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OT?? Extreme fatigue 5 days now...EBV? Adrenal? Lyme?

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Posted 6/6/2013 4:22 PM (GMT 0)
I'm not sure if this is OT as with lyme we usually have these other health issues as well. 

Had been doing reasonably well with lyme.....5 days ago noticed much more fatigue...more bordering exhaustion.  Seems to be getting worse rather than better.  Prior had a couple days where anxiety/racing heart was up from too much on my plate, then subsided, leaving the exhaustion.  I can handle tired but this is "could just stay on the couch, too much energy to do anything" kind of fatigue, head full & spacy/buzzy, etc. 

In the past adrenal testing showed slight rise in am, pretty much flat-lined thereafter.....and at one point prior to lyme dx tested high titers for EBV (treated with UVB & recovered). 

Have cut way back on all supplements & even stopped my allergy shots due to funds being limited.  I also have mold illness to add to the mix but this feels more like adrenals or EBV type of fatigue.....not very functional.

I hope I'm ok with posting this, as it's kinda OT....just looking for words of wisdome/experience.  I really don't have funds to go back to the doctor (out of pocket)....thinking of going back on adrenal supplements.  Any ideas? 

Thank you....this has always been a wonderful group of people.  I am grateful for having you.  blush

Posted 6/6/2013 4:50 PM (GMT 0)
Hi there, I'm sorry you're going through this. We are in the same boat. My EBV is very high and my adrenals are off the hook all day. I have high cortisol levels from morning till night. My kinesiologist caught it. I started a supplement called DSF made by Nutriwest, starting it slow (1/2 tab a day and steadily increase to 3x a day). It was a good price too ($30). A few others on here have the same issues and have been helpful to me.

The high EBV as I have learned comes with the territory, we can't do the steroids to help with it because it will drive the Lyme crazy :(

Maybe a good supplement for your adrenals will help...especially with the crazy anxiety.

Sorry again...it will get better. I keep telling myself the same thing everyday and truly believe it.

Posted 6/6/2013 5:47 PM (GMT 0)
Thank you for sharing TheWryter :) Many yrs ago had EBV titers thru the roof....literally felt I was on my way out....this is feeling kinda like that. Keep thinking today I'll wake up more refreshed but after 5 days, I'm thinking I need to get a supplement (as you said). I will check out the DSF. Have been pretty functional (even having mold illness w/lyme & others)....difficult going back to non-functional. The high anxiety was for a few days & went away, leaving me with the exhaustion. I suffered anxiety/panic for 20 yrs way back (menopause seemed to be helpful in that going away, strangely enough). Thanks again & I hope you are getting relief & heading for recovery!!!!
Posted 6/6/2013 5:54 PM (GMT 0)
Hi Peggster! Thank you :) I have some very stubburn neuro symptoms but my brain is inflammed (literally) so I'm praying that as all of the crazy bacteria goes down with the help of my doctors so will the inflammation.

Sorry about you going back to non functional! Not cool!

Keep us posted, if the DSF doesn't work Deejavu and Trav gave me some recommedations as well for others. :)
Posted 6/6/2013 6:16 PM (GMT 0)
TheWryter.....sent you email message about which DSF & source....I'd love to hear your other recommendations to keep in mind as well. Completely understand neuro/brain symptoms.....so confused at times....always brain fogginess. Detox, detox, detox, right? Hope you feel better very soon :)
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