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Posted 10/17/2013 11:30 PM (GMT 0)
I am new at the blog, but I read other bloggers and I find it discouraging to see all these bad symptoms, bad nails, hair goes limp, etc.
Are any of you bloggers happy to do this antibiotic treatments? What will I expect when I start?
Posted 10/17/2013 11:57 PM (GMT 0)
I've been having a pretty good experience so far with abx, but I've only been on them for a little while(6 weeks). My hair stopped falling out, I have an appetite again, and I actually have some motivation back.

I also didn't herx, which concerned me because I have had Lyme for years, so I was scared the drugs weren't doing their job, but I am seeing subtle improvements, so it must be working. My Dr said I may be one of the lucky ones that doesn't herx. I guess time will tell. Also since starting treatment my colon has been doing it's job again, so I think my body is detoxing better now than it has in years.
Posted 10/18/2013 7:08 AM (GMT 0)
Hi Sapin,

welcome to our community!!

Please don't get discouraged by the posts you are reading. Please try to interpret it as information, not as something that discourages. You might encounter the same symptoms and side effects once you start treatment, if so, reading that it is 'common' is really reassuring.

This disease is just very very complex and the members are trying to find their way in the chaos that is overwhelming them/us. Treatment is hard, and confronts many of us with new bizarre symptoms that can be very scary, but are in fact normal for this disease.

I think few are really 'happy' to start abx... relieved, yes, that we have finally found the cause of our symptoms. But we need to see that starting abx or herbal treatment is the start of a healing process, no matter how hard it will be. It is a step forward!

Sometimes members need to vent when things are just too hard at that very moment. It is really important to have a connection with fellow lyme fighters, they are the only ones who really understand and feel what you are going through.

People react very different to abx, there is no way to predict how you will be doing on abx. My sister is doing well on abx, no major herxing, some side effects that fade away, some periods of increased fatigue, but she's coping well. My treatment is the total opposite.

I would like to advice you to go through the 'New to Lyme? .... Start here!' thread on top of the Lyme page, if you haven't yet. There is lots of information there: symptom lists of Lyme and the coinfections, interesting links, advice on how to detox, etc.

You can get prepared by following a detox protocol, and by continuing that once you started abx.

Also: there are many many success stories on here, it's not all doom and gloom :-) (so to speak).

Good luck!!!

Posted 10/18/2013 3:04 PM (GMT 0)
Sapin, welcome to our family. Sorry that it is under these conditions but glad you are here none-the-less. The reason that you read awful stories here and some good ones is that we have members who have been infected for many years and some for just a few weeks.

People with longer illnesses or with multiple co-infections will often take longer to get better and sometimes suffer from more illnesses than someone who was recently infected. Their bodies are worn out from the disease and so the recovery will take longer. Others have a stronger immune system or their infection is not as severe and they recover in a matter of weeks. Many leave us as they get better to enjoy their newly found health and stop writing. Others continue to write after they get better because they want to give back to the family that was there for them when they were feeling miserable.

Download Dr. Burrascano's list of Lyme symptoms and mark off how you feel right now. Every so often go back and see if any symptoms have improved. I was amazed at how well I was doing just a few weeks after starting treatment. I didn't know that I was doing good because I was still feeling sick. However, as I went over the list, I noticed that some of the symptoms had disappeared and I had not noticed. This can be a great motivator whenever you feel miserable to know that slowly, things are getting better.

Post Edited (Healing98) : 10/18/2013 9:07:03 AM (GMT-6)

Posted 10/18/2013 3:19 PM (GMT 0)
Sapin, welcome. I'm new to this as well. And trust me it is SUPER helpful to have a group of such loving caring people to give you a virtual hug and encouragement as you move down this path.

My first couple of weeks of treatment were pretty good, I could tell some things were happening but it was very bearable. Then things got "weird", but it helped so much knowing what was happening was "normal". So please try not to be discouraged.

Healing98 has a great idea to check symptoms and go back and recheck. I will be doing that. I can tell you right now that just in a few weeks the heart palpitations are pretty much gone and the air hunger has diminished significantly. And prior to this past week I was able to take the dog a walk that was over a half hour. I'm very thankful for these small but noticeable changes.

So, like MarieLS said, I'm not "happy" to be doing treatment, but I am thankful. :)

Be encouraged.
Posted 10/18/2013 8:27 PM (GMT 0)
thanks for all of the good support, I was not complaining about that but just worried what I was going to expect with the treatments. I am physically active and hope to still be with the treatments but with all these comments I am reading, I was wondering if I would still be able to get up and go to work.
Posted 10/19/2013 5:38 PM (GMT 0)
I just finished doing a detox (internal) and I make a glass of beet,carrot,lemon juice with my juicer everyday know. I have not taken any antibiotic since 20 years myself. We own a nursery and I am getting ready for the Christmas season, I am just wondering if I should postpone the treatment until my season is done.
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