Posted 10/17/2013 8:45 PM (GMT 0)
Hello, i don’t have a doctor i am in contact with so i would appreciate any help and advice. I am writing down my history with lyme here. For summary; i had lyme, for 1 year it was gone, but it came back, and i am using antibiotics again for several months.
If anyone know anything and give advice about the things i wrote down here, i would be really happy. Thanks!
I was biten by 2 ticks from my head at July 2011.
2 Days later, i felt bad and sick. I stayed at bad 2 days and i was weak. My biggest trouble was i always felt movements in my bowels (mostly at night, in sleep, i couldn’t sleep because of these)(there was no diarrhea).
13 Days later i decide to go hospital and in emergancy room the doctor said “you are looking very good, i can’t do blood test for lyme disease, i will give 2 doxy pills and thats enough”. These 2 pills made me a little bit well, but not %100.
5 Days later, i am going another doctor, because again i felt sick. Blood tests said i already pass lyme disease but for just in case doctor suggest me to use Doxycycline for 3 weeks.
5 Days later i start taking doxy. At the same time i saw at the internet that same things had happened to persons with lyme. My symptoms were joint pain, sudden urge to go (little)toilet, cant sleep, tingle sensation and the worst of all the black lines i saw. I talked with doctor again, but he said im not lyme again : ) .
3 weeks later, i think i was lyme and doctors were wrong so im going to a nurse and she says im lyme and suggests to continue Doxycycline with 200+200mg. At blood test other things were negative while lyme was positive.
Few days later, i moved to another places, and when i cry i saw inflammation of the eye leak. After that my overall health was good, only one sempthom was there and that was joint paint for one month. But problems like “cant sleep, forgetfullness, fatigue” didn’t gone. They were always there.
6 months later (January 2012), I felt better when i began different antibiotics. I began with Telithromycin (one box), then i used Klamaxin (500x2), one week later i add cefaks (500x2). Then i used Hydroxychloroquine (Plaquenil) but didn’t use it so much because my eye was already sensetive.
1 month later (February), I used these; zirtomax(250+250), amoksisilin(1000x2), Amantadin(200mg).
20 days later, I used Flagyl (250 mg started but end up using 1500mg) ve 2500mg amoksisilin
2-3 weeks later, I used 250 mg azro.
1 week later I add fasigyn.
10 Days (23 march) later 500 mg.fasigyn and cefak
Between 4-12 April 2012, tinidazol or FASiGYN (1500) and klaritromisin(1000)
Between 12-15 April 2012, klacid
Then i stopped using antibiotics and start to use herbal treatment. Portulaca, resveratrol, andrographis.
For 1 year i only felt a little pain behind of my right kneecap. Also i was easly forget things. Also i saw black lines regularly. And i am thinking these are permenant.
1 year later (April 2013), when we lost a person in our family, for 3 days because of the sadness , I was sleepness, and couldn’t eat much. In the end lyme came back.
3 Days later I felt same way when i my lyme disease started. Bowl movements were came at night again.
1 week later i start using antibiotics again because i felt tingling, bad disturbive feeling in my face and left eye, forgetfullness). I used Doxycycline 200x2 10 days and my bowel movements were over. Than i used cefaks (500x2) and add Makrol (500x2).
1 month later I used metronidazol (FLAGYL), later continued with Cefaks and Ketek. (3 weeks cefaks and ketek(Telithromyci), 1 week flagyl).
I made ECP test and results were high naturally 0 to 11 but mine was 15. 1 year ago my CD 57 test were high.
When i use Plaquenil (hydroxychloroquine), my right kneecap ache so much. So my Doctor said i might have babesia. I am using artemisinin and bactrim from July up until now. At the same time, i used ketek, cefaks, macrol for 4 days and i didnt use and take a break for 3 days. Now i use doxy which i began at october.
When i used Artemisinin i had strong headache one day, and i suspect from herx. 15-20 days later my head was better than past.
But last 2 weeks i am feeling tingling a little bit. So i am planning to use antibiotics for 3 months more. Right now i don’t have a doctor who helps me, i didn’t have any from the beginning, i learned from internet. But right now i can use some advice or thoughts about my condition, thank you for in advance.