Might I have Lyme?

Hi everyone,

I'm new to the world of Lyme and hope this community might be able to help.

I've been told that my Lyme results are 'indeterminate' and I'm wondering if anyone can tell me if I should keep asking more questions?

I am not aware of having a tick bite but I have had many of the symptoms listed for over a year. my lab results are:
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Lyme, Western Blot, serum - all negative

lyme Ab Igm by WB - Igm P23 - present Abnormal
(Igm 41 and 39 negative)

Lyme Igm WB interp. negative

Lyme Ab/Western Blot Reflex
Lyme IgG/IgM ab - 1.24 High

Lyme Ab Interp., EIA - Positive Abnormal

Mycoplasma Pneu IgG/Igm Abs
M Pneumoniae IgG Abs 2244 High
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I've started Doxycycline 100mg twice a day for the mycoplasma and told it will deal with the Lyme too. However I'd really like to know if I do have Lyme. Do you think these results might indicate Lyme?

Any advice or feedback would be great.
Thanks very much.

Hi Springsjean,

Thank you so much for your reply.

My PCP told me that these results are negative and an integrative team (not Ilads but very good) I am working with for my 17 year old daughter (who definitely has Lyme, RMSF, WA1, Mycoplasma) say my results are "indeterminate".

I have had symptoms for years but have only connected them to Lyme because I have been researching it on behalf of my daughter.

Also, I had a baby three years ago and breast cancer last year so I have blamed the symptoms on these two fairly demanding life events!

The main symptoms that make me think I might have Lyme are:

last year I had severe neck and back pain for 11 months (with intermittent tingling/pain down both arms and legs) to the extent that I had to pull myself out of bed by using the sheet. (this symptom got so much better when I went on a raw food course that I have kept up with the wheatgrass, sprouts etc)

insomnia - I wake at 2.30-3pm every night

mental fog (only became an issue after the reconstruction operation in December 2012) I can't find words, I forgot my address the other day, I can't process numbers and can't remember what I have just read - all unusual for me.

permanent facial/jaw pain on both sides.

permanent frontal/temporal Headaches - became much worse after the December Op.

dizzy eyes - I have moments when I feel lightheaded and can't read and yet the optometrist says my eyes have not changed.

total exhaustion - all the time (again this could be explained by having a 3 year old but I don't think that's the real cause)

anti-thyroid antibodies with no obvious cause

muscle weakness - especially upper body and legs

feel cold all the time
total alcohol intolerance

Can't think of anymore at the moment but I hope this gives a bit of a picture that some of you might recognise.

Sorry, this has become a really long response but I'm desperate to know if my concerns are valid.

Thanks very much for your reply LoveHealth. I did read some introductory pages last night but can't remember which ones!!

I will go back in and re-read today.

thanks again

Dear MarielS
Thank you for your reply.

I hope you have found a doctor you trust now. Good luck with your journey to health.