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Posted 9/11/2013 12:44 AM (GMT 0)
I am trying to find a Dr. on Long Island to help my daughter, she is 25, tested positive for Lyme 3 years ago. Saw a Dr. in Manhattan, but the treatment she suggested did not help. She has a Lyme Dr. in Conn. Unfortunately it is difficult for her to travel that far at times and he does not take insurance. Is there anyone on Long Island that will be able to help her. She is beyond frustrated and at the point where she is just going to do nothing and see what happens. I am sure you would all agree that this is a terrible idea. Her biggest problems at this time are extreme fatigue, brain fog, memory problems and occasional swollen lymph nodes. Any suggestions will be greatly appreciated. Thank you!
Posted 9/11/2013 1:04 AM (GMT 0)
Hi wright and welcome!

I'm sorry but I don't know any LLMDs on Long Island.  People that I do know that live on Long Island and are sick travel to Manhattan or upstate NY to see doctors.   Hopefully someone will come along who can help you.  I'm truly sorry that your daughter is sick.  

Denise

Posted 9/11/2013 1:39 AM (GMT 0)
Thanks Denise, hopefully we can find someone without having to travel too far, and yes, she also needs to help herself. Will look into Dr. Jernigan's protocol. So happy to hear that you are well and are still helping others, wonderful! My daughter is actually working on getting her nursing degree,( a class or two at a time since that is all her body and mind can handle right now) so that once she is well she can help others.

Thanks again,
wright
Posted 9/11/2013 10:58 AM (GMT 0)
Wright;

I don;t think there is anyone decent on LI for lyme. I live on LI also and another member of this forum that I know is on LI and we go to a dr in Conn also. What part of Conn is he in and do you like him?
Posted 9/11/2013 11:59 AM (GMT 0)
Her Dr. is in Bridgeport. Yes, we do like him, he is very lyme literate and kind. The only reason we are looking for someone closer to home is because taking the time to actually drive there and back is difficult, my daughter is trying with all she has to work part time and go to school part time which leaves little time for travel. Any "down time" she has is usually spent sleeping. There is also the money issue, he does not take any insurance. Every office visit is a few hundred dollars and then all the medications/supplements add to the expense. To be totally honest, if his office was closer we would most likely continue to see him, I would definitely recommend him to someone willing to make the trip. If you are interested in contacting him feel free to email me and I will send his contact information. It still boggles my mind that there are no Dr's on Long Island who can/will help her, frustrating. If there is anything I can to to help please let me know!
Posted 9/13/2013 6:03 AM (GMT 0)
I'm brand new to this site--I'm actually looking for someone in NYC who might do dark field microscopy. However, I'm in several Lyme groups on Facebook and someone recently sent me the name of a doctor who DOES take insurance and is located, I believe, in Long Island. He is not a true LLMD, but the person who sent me the information told me that he's very open minded and is basically following the protocols of some of the LLMDs. Am I allowed to post the name here? I have to sign on to FB to pull it up.

Sheila
Posted 9/13/2013 12:59 PM (GMT 0)
Sheila, there are two on LI that take insurance but I've been to both and neither know how to treat properly IMO.
I liked Dr. S in Bridgeport better than either of them.

You can post just the first initial of the last name so the best thing to do is email if the person has it available.

The two I know are Dr. R and Dr. I so if it's not either then I'd be curious to have the info.

Dark field microscopy sounds interesting. If you find someone that knows their stuff please let me know. A friend of mine did the Fry labs blood smear years ago and said he saw both Bart and Babs in his blood so that could be a possibility.
Posted 9/13/2013 2:06 PM (GMT 0)
Sheila;
I am interested as well to find about the the Lyme Dr on LI who takes the insurance. Toddpaul and i have both been to the dr in Ct. We both like him but have our issues with him. As far the the dark field blood test....i have done that also. There is a nurse on LI that does that. I would really have to dig deep for her name. It was many years ago. She said she saw Candida in my blood. She said nothing about spirochetes at that time. I believe the cost was about $150. If anybody is interested, I will try to find her name in my archives.
Posted 9/13/2013 2:34 PM (GMT 0)
Wreck, doing a Google search the first link that pops up is a thread with Denise (deejavu) posting she saw a nurse named Ellen. I wonder if that's the same person you saw.

