HealingWell
Search Close Search
☰

need advice.

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/15/2013 2:45 PM (GMT 0)
So I haven't posted in a while, and i wanted to give a status update.
First of All
My doctor is terrible. While I have managed to convince him to prescribe me 300 mg twice per day, he refuses to talk to me about the subject or about how I am feeling. I don't even know if what I am taking is right or not and how long I should continue.

I NEED help figuring out what I need to take along with doxy 300 mgs bid. I need to know how to detox my liver and I need to know if what I am feeling is normal and if it is indication that it is working.

He originally prescribed me 100 mg twice per day. For a while there I didn't even think I was sick because of how mild the symptoms were. this continued for a while, until my second set of symptoms set in. i began to get migraines and neck pains that would last all day.

I begged the doctor to up my dosage to 300 twice per day and he begrudgingly did.

about that time I started taking the 300 mg twice per day I was in so much pain.
Constant continual migraines, for SEVERAL days.
Horrible neck pain, it felt as if my head was being crushed.
nerve pain in my arms.
Depression.
Brain fog. (I seriously couldn't think. "what did you say?" huh?)
It got so bad I would come home crying from work. I work at a pharmacy and the brain fog was making me feel crazy and making me afraid.

The only thing that seemed to help the migraines was a niacin flush. I don't know why it made me feel better, just that it did.

Yesterday and today, I lowered my doxy to 400 mg a day. The headaches subsided and I feel normal. I feel great, as if I'm almost not sick.

Im afraid, however, that this period of feeling good, is just the calm before the storm.

What is this waxing and waning of symptoms? Should I continue with the doxy? Has anyone had any luck with flagyl? and at what dose?
is the crazy headache migraines from the doxy? or herx? If i continue at 300 bid, will the headaches ease up? Or is this a permanent thing?

I am taking low doses of Cat's Claw extract, Eleutherococcus, Andrographis and Niacin.


I want to get a good probotic, and a good detox. I take Epson salt baths and use a dry skin brush.

Any advice or encouragement would be great.
Posted 9/15/2013 3:07 PM (GMT 0)
Hi Infectious,
Are you seeing a LLMD? They should be a lot more helpful that what you describe.

It sounds like you need to detox more, or you have a gene mutation that prevents you from detoxing well. That gene mutation is known as MTHFR gene. There is more and more information being made available about this and what to do about it all the time lately.

Yes, please be sure to get on some good probiotics. Personally, I prefer to use Kefir as it's got a ton of more good bacteria in it than than stuff contained in a pill. Should you choose to use the other form of probiotics though, please be sure that it's one that says it needs to be refrigerated. That's one way to know that it's high potency and that they are active.

Are you taking the detox baths daily? If it's hard to fit them in, add in the epsom salt/peroxide foot soaks as well. Drinking plenty of water (64 ounces a day) will aid in your organs being able to flush those toxins, and adding lemon juice to your water if you aren't having issues with muscle cramps, spasms, or twitches will help even more.

Be sure to eat a healthy diet, including organics whenever possible.

And remember, although you likely needed to lower your dose of Doxy in order to deal with your herxing, it's still within the levels needed to kill the bacteria.

The only other thing that could be happening that I can think of is that you won't be able to use abx to heal. It's a possibility that many face. There are some very good, effective herbal protocols out there if you should choose to go with one - and that doesn't count using Homeopathy to heal.
Posted 9/15/2013 3:19 PM (GMT 0)
Mhmm, Traveler, I am currently in search of a LLMD, but I am trying to work with my MD as best I can until I find a LLMD. The LLMD that I am interested in, doesn't accept new patients until next month, the other one in this area, has a lot of bad reviews.

I really would like to get tested for co infections.

edit: I love Kefir, and I never thought about using it as a probiotic. good idea.

I try to take a detox bath every day however sometimes it doesn't happen. I need more hydrogen peroxide.

I think i will try the lemon water, thanks

-Infectious

Post Edited (Infectious) : 9/15/2013 9:23:21 AM (GMT-6)

Posted 9/15/2013 3:23 PM (GMT 0)
Just remember that the testing for any of these tick-borne infections is faulty at best. It's much more of a "sure bet" to go by symptoms like the most knowledgeable LLMD's do.

You may find it worthwhile to make an appt with the one LLMD and do what you can to get through until then. Whatever you choose though, be sure to learn all you can and let us know how you are doing!!
Posted 9/15/2013 3:31 PM (GMT 0)
Kombucha is another good product with probiotics and enzymes. I think Synergy is the brand name of the one I get. Some day I'll make my own.

Also, make sure kefir or yogurt have live bacteria since some don't.
Posted 9/15/2013 3:34 PM (GMT 0)
Oh gosh! I always forget about Kombucha! Ugh! So sorry!!

Kefir without live bacteria??? What is this world coming to??? Seriously, that just doesn't make sense!!!
Posted 9/15/2013 4:40 PM (GMT 0)
Infectious,

Sorry you're feeling so crummy. I echo what others have said about detoxing. I've been doing the baths daily (my ND recommends baking soda over peroxide, so if you have that on hand give it a try) and drinking lemon water. If you get bored with that, try making your own ginger ale with seltzer, fresh ginger, lemon, and a touch of honey. I've also drastically cut back on carbs, and upped my intake of leafy greens and garlic.

Just want to say, your terrible headaches and neck pain sound a lot like my symptoms. If you can get a referral to a neurologist from your MD, you should be assessed for Lyme meningitis.

I too want to up my doxy dosage but simply can't get a doc to give me more than 200/day.
✚ New Topic ✚ Reply