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A Bartonella question

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Posted 3/14/2013 4:07 PM (GMT 0)
Hi to all. Prior to taking rifampin my energy level was much better. At that time I was at least able to drive my car and do a few errands. I took rifampin for 2 weeks but had to stop last Satuday because of extreme nerve pain. I am now on doxy and omnicef. I have been on both before and have not felt as weak as this. Did the rifampin wake the Bart up in my body? The 2 meds I have tried for Bart are plaque nil and rifampin. Both were rides into hell.
Posted 3/14/2013 4:14 PM (GMT 0)
I had this reaction before. And yes, it is probably exactly what you are describing.
Posted 3/14/2013 4:17 PM (GMT 0)
Really. Does it get better with time or is this the way it is going to be until Bart is dead? Thanks for your quick reply.
Posted 3/14/2013 4:32 PM (GMT 0)
Not sure...I noted this because I started having all these weird reaction on keflex and then on the doxycycline everything hurt for a few days.....fevers..waves of nausea...some weird reactions..and then almost symptom free. One month later (no abx for a month) all hell broke loose. went straight to doxy. and no reactions but felt better so the keflex for sure brought something out. But since I have only experienced this once, I can't say if it gets better or not.
Posted 3/14/2013 4:40 PM (GMT 0)
Hmmm I guess time wii tell. I am so thankful I have an amazing husband who understands and supports me. It is very hard to go from great health to chronic illness almost overnight. Been sick for 5 months now. Blah.
Posted 3/14/2013 7:47 PM (GMT 0)
My LLMD said that Rifampin is very good for Bart and that she sees a lot of success from it. I'm on it now, have been for 3 1/2 months.
It sounds like you were herxing from it. Typically nerve pain isn't a side-effect of it, from what I know. What did your dr. say about it? Did you try lowering the dose first to see if that helped decrease the symptoms?
Posted 3/14/2013 7:57 PM (GMT 0)
My doc thought it was a flare reaction. I started taking a dose of 150 mg twice daily. I had hoped to increase to 300 mg twice daily but I could not do it. I think it woke up the Bart. I stopped Saturday and still feel the nerve pain but not as bad. I now have ringing in the ears and much greater fatigue since the rifampin. Strange? I would take it again to kill Bart though. Doc gave me cymbalta for nerve pain. I have not started it yet though. I go slow with all meds. I am still readjusting to doxy and omnicef combo. Lyme is horrible. I had no idea how bad it is and I have been I health care for years.
Posted 3/14/2013 9:56 PM (GMT 0)
Magnesium, Vitamin C and epsom salt soaking are excellent for nerve pain also. And antihistamines (Vit. C, Querecitin, Nettles, Ginger, etc., as well as over-the-counter antihistamine medications) can also help.

IMHO, most meds for "nerve pain" only work as well as placebo effect...I've tried most of them and had no luck with them.
Posted 3/14/2013 10:09 PM (GMT 0)
Hi Razzle
I do everything you mentioned. I have tried Benadryl but it does not work as well as Ativan. I also take probiotics, fish oil, vitamin d3, co q10 and acetyl l carnitine with alpha lipoid acid. Yesterday I ordered a dry skin brush and will start that ASAP. For now I am using a dry facecloth on my skin. But please give me any suggestions you have tried. I really appreciate it. Sorry to read about the g tube.
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