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samento and banderol question

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Posted 10/23/2013 2:45 PM (GMT 0)
Hi

I have another thread below with my story-- but it has lots of questions in it. I wanted to ask a specific question in this thread: Has anyone here had success in  I treating early lyme with samento and banderol?

I am beginning a 30 day course of this (after doing 10 days of doxy the day after the tick bite, and then doing nothing for 11 days).

 

Posted 10/23/2013 3:10 PM (GMT 0)
Yes, I took banderol and samento for about 8 months,but I pulsed banderol with cumanda( 2 weeks one and then 2 weeks of the other.

I'm doing well although I'm still fighting Bart............about 90% back to my former self. :-)

Tickled
Posted 10/23/2013 3:15 PM (GMT 0)
Thank you for your reply.  Do you think those two herbs are effective in treating the early stages of lyme?

I mean in fully eradicating it?

My practitioner told me they are JUST as effective as the doxycycline but I know the research is still pretty new on them. She said if I do them for thirty days it should fully treat the lyme. I had the tick bite about 29 days ago and did 10 days of doxy right away followed by 11 days of nothing and am now starting the 30 days of the herbs as of today.

I am hoping as she has said that I can do them in stead of the antibiotics-

I had a really hard time stomaching the doxy.

I want to do the most effective prophylactic treatment I can and just want to make sure these are effective.

I also have a phone call into the doctors office of Richard Horowitz who I read is one of the best lyme specialists, to ask them what they think- but so far I can only leave message for them.

thanks 

Posted 10/27/2013 8:15 PM (GMT 0)
Considering that these infections affect each of us differently, remember that what's right or has worked for one person may not be what's right for you.

Please use good judgement. NEVER rely on information or opinions exchanged here to replace necessary, personal consultation(s) with qualified health or medical professionals to meet your individual health or medical needs. Also, please always do your own research into different topics/issues.

Dr. Eva Sapi completed a study on the effectiveness of Banderol and Samento on the Lyme disease bacteria. Here is a link to that study:www.townsendletter.com/July2010/sapi0710.html‎

And a link to her other studies: www.newhaven.edu/238857/
Posted 10/27/2013 9:20 PM (GMT 0)
It also depends on the different weaknesses that are present in each body.

There is no one correct way to heal from these diseases, for the reasons you state and for what I said above. We each have to make our own choices for what is right for us based on many factors.

We can present opinions and studies here, but we must allow the individual to come to their own conclusions. Hints and tips that helped each of us get through this are always welcome as well, as they too will work for some, but not for all.

Please do not mistake my telling other members to be careful as an attack on what you have posted. My concerns only lie with each of our members finding their own healing in whatever way they can.
Posted 10/27/2013 10:30 PM (GMT 0)
Actually, I have read your 'story' and do agree with many of the concepts that you present, although I do have to admit that I didn't read the links that you present. Some I have read before, others I haven't.

We did choose different pathways of healing, but the use of holistic healing was something we both chose.

I promise to get back to you. You can also feel free to email me or enable your email address here through your profile and I will email you and we can talk more if you would like.

I haven't had to deal with Morgellons' (and bless you for getting though that!), but I have had most of the tick-borne infections and am now healed. I welcome your knowledge and experience here! I just ask that you understand that not everyone here will heal the way you or I did.
Posted 10/28/2013 7:31 PM (GMT 0)
Well, I had no intentions of offending you by calling what you've been through as a 'story'. That's just the term I use to talk about what someone has been through. I share my 'story' as well.

While I will agree that Morgellons is a very scary and difficult thing to deal with, I do have to say that I don't agree with this statement though:"Morgellons offers things to overcome that makes lyme look like a common cold. For instance lyme and it's co-infections mechanism of action are infective, in other words its just pathogens eating you and giving you their waste."

While I agree that Western Medicine has a lot to be desired in my eyes when it comes to treating tick-borne infections -especially once they are in their chronic stages, there are still many that are healed using it, so it is not only something that we discuss here, but I will encourage those who aren't in the right place in their lives to use natural or alternative medicine, to use abx. We must be respectful of others choices.

Again, I meant no disrespect by calling your journey with these diseases a 'story'. I refer to everyone's journey with these diseases as their 'story'.
Posted 10/28/2013 9:36 PM (GMT 0)
Oops, I didn't finish my thought on this paragraph:
"While I will agree that Morgellons is a very scary and difficult thing to deal with, I do have to say that I don't agree with this statement though:"Morgellons offers things to overcome that makes lyme look like a common cold. For instance lyme and it's co-infections mechanism of action are infective, in other words its just pathogens eating you and giving you their waste."