http://www.healthboards.com/boards/lyme-disease/347891-anyone-familiar-live-blood-analysis-using-dark-field-microscope.html

 

Posted 9/13/2013 10:18 PM (GMT 0)
Todd:
Yes. That is her. Is the darkfield suppose to detect lyme though? I am not sure if Ellen was Lyme savvy or not. When I went to her I did not think of Lyme. I thought my problem was either CFS or Systemic Candida or some kind of a virus. I was just looking for answers. It was later on that Lyme became mentioned.
Posted 9/16/2013 6:31 PM (GMT 0)
Aphysicalwreck and/or Deejavu,

I would LOVE the name of the nurse or anyone else you know who uses a dark field microscope. I already know I have Lyme, but I'm wondering how many spirochetes they might see in my blood. Also, I watched a YouTube video of a blood smear on a dark field microscope, they were able to see a biofilm and that a red blood cell was infected with something. Would be great if someone could see babs or bart, but I don't know. Maybe Fry labs is an option? I don't know anything about them, except that I've seen them mentioned on FB as well.

As for the doctor on Long Island, yes, it's Dr. R. Sorry, guys, that I don't have someone new for you. Have you tried any of the NYC doctors? I have an upcoming appt with Dr. Zhang who--I'm sure you know--is an herbalist. I'm also thinking about seeing Dr. R on the UWS. It's just so fricken expensive!
Posted 9/17/2013 12:04 AM (GMT 0)
Hi all,

The nurse Ellen that I saw was about 14 years ago and she knew nothing about lyme.   I searched for her 14 years ago (I do not remember her last name) because I knew she used dark field microscopy and at the time I was at the end of my rope searching for a diagnosis.   I did much research and from my research I knew I had lyme and ehrlichia but I needed medical proof.   I'm glad she saw spirochetes because that lead me from one doctor to another and I finally was tested by IgeneX.  That was enough proof for me.  I was thrilled to finally have a diagnosis because then I concentrated on getting well which I did.

The rest is history on how I became totally well.  Again, I don't understand why someone who is already diagnosed with lyme would want to see what is going on in their blood. 

From my understanding a person never gets rid of spirochetes 100%, it's not scientifically possible.  Spirochetes hide in bone, joints, eyes, the brain, etc. not to mention how they change shapes.   That's why I used Dr. Jernigan's protocol because his view is to look at  the body, mind and soul.   If something is out of whack (i.e., too much stress, bad diet, going through an emotional trauma, etc.) then that person is not going to get well.    Everything must be addressed, not just looking at one's blood.

Thus, once every aspect of your life is addressed, one learns how to detox, eat the right foods, and your body becomes strong enough where it naturally kills any lyme bacteria.   The human body is smarter than we think it is.

Denise

Posted 9/17/2013 1:17 AM (GMT 0)
Dr. M in NYC, There are no good LLD in Long Island, I learned the hard way!

** sorry, I had to edit this. We are unable to post Drs. names here. Please make sure your emails are activated in your profile (it takes 1 second, honest) and that way we can make referrals and protect our doctors!**

Post Edited By Moderator (opugirl) : 9/17/2013 1:13:25 PM (GMT-6)

Posted 9/17/2013 4:55 PM (GMT 0)
Denise,

I'm interested in Dark Field Microscopy because I want to know if my red blood cells are infected with either Babs or Bart and I also want to know what else they see. I've only been tested for SOME of the strains of co-infections through Stonybrook and I come back negative, yet I KNOW something more is going on. If I can see that my red blood cells are infected with something, then I will hopefully be able to up my efforts of getting the testing I want. It takes forever to get in with the LLMDs, so I'm thinking that if I have enough "proof" that something is going on, I might be able to get a non-LLMD to test me. Anyway, it doesn't sound like Ellen is a good bet, since it was 14 years ago and we don't have a last name.

