UPLIFTlNG progress / healing wanted PLEASE!!

Yes, I would love it if there was a thread below "new to lyme" that read "Success stories"!!

It sure would be a goal of mine to have a story there ;) Sometimes it's hard to keep the hope up but I know people get better, just have to keeping going, day by day!

Very happy day Opugirl!!!

This is from violets on feb 2 2013 -- inspiration for us all:


violets
Veteran Member

Date Joined May 2006
Total Posts : 781
Posted 2/8/2013 3:01 PM (GMT -6)

I remember when I was told the Lyme would come roaring back if I quit the antibiotics before I reached 2 years of treatment. At the time I finally figured out what I had, that was the standard belief, is that you needed 2 1/2 years of consistent antibiotics. I went with my gut instinct and stopped the consistent antibiotics after taking them for ~ 8 months.

It has now been over 5 years and I am doing just fine. I stopped antibiotics around 1/8/2007.

I know there are people on this forum that did the 2 1/2 years of antibiotics and the symptoms came back. So glad I didn't do that.

Back in 2006 when "I" figured out that I had Lyme or a Lyme Like Illness I was lucky enough to find a doctor who did a trial of antibiotics, even with the negative lyme test. Tetracycline. This after almost 1 year of severe illness with no treatment what so ever. I took the tetra the day he prescribed it, and BARELY made it home from work. The " " hit the fan. I wanted to crawl out of my skin.

I am well now, I am back running almost daily for over ~5 years. I don't have joint issues, arthritis, no brain fog. I no longer worry about if "it" will come roaring back. Is it gone? Probably not. Just like chickenpox is never truly gone ...your body has to take the upper hand and put it back into Pandoras box. I think that is what I have done with my personal regime and I know others can too. I am a firm believer it has to be your body that eventually takes the upper hand and puts the disease in a special place with all the other "stuff" that one has collected over the years.

I don't know for sure what will happen with this disease in general, BUT one thing I do know, is that it is containable. One can live a happy life, physically and mentally after one has had it. Once you get treatment of some type of antibiotic it is my belief it changes somehow. I used herbs after my antibiotics. I truly feel that I could have died without treatment in the beginning, but now I can tell that my disease if it is still there is different. I am confident I will not die from the disease itself. And from my research I have never read anywhere where "LYME" itself kills after proper treatment. Drugs such as those used by many to suppress symptoms, yes I believe drugs can kill, and people blame it on the Lyme. Not just the antibiotics (which are a necessary evil in the beginning) but also the drugs used to suppress symptoms, help with anxiety, depression or sleep. This disease does not want to kill it's host. And no everyone, I am not knocking all drugs if done safely and kept in check...each case is individual.

Why do I call it Lyme OR Lyme Like Illness because it just doesn't make sense that something that is apparently epidemic...that all the people that appear affected by this disease could have ALL been bitten by a tick. Unless those ticks now make house calls. Everyone I talk to (and I have talked to lots because I am researching in a sense) knows of at least one person (friend, family member etc) that believes they have Lyme. It is truly epidemic!

Something else is going on. Either another way to get Lyme, such as misquitos/blackflies and thus maybe a different strain OR a disease that mimics Lyme. And why do I bother saying this...because maybe it is not as much of a death sentence as we think.

What I want to reinforce with you is that the most IMPORTANT thing is to not kill yourself trying to kill the Lyme or Lyme Like Illness. I guess I am living proof that it is OK to think outside the box and think about what is right for you individually. You are the one that suffers the consequences of your disease state and thus you should have the biggest say in how you treat it.

You can GET through this! One of the things I hated most when I was sick was people trying to rain on other people's parades. If I posted a positive statement it was guaranteed that someone would come back and say "there is no cure", "you'll never get rid of it", "it will come back" and the one someone told me when I posted I was stopping antibiotics (because they were literally killing my gut) was "the lyme will come roaring back"!.

I do believe without a doubt that there will be a cure or at the least something that allows a person to live well the rest of their life even if they still have the "bug" in their bodies.

So if I can get better you can too. I truly believe that the people that will be OK are the ones that use the least invasive methods to stay OK until the cure can be found. Because it will happen! The CDC is a little slow on the uptake on this one, but eventually they will get it, and have to eat a little crow.

Hang in there! If you think you can't get well you will not. Today is the first day of the rest of your life...you can't go back and start over, but you can start from here and have a different ending!!!!

Think positive AND keep up those herbs! You could do the herbs, then do a round of antibiotics as per your MD then some more herbs...take a break...hit it again. Think outside the box!
Post Edited (violets) : 2/9/2013 7:14:49 AM (GMT-7)

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