After 1 year still very sick

My story for the new people is that I was bit by a mosquito last year, got what I thought was a flu, four days later couldn't use my legs without a cane. Long story short I was treated with antibiotics after a positive Lyme test, since then every test has been neg. The seizures started when the Lyme disease started.

The last few months I have been really sick, the last month in bed, I am not giving up, I talk to people that do get better, and I know it's a long slow process.

This website and the people on it has helped me so much , has helped me though some really bad days. I just wanted to say no matter how bad it gets don't give up.

I am going to keep searching to I find something that works.

justme

Thank You for your motivational comments Justme4508. It makes me want to try harder knowing that I am not alone and have you guys and gals on this forum as my friends!

I had to stop seeing my llmd, couldn't afford it right now, but i am going to see a neuro doc on monday, I am fighting for disability so I can get the card , we have one doctor in Illinois here that is a llmd, and takes the card.

In the meant time, the hospital put me on seizures medication, it's not stopping the seizures, but I am taking them until I see the next doctor. I still average over 5 seizures a week, because of this disease.

With the disability, I have researched what to do , before I filled anything out. I did not use Lyme disease as a reason, I used symptoms, like seizures, pain, anxiety, burning sensations, the list goes on , and on. I also hired a lawyer the first time around, I was told it could take years to get disability, and i had a better chance with a lawyer , I believe it is working, because I already have a adjucator on my case, sending me information weekly,

I have worked my whole life, so I am not sure if my history has something to do with it or not, but it's moving faster along then other people in my state. I am afraid of what these seizures are doing to my brain.

Today I was able to get down the stairs, slow , and steady but I made it, and boy are my dogs happy to see me. They have been taking care of the last few days by my husband and kids, but they are my babies, and they know it.

I just wanted to say no matter how bad it gets, don't give up, because it's going to get bad with Lyme. The pain is intense, the disease tries to take our ability to walk, i am now on a cane , and walker, looking into a wheelchair, but as i tell myself this is a temporary set back. I am a fighter, and I am going to beat this thing.

I really look forward to a good day, maybe one day , I can go for a walk again, or go to a thrift store , and look around, something I haven't gotten to do in a very long time. Just simple things, that most people that doesn't have Lyme wouldn't understand why is so important to do these things.

We are fighters, a weak person, could not handle this disease, so keep fighting.

justme

you are absolutely beautiful and inspiring to me. I just finished getting off my knees from having a huge crying fit. something told me to log on to the form and I read your post. I've been started praying even harder to guide for your total complete healing and restoration. and I know I shouldn't ask him questions but I ask I why is it that all the good people always get sick.

I can't wait for the day you're able to go to the thrift shops again too I may have to visit Illinois just to take that trip with you. Here I am complaining about my 10 symptoms its all daunting but like you said we can't give up.

I just finished talking to a good friend of mine who is still in his 20's it has battled thyroid cancer twice. He has the healthiest lifestyle in the universe and was diagnosed for the first time while he was in college. He couldn't run he couldn't sing couldn't do the things he used to love to do. Now he's singing again for a chorus and he's running multiple marathons a year. I look to people like him and numerous people on this forum and I know that we will be healed in time. I wish I had a date to tell you when you would be totally healed trust me it just cuts me so deep inside to see how sick you are.

Know that I love you and I will continue to pray for you every single day until you are totally healed.

Hey justme I took the doxy for a couple of months but it did not control the neuro symptoms. The only medication that has helped has been the omnicef (third generation cephalasporin). I was in a downward spiral with vision problems, dizziness, stiff neck and chronic pain. I dont know if this could help you but maybe you can ask. high doses of penicillin helped me a lot too.

I have been told that what I had was post lyme syndrome. I disagree and I think that if chronic lyme is not treated it will have devastating effects on the central nervous system and become much worse. Sending up some prayers for you and I am hoping the neuro doc will help you. Hugs.