HealingWell
Search Close Search
☰

Tindamax and Nerve Issues

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/28/2013 5:32 PM (GMT 0)
My lyme symptoms are mostly neuro and I have been in treatement for about a year. 

I just started tindamax about 6 weeks ago and have been having an increase in numbness and tingling throughout my body and now burning in my feet. 

My LLMD thinks it is a herx but I am worried about permanent nerve damage. 

For those of you who have tried tindamax did these improve over time or only get better when you went off tindamax.

Thanks so much

Luna

Posted 3/28/2013 5:40 PM (GMT 0)
I have those all the time so it would be difficult for me to determine if they were getting worse from a medication. I take Flagyl right now which has the same risk of nerve damage (my neuropathy started well before I took it though).

It's a legitimate concern. Dr. H. suggests supplementing with extra b vitamins. I believe he suggested B6 50mg 3x per day at the ILADS conference this year. I also do methylcobalamin shots daily which seems to prevent my neuropathy from progressing any further.
Posted 3/28/2013 5:47 PM (GMT 0)
Thank you so much for your reply. Do you pulse Flagyl or do you take consistently? My llmd wants me to take it consistently which I am having a hard time with.

Thanks again.
Posted 3/28/2013 5:51 PM (GMT 0)
I also take it consistently. Most LLMD's pulse it. I've been on Flagyl for months. I was VERY scared to take it at first but I'm okay with it now. The long-term effects of undertreated Lyme scare me more than the low risk of side effects.
Posted 3/28/2013 6:12 PM (GMT 0)
I had peripheral neuropathy prior to taking Tinidizole and I have not noticed it getting any worse.

Patty

✚ New Topic ✚ Reply