I agree with what you're saying about addressing the whole body, but I still want to know what my coinfections are.

:)

Sheila
Posted 9/18/2013 2:19 AM (GMT 0)
I will try to find her name if I saved her info. I will let you guys know. I am not sure if i have it anymore.
Posted 9/18/2013 11:01 AM (GMT 0)
Hi Sheila and everyone else!

Sheila, do you have Babesia and/or Bartonella symptoms?  That would be the first thing I would be considering.  When I was looking for a diagnosis I researched my symptoms on the internet and that's how I came up with lyme and ehrlichia.   Have you looked at the Sticky Thread on top called "New to Lyme? Start Here!" as that has the symptom list. 

Anyway, I'm not sure if Dark Field Microscopy can actually detect coinfections, perhaps some of the more intelligent members here could chime in.  I really don't know much about Dark Field Microscopy except that I saw my spirochetes which fascinated me. 

I did find Ellen!  I first knew her when I went to this Alternative Medicine Clinic on Long Island starting in 1996 or 1997 because I was so sick and was not diagnosed with lyme yet.  I went to Serafina Corsello's center (she had 2 centers years ago, one in NYC and one on Long Island).  Dr. Corsello (I read she passed away) treated mostly cancer patients.  It was really expensive yet I felt better after taking her recommended supplements (spirulina, a green drink, and some other natural ones that I don't remember the names of) plus every Saturday I would get hooked up to an IV anti-viral pack and Vitamin C.    Strange that Dr. Corsella never suspected or found the lyme bacteria with all the blood work I had done there.

Anyway, Ellen was a nurse who worked for Dr. Corsello and every Saturday I would see Ellen who used her microscope to look at my blood (guess she never saw the spirochetes during that time so it was a hit or miss type of thing).

Her name is Ellen J. Kamhi, Ph.D., R.N. and she has a website:

http://naturalnurse.com/ellenkamhi

Also wrote books:

http://www.amazon.com/Ellen-Kamhi/e/B001H6S79M/ref=ntt_athr_dp_pel_pop_1/191-5876210-4575366

Again, I don't believe Ellen is lyme literate though who knows after almost 14 years?  Maybe she has learned more since then.  I have not been in contact with her after I saw another doctor who started treating me for lyme after my IgeneX results came back.

I hope this helps!

Denise

Posted 9/19/2013 12:42 AM (GMT 0)
Dee:
That is her. I am glad you posted it. I was not sure if I had her name in all my paper work anymore or not. She never said anything to me about spirochetes when I saw her, but that was before I suspected lyme disease. Maybe she is more savvy to lyme now then she was then. It is worth a try.
Posted 9/19/2013 11:09 AM (GMT 0)
You are welcome!  I typed in the search engine "Serafina Corsello Ellen" and that's how I found her. 

Yes, contact her as you have nothing to lose.  I would contact her just to say hello but because it's been so many years I doubt she would remember me but one never knows.   I remember Ellen being one very smart lady so I would be surprised if she didn't know about lyme by now especially living on Long Island.   But then again, I went to so many doctors on Long Island and no one knew about lyme and that was 1995 to year 2000.  I couldn't believe it! 

Come to think of it, I never did let her know that my spirochetes were lyme spirochetes..  Maybe I will contact her, hey, what do I have to lose?  It may bring more lyme awareness...

Denise

Posted 9/22/2013 4:05 AM (GMT 0)
Denise,

Thank you so much for the links and the info! I have not read the sticky note you suggested--I'll take a look at it. I am in some Facebook Lyme groups and some of the people there have said they think I may have babesia or bartonella based on some of my symptoms (painful kidneys and bladder with some bleeding [I tested negative for a UTI]). I'll see what I can find out. I'm doing a bit better than I was--I bought a Rife machine. I'm not sure if that's what's helping me or if it's something else.

For those of you in NYC, are you aware there's a Lyme Support Group that meets twice a month? I'm going to try to go to my first meeting this week.
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