is hard to catch and oh-so-easy to cure - which is completely false. You will need to see a LLMD (Lyme Literate Medical Doctor) that has had ILADS (International Lyme and Associated Diseases Society) training in order to find the healing you deserve.
It's likely that you are only a strong enough dose of Doxy to stop the bacteria from replicating, but not strong enough to actually kill the bacteria (400 - 600 mgs a day). At first, even low doses will cause a person to feel better as it slows the take over that the bacteria are intent on.
Bands 23 and 39 are both specific to Lyme (please see
www.anapsid.org/cnd/diffdx/wb.html for a very informative chart), so there's no doubt that you have the infection.
If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,
"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, and a list of questions that you can ask any doctor that you are seeking treatment from!
We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about
our infections and the different ways to treat them!
For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can also email our long time member, Dan's Mother at:
[email protected] You can also email Stephanie at:
[email protected] You can also go to:
www.turnthecorner.org/ if you want to learn a little bit more about
Lyme Disease.
You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74 You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. The ILADS site is another great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html Above all else, know that you are not alone!! We are here to help you find the info you need, and to give you support as you go through treatments!
