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First appt wi LLMD

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Lyme Disease
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Posted 4/5/2013 2:33 AM (GMT 0)
It was a little overwhelming but very gratifying to have someone finally acknowledge how sick i am and how this illness has taken my life from me so quickly. I was clinically dx with lyme, bartonella and probably erclichia. I have to wait 3 weeks to get blood draw (best results "at a certian time of month) and then 4 weeks for results.

Who knows what will show on labs but I have a hard time feeling validTed with friends and family with only a clinical dx! I want them to see i am not lazy or weak but i really am a sick person! Has anyone else struggled with this?

The dr. Wants to wait for labs so she can see any clues to help specific treatment. I dont really want to wait but she has given me a huge pile of herbals and they do seem to be helping. When i have a good day i try not to think about the other shoe dropping so to say...hoping that the good will last.

I am really nervous a out starting any tx. Before the dr appt i started myself on a number of supplements and herbals and seemed to throw muself into a tailspin straight to bed and bad anxiety, burning in my spine and back of head. Could this have been a herx?

Sorry for the long post just so overwhelmed and i have more questions it seems.
Posted 4/5/2013 3:43 AM (GMT 0)
heather123,

I am very happy for you! Your journey to healing has now started! Just be sure to detox all of those nasty byproducts created from the kill-off of the microbes.

My daughter didn't have to deal so much with the issue of validation, as we, her parents understood. However we had to validate our daughter's illness with friends and family!

If any of your supplements/ herbals possess antimicrobial properties at all, then, yes, it is certainly possible that you are experiencing a herx.

As far as the feeling of being overwhelmed is concerned, I completely understand. We went through the same thing! Hang in there and be positive for the journey.

Don
Posted 4/5/2013 6:52 PM (GMT 0)
The one I noticed the big reaction to was the oregeno oil.
Posted 4/5/2013 8:22 PM (GMT 0)
When I started my first bout of doxy, weeks later I had sooo much pain in my spine and neck it was like it was migrating and then voila one day it went away :). I'm still early in treatment but outlook is very good!
Posted 4/5/2013 8:36 PM (GMT 0)
heather123- Yes oregano is a very powerful wide spectrum natural antibiotic, antifungal and antiparasitic from what I have read.

opugirl- It is so great to see that you are responding to treatment, and that you are so optimistic. I am cheering for you!

Don
Posted 4/7/2013 2:44 AM (GMT 0)
Heather,
My daughter has to deal with some of the problems with validation as well. She's moody and anxious and others don't seem to understand that lyme and co-infections tend to cause not only physical but psychological symptoms. It's sorta like they think the brain is just suspended over the body rather than attached! Anyway, it sounds like you're off to a good start because you're getting thorough testing. Brighter days are ahead.

Concernedmom
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