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Posted 7/17/2013 1:35 AM (GMT 0)
I have re-occuring bouts of fatigue and can never relate them to anything in particular.  Can they be a herx?  Or part of a cycle?

When it gets bad I can't even bring myself to stand up and walk across the room.  It feels like it takes too much energy to breath.

 Does anyone experience it like this?  What kind of tests can I ask for about my adrenals?  My LLND already extensively tested my thyroid (beyond the standard test that regular dr.s do) and it was fine.

I've just started on zithro, very low dose.  Also boluoke, nattokanise, lactoferrin and NAC for "blood brain barrier".  I am having a hard time getting up on any anti-biotic.  My body is just too sensitive and lite.

Yesterday I felt good and was thinking I had more energy that usual, then bam today I'm like a slug on the floor again. 

Guess you never can tell!  I sure hope I have some energy tomorrow for my daughter's 9th birthday party.  It's times like this that it really gets to me ;(

Posted 7/17/2013 2:35 AM (GMT 0)
Heather, I suffer from bouts of extreme fatigue as well.  For me, they appear to come in cycles, at least the very bad ones.  They are so bad sometimes that even the act of breathing feels like it takes your energy away.  I have also found that if I go to bed late, the next day for sure it will be a bad day for me, even if I stay in bed late to make up the total hours of sleep. 

My bouts of fatigue have minimized in intensity since I started taking a vitamin B complex.  I am also spending more time in the sun because I am vitamin D deficient.  Vitamin B12 seems to be key in not feeling so tired and both the sun and the vitamin B complex have it so maybe that is why I feel better.

Posted 7/17/2013 10:43 PM (GMT 0)
For testing your adrenals, you need to request the only test that will actually give you results you can trust - 24 hour saliva test. Although I don't know if exhaustion from poorly functioning adrenals will come in bouts.

The best place I've found to help understand about adrenal and thyroid function, tests and how to recover is :www.stopthethyroidmadness.com/

As has been said, B vitamins are needed as well. A good quality B-12 is a necessity for sure, but be sure it's the methyl type and not the cyano type like most are. The methyl type of B-12 is readily available for the body to use, where as the cyano type has to be converted to the methyl type first.
Posted 7/18/2013 2:06 PM (GMT 0)
Yes, I agree with Traveler (she's a mod, so I have to smilewinkgrin lol)

Be sure to take B12 injections, they are a real help, not only with fatigue, but also with neurological symptoms.

The fatigue comes mostly, never goes, somtimes becomes less, but I can certainly feel 'waves' of more intense fatigue. the kind that prevents me from moving an arm or a leg when I'm in the sofa.

Be sure you get enough rest: if the body yells 'rest', please listen to it, don't push it, you'll pay the price. I'm not trying to scare you, just explaining what happened to me.

Marie

Posted 7/19/2013 12:44 PM (GMT 0)
Marie!! No you don't have to agree with me!! LOL!! smilewinkgrin I'll just haunt you if you don't!! LOL!!!

Seriously - anyone can respectfully disagree with anyone on this forum - even the Mods- on everything but the rules of the forum. The key is "respectfully" though and that shouldn't be only with the Mods, respect should be given to all that come here.


As Marie was saying though, rest is key to healing. The body heals the best when we are sleeping, but for those with insomnia, we must choose to still rest as much as possible. Boring? Sure!! But we need to rest to heal. Some LLMD's require - or at least used to - that their patients take daily naps!!! :-)
Posted 7/19/2013 5:00 PM (GMT 0)
How many milligrams of B12 does one need on a daily basis?

I, too, am dealing with debilitating fatigue and breathing problems.  Can anyone chime in on how long it takes (for you) for these symptoms to resolve?  Being treated for Babesia.

Patty

Posted 7/19/2013 9:51 PM (GMT 0)
Well, I can tell you what I did. I took 1 mg of Methylcolbalamin (methyl type of B-12) am and then again pm. It took a while for me to feel much difference, but I was also struggling to get my thyroid and adrenals supported properly - which is key to having some energy as well.
Posted 7/19/2013 11:25 PM (GMT 0)
Thanks, Traveler.  I am taking a B complex that contains 100 mcg of B12.  I have to look into this, for sure.

Patty

Posted 7/20/2013 12:28 AM (GMT 0)
My LLND has me doing a 24 hour Urine test for my adrenals and hormonal function. She said that it gives her a better overall picture then the saliva test. I'm going to do it on Sunday as I have been eating some flax and you have to be off of flax a week before you can take the test.

I'm sorry to hear about the fatigue, I can certainly relate. For me it's at it's worst right before my period.
Posted 7/20/2013 1:07 PM (GMT 0)
Hi Love health,
The problem with using a 24 hour urine test for adrenals is it will only tell the doc what your average cortisol output is for that day. You really need to know if you are having spikes (highs and lows) in your cortisol output - like many of us do.

If you research this, you will see that you really need to have a 24 hour saliva test to determine if your adrenals are functioning properly or if they need to be supported.

I based most of my information from this site:
www.stopthethyroidmadness.com/adrenal-info/
Posted 7/21/2013 5:22 AM (GMT 0)
100mcg is nowhere near enough B12 for those with Lyme. Lyme eats B12 like candy, and then our body cannot do what it needs to neurologically. Nor can it make enough red blood cells without sufficient B12. And B12 is also needed for detoxing (methylation relies on B12, and methylation creates glutathione, which helps us detox).

And I agree the shots are the best way to get B12, as most B12 is poorly absorbed orally or sublingually.
Posted 7/21/2013 6:20 AM (GMT 0)
I also wonder if (and the B-12 info seems to support this) you might be low on iron which carries oxygen in the bloodstream (simplified version I admit). And I personally melt into a puddle if I have low blood sugar.

 Iron and calcium block each other so eating them at dif. times helps absorbtion. (Think Kosher!) Vitamin C helps with absorbing either.

 And, just a pleasant extra - rosemary is a natural stimulant. Crushing some in your hands can be a bit of a pick up. If you don't have to travel far to get it of course!

Energetic music might help a bit psychologically - it seems to trigger my adrenaline when it's a song I've always loved to dance to. I don't know if that can overcome or get around an unhealthy system but it would be a more pleasant experiment than using fear to trigger adrenaline!

 

Posted 7/21/2013 5:41 PM (GMT 0)
Iron isn't something you want to take when fighting pathogens. You would be much safer taking lactoferrin to build iron.

I take 5000mcg vit b12 in the form of methylcobalamin per day and it makes a big difference. Ubiquinol and L-carnitine also help my energy tremendously. Vit b5 is *imperative* to the adrenals.
http://www.coryholly.com/articles/article.cfm?id=172
Posted 7/21/2013 7:17 PM (GMT 0)
I really appreciate all the info. I am going to order the methyl-type B12, pantothenic acid (B5) and Lactoferrin. Any special sites that you guys would recommend to order these supplements?

Patty
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