Babesia Experts please? Many questions

Gosh, what a mess. Positive for Lyme, Babs (couple yrs ago), CEBV, HHV6, the Parvo Virus 19 or whatever, and now the 2 most toxic mycotoxin groups.

You know how you can kind of distinguish many of your symptoms at times but so many overlap? Dx for the others about 3-4 yrs ago and most recently the mycotoxins, black mold being amongst. These were very positive results from Real Time Labs.

Important to note that I have had brief periods of less symptoms, tho never well yet. Altho my Dr did not recommend this at the time, I took my Mepron for a few months, figured that should be enough to knock it and stopped. It's a strong med which I don't want to take if I don't need it. But that is the question. I know it is a question for the Dr and that is coming up next week, but I would like input from experienced, knowledagable folks here. Have also been on high doses of Augmentin for several years and LDN, tho I missed a month or so at the end of last year.

I started getting sicker and more often since last summer. Now, almost every weekend I feel very ill, as if going thru cycles. Several types of Pain, profound fatigue, mental issues, sweats, and aches. Does not sound like Lyme as I"ve heard Lyme reproduces every 2 weeks. What about Babs? Does anyone know about that?

I have started back on Mepron in desperation. Hope to get answers from LLMD w/ symptoms, but symptoms of all of these overlap. I tested positive for Microti and WA on first test. It stated that the titres (or whatever) were high enough to indicate acute and possibly appear on blood smears. (altho I was not acute). We took another test about 2 yrs later and the numbers are the same. However, the Dr said this could not be definitive because I had already been infected and the antibodies would still show. Shouldn't those numbers have improved if Babs was taken care of or might they not change? I inquired about a blood smear, but he explained how that would most likely not show us what we wanted -- too many red blood cells would have to be viewed.

Also, is it possible w/ Babs to have a little herx appx 2 hrs after a dose? I always sweat something out around that time. Is that coincidence or indicate a true babs herx?

What else can I do? Now that I know about the mycotoxin infections, we can attribute many symtoms to this. But I want to stay on Mepron if I still have active Babs and I want to stop taking it if I do not.

I like my LLMD a lot. But as I think we know, LLMDs will tend to prescribe everything and anything if you might be struggling w/ a particular infection. I do have one complaint which I will ask him to address: testing my liver and kidneys after so many meds.

Should I just stay on my Lyme and mycotoxin meds and wait and see?

DOES A ONE WEEK CYCLE MEAN ANYTHING TO ANYBODY?

I don't know. My basic Bart test from Quest -- like an Eliza -- was negative. My Dr knows better than this about those tests, unreliable, but he stated I was negative for Bart. So I haven't looked at those symptoms in a long time. Maybe should...
Thanks!

My understanding is this:

Lyme cycles every 4 weeks.

Bartonella and Babesia cycle much quicker - around every week.

You have tested positive for both microti and WA1 and from your description although done some treatment not comprehensive treatment.

WA1 is considered hard to shift.

Your symptoms and frequency of them could be interpreted as Babesia.

Burrascano says cases of severe complicated lyme often involve Babesia like organisms.

Dr H, expert in Babesia, advises a full Babesia panel from IgeneX, these tests are not accurate and there are many more strains than the 2 implicated in human babesiosis. The FISH test is often considered one of the best.

Yes it is possible to herx quickly after Babesia meds and the herxes can be quite severe IMO.

If in doubt trial some other meds like artemisinin and Byron Whites A bab and see if you react.

Given the info you have provided in this post I would say there is a strong possibility Babesia is heavily involved.

Doesn't mean you should rule out Bart and other possibilities but when there are hooves on the plains think cattle not zebra - symptoms and positive tests should be confirmatory.

Remember also that Babesia meds are different from Lyme and Bart meds - they need to act against protozoa not bacteria and are often a different class of drug, so stalled response on antibiotics wouldn't be surprising in this instance.

Summer3 is a font of knowledge on this kind of thing.

Hugh

Thanks everyone --I guess I'm going to push my doc on the testing again and meanwhile continue w/ the mepron.