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Posted 2/13/2013 5:17 PM (GMT 0)
I am having a few really bad days, seizures are getting worse, not sure why. I take my meds, eat well, detox, it doesn't seem to be helping much.

I need to get a infer sauna , I am working on that, right now it's just not happening. I am so tired, just have to make it to the 25th for the next doctors appointment. I am in pain, my arms and legs really hurt, I don't know how anyone can take this , I really don't.

I hope that they find us a cure soon, so we don't have to do this anymore, take this pain. I am just tired of it. Maybe I am just tired of being tired, I don't know.

justme
Posted 2/13/2013 5:29 PM (GMT 0)
Justme,

Just a short message to wish you lots of courage. You are not alone, just posting on this forum helps a bit... I know exactly what you're going through, never felt so empty (energywise) like now. Don't have a clue why everything keeps going downhill in spite of all the efforts I'm doing.

I'm praying for a cure too, or just at least some recognition...

Hang on Justme!

Marie
Posted 2/13/2013 5:47 PM (GMT 0)
Hi justme,

Hang in there honey. I think your doc really cares and I know things are going to get rougher for me too when I start treatment. Just to give you a heads up, when I started up the Sida Acuta (targets babs and bart) my muscle tremors came back...when I stopped they went away....so I think this might be part of the rough ride that goes along with treatment.
Posted 2/13/2013 5:59 PM (GMT 0)
I can't take your pain away,I wish I could but what I can try to do,is to give you some hope.

I know your pain,it's a pain that is so unrelenting and brutal that it saps every morsel of enery out of your body and soul.

This was my permanent state for 5 months last year,I spent my time sobbing and often wishing I could fall asleep and never wake up.

Once I turned the corner, things started to improve fairly rapidly, today I'm still in pain but it's acceptable.
I can function and I've begun to enjoy life again.And so will you.

Try not to look to far into the future,concentrate on getting through the next,minutes, hours ,a day.

If you think about living this hell indefinitely,you might snap.

Things are going to improve,I didn't believe this either,but they have.On a scale from one to ten ,my pain is

maybe two to four,during my worst times it was immeasurable,unbelievable and unbearable.

Please try and believe,you are going to get better.

Sending soothing thoughts across the ocean.

Tickled
Posted 2/13/2013 7:35 PM (GMT 0)
Thank you all, I just have been having a really rough few days, the pain has been unreal. The only thing that helps me is a really hot bath, I feel better for at least 20 minutes after.

I am going to keep on fighting this battle.

Justme
Posted 2/13/2013 8:12 PM (GMT 0)
I'm sorry I've been so busy lately, Justme, but I too want to encourage you to just focus on getting through each day, or hour or minutes. Just think only on the things that you can do without making you feel hopeless. You'll make it, you are too strong not to.

I too had that unrelenting, unbearable for hours or days type of pain that makes you feel like your bones will explode - or wish they would just to get it over with. As Tickled has said, it does go away though - you just have to hang on and get more treatment.

This is one of the hardest things I had ever tackled - not giving up during the depths of my despair, pain, and non-functioning brain - but I can tell you that I'm now very, very happy I did just what I'm telling you and what I was told soooo many times. Hang in there, it gets easier and much, much better!

Sending all the love and hugs I can 'cyberly'.
Posted 2/13/2013 9:24 PM (GMT 0)
gentle hugs , I hear u.


You know we, and I can identify


we are still here, we are tough cookies even those there are days of pure hell

moments of it, before getting sick, in bone pain, we ourselves could never imagine the

depth of the pain, even those seconds of pain, where, when u dont know how u got

through it



months,

but somehow we did, we are



I am tired too,



but we are still here...



rest extra if u can


many blessings, your friend, hope2b
Posted 2/13/2013 10:18 PM (GMT 0)
Thank you, I sometimes think when the world see's how bad we had to fight through this Lyme maybe they would stand up for us as well. I had two kids, and I can tell you the Lyme pain is worse, It sometimes takes my breath, my bones hurt so bad. I am hoping I have a good day soon, so I can be like I can make it through the bad days, as long as I know I will have a semi pain free day.

Lots of love from Illinois, hoping for a cure.

justme
Posted 2/14/2013 8:11 AM (GMT 0)
Someone once said to me ,that if you find yourself falling down a deep,dark chasm,you have to hit the bottom before you can start climbing your way out of it.

Sounds very harsh but there is most definitely some truth in it.
Posted 2/14/2013 12:10 PM (GMT 0)
That makes sense, have to hit rock bottom before we can get better, I can relate to that.
Posted 2/14/2013 2:41 PM (GMT 0)
As long as you remember that you will come back up!! As hard as those days can be, always remember with Lyme all things change...sooner or later.

I remember focusing one what type of pain and where it was the worst in order to find what kept changing. LOL! But it did keep changing and some days that was enough for me to hold on to - I would tell myself, "well at least the pain has changed today!", as I felt like I just couldn't take one more day like that day.

Hang in there Justme and Hope2B!! We are all cheering you on and hoping that you find relief soon.

Many hugs to both of you!! yeah
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