Bad day - had a dr's appointment this morning...

I had a bad day today, and it's only 2.30 pm...

Went to see my dr this morning.

I was not feeling better at all during the 6 weeks off abx. He said that was a possibility (going off them caused a huge liberation of the bacteria).

I need to wait another 6 weeks.

He doesn't think I might have thyroid problems or any other hormonal problem. He only ordered a TSH test.

He says I'm gaining weight and having all of the pains because of a general inflammation of my whole body. That should also cause the breathing problems I'm having these last 5 days.

He has ordered some testing, worth half a salary... this is getting crazy. A Borrelia Elispot-LTT test in Augsburg, CD57, vitamins, general bloodtests, cytokine test, a list of antibody tests, and other things.

 

I asked him his opinion about combining abx with a herbal protocol. He's not ok with that because he can't predict possible interaction or releasing too much toxines at the same time.

 

 

So sorry MarielS! I know when I go to my doctor I always want to feel like I'm getting somewhere, rather than adding to my questions. It's frustrating. I'm curious as to why you stopped the abx?

Also, I'm reading Dr. Jernigan's book now and he says you can take all of his herbals with abx. I would do it slowly, like Traveler usually advises us to do. But as far as bad interactions, I don't think his protocol will have any. Unleashing more toxins than you can handle, well that's a different story and maybe someone else on here can speak more to that.

All I know is that Traveler always advises taking herbs one drop at a time and only doing one at a time so you know what's what. Also, from my experience (I am back on abx now myself) the herbs are so much easier on your system. I know you've been sick for a long time so I'm not sure if you're interested in going that route. But I was on only herbs for 4 1/2 months and I felt great!

Now, not so much...

I'm so so sorry to hear this, Marie!! Since I've had the privilege of getting to know you just a bit, that guy was obviously out of his mind!!! LOL!!!

Good for you for taking control of your treatment. Do what you feel to be right for your body.

Be sure you are doing all you can do for detoxing including eating foods that will help your body to detox - green smoothies, raw carrots to name a few. And lemon water if you can.

Herbs have a tendency to not make a person herx as hard as pharmaceutical abx (as they work differently and have components that help the body to deal with those types of reactions), although this isn't the case for everyone and most definitely not in every situation.

During my herbal treatment for Bart, I herxed really hard for the first three weeks....and that was using only 1/3 of a dose a day and that was diluted by 1/2!! So your doc is right about not being able to control the herx, but it's the same with pharm abx as well.

I would suggest however, that next time you feel like you may be coming down with something that you only lower your dosages, not stop the meds. That way your body can have some help still with the bacteria wanting to take over.

Just a few thoughts as I pass through! LOL!! Sorry. "Dad" is requiring 24/7 care now, so my time is not my own.

Hi Trav,

first of all: thanks for taking the time to answer, while being too occupied at home.

that guy certainly chose the wrong person, I was ready to fillet him after that dr's visit

I'll keep on doing the herbs, even when I'm feeling sick - you're right, it sounds logic. I'm not even at 1/3 of what is written in the protocol, I'll just do slowly. The greens/fruits are a problem for me, with my food intolerances/allergies. I would really like to do them, maybe I'll just give it a try, maybe it'll do more good than bad...
Lots of courage at home Trav!

TheWryter,

thank you very much for you blessings, I really appreciate it. From all of you guys here.

I hope you won't have to wait long for a new appt...

Marie

Thank you for your kind, wonderful words, Marie. They mean the world to me!!

You do know what's right for your body, just take things slowly, sometimes we don't know it's right until we give ourselves the chance to experience it is all.

You'll make it, I know you will.....you are just too darn stubborn!! giggle!! It takes one to know one.

Hey Marie,

I read tat you said the doctor tested just your TSH levels? Many times that doesn't amout to much. My TSH levels were almost always either normal or indicating that I was HYPER. But when my T3 and T4 levels were taken, they showed that I was HYPO... very hypo. Are you getting any other symptoms? How is your hair, nails? Are they brittle, breaking, or curling unusually? Are you more tired than normal. How is your appetite? How quickly are you adding weight?

Sorry for all the questions, just trying to get an idea of what can be going on. TSH is really not dependable when it comes to figuring out if the thyroid isn't working properly. Thats only one part of a lot of different things that could be going wrong...

Hi Sam,

I asked him to check my thyroid, but he was only willing to check TSH - I think I'll go and see my GP soon and ask him for the other tests, I think he'll do it. I'll just give it a try.

My hair falls out a lot, it grows back, but then falls out again, and so on. My nails are very hard, but are starting to break lately (never had that before, people used to think I have false nails, but they are all real), my hair and nails almost stopped growing these last months. I used to have really shiny hair, but that's gone too. I dye my hair now, at an organic hairdresser (that's how it's called here), no bad ingredients, and it makes my hair really shiny again.

I'm always extremely tired (was first diagnozed with CFS), appetite is down, I gained about 14 kilos (30,8 pounds) in 1 year.

Don't worry about all the questions - if we can talk about poop, we can talk about anything - lol

Thank you!!

a lot of people chimed in

I use supplements like B12, Lypo-Spheric Vit C, Lactoferrin on his prescription, but following a protocol like Buhner's is totally against his advise...

today was a bit better, had a few good cries yesterday, husband was really worried about me yesterday. I had a breakdown at the phone with my father yesterday, and I think he finally got it. He called me again today, offering help to come and clean the house, and to just come and visit to see how I'm doing.

I'm sorry that you're having such a difficult time!

I did a 5 day abx. break, and by the 3rd day my Bart symptoms of burning skin on feet and GI stuff started up again! I told my LLMD that and she said "wow,it came back that quickly?!?!". Both of our bacterial loads must be high.

I am a bit surprised about your LLMDs not wanting to combine herbals & abx., but his reasoning does make sense. My LLMD said that she likes to use herbals when nearing the end of lyme and co-infection treatment to ease off of abx. She thinks that the abx. are more effective initially.

As far as getting a cold and stopping the abx., I have found that taking an immune booster like Elderberry when I feel a cold coming on is very helpful. My first LLMD "prescribed" elderberry and it really does keep me from getting sick.

As far as herxing so bad while on abx., I would recommend starting at a very low dose of only 1 abx. and then VERY slowly increase the dosage. If the herxing gets too bad and doesn't ease up, back down on the dosage. That's what my LLMD suggests doing and it is an effective strategy.

Marie,

Yes, hopefully it will be a better start when you resume abx. now that you know about taking it slowly and detoxing!

Thinking of you and hoping your next round of treatment goes better!