Lyme is far from being able to be compared to a 'common cold' - ask those that have had to live with seizures because of it, or those that have been bed ridden for months, some for years, or the members who now have to be fed through a tube. Personally, with what I have had to go through after having these infections for 40 yeas undiagnosed and without treatment, offends me a bit too. To trivialize it in such a way is a real dis-service to the entire Lyme community as well.
Posted 10/29/2013 12:46 AM (GMT 0)
countryair: I read through some of your information.

Can you please clarify in simple terms what you would think would be a good protocol for a lyme tick bite treatment at the early stages to effectively eradicate lyme? I was a little un clear from your posts what your recommendation is. Thank you

Posted 10/29/2013 3:08 AM (GMT 0)
violets  Do you think a whole month of doxy is necessary?

This is all so confusing.

I did ten days of doxy from the day the rash showed up.

After puking 6 times on the 11th night or so I stopped.

I am now 1 week into the 30 o so days of herbs.

Curious to hear different ideas so violets, what would you suggest for me from this point forward?

Posted 10/29/2013 3:36 AM (GMT 0)
I just looked up the detailed cowden protocol.

It looks like a good thorough one.

 

Posted 10/29/2013 12:03 PM (GMT 0)
Traveler:

This link isn't working...is it me?

"Dr. Eva Sapi completed a study on the effectiveness of Banderol and Samento on the Lyme disease bacteria. Here is a link to that study:www.townsendletter.com/July2010/sapi0710.html‎"
Posted 10/29/2013 2:29 PM (GMT 0)
Inacocoon;
Oops! I'm so sorry!! I didn't check to be sure that it would work. Try this one:
www.townsendletter.com/July2010/sapi0710.html
Posted 10/29/2013 5:17 PM (GMT 0)
this is so confusing!!!!!!

I want to do the right thing at this still early enough stage but I am so confused as to what that is.

when I saw a supposed lyme specialist (natropathic doctor who has studied with Richard horowitz an actual lyme specialist)

they said EITHER 30  days of antibiotics OR 30 days of the 4 herbs.

I went for antibiotics but as I said stopped at day 11 when I had a strong negative reaction (threw up 6 times from a 200 mg dose od doxy)

After that I was like- I cannot put this back into my body.

Did nothing for 11 days.

Talked to natropath again- she said 30 days of herbs is good enough.

Am 1 week into that now.

Am still willing to try antibiotics again (either doxy or amoxy I guess, amoxy might have less bd side effects for me, has in the past)

But so confused as to how long how much and who says what!

ugh

I want to nip this in the bud NOW and do the right thing.

I have been trying to call Dr Horowitz' office (he is one of the main doctors who specializes in lyme and has successfully treate people, from what I understand) and it just goes through to voice mail and I have left messages but no call back yet.

I want to just see what they recommend I do.

I am willing to do the right thing I just don' know what it is! I read that samento/banderol study, and other studies about antibiotcs, and one person says this and another says that--- meanwhile I can tough it out I guess on a longer treatment of antibiotcs-- can I do them at the same time as the herbs? I need to find someone irl who knows about this stuff

Posted 10/29/2013 10:01 PM (GMT 0)
Here's the problem, without the CDC and the insurance co's support, we are left to figure a lot of this stuff out ourselves. I can easily remember when I was first trying to figure out what to do - boy!! Was I ever confused! Like you said, there are so many conflicting things being said!

I can tell you this - you have to decide what's right for you - abx or herbs. Yes, many (but not all) herbs can be taken right along side of the abx if you choose.

Many of the herbal protocols will work just as well as the abx - there are no guarantees that you will tolerate either well, although most do, especially those that catch it as soon as you did.

30 days is a minimum. 6 weeks would be much better and 8 weeks even better, that way you could be sure that you catch the Lyme bacteria in at least two of it's 'cycles' in the body - where it comes back into the blood to replicate.

Dr. Horowitz just appeared on the Katie Couric show, so I'm sure he is being overwhelmed with phone calls, emails, letters and patients now! So you will have to have patience in order to speak with him I'm afraid.

If you choose to use Amox, please be aware that it must be combined with probenicid in order to obtain the high plasma levels needed to kill this very complex bacteria. Dr. Joseph Burrascano has a paper - "Advanced Topics in Lyme Disease"- that explains this very well. You can find a link to this paper in our "New to Lyme?" thread.

I hope I haven't made things even more confusing for you!!!
Posted 10/29/2013 10:58 PM (GMT 0)
dr horowitz' office called me back today and- ugh- my husband didn't know it was a call I really needed to take and he didn't even come get me to tell me- he took a message! oh well.

Anyway  thanks for the info traveler!

I am feeling okay with the idea of maybe seeing dr horowitz and researching more about the cowden protocol and just today spoke to someone locally who had personal success with the cowden protocol so that was encouraging.

As I said, I never even found a tick- just had a bite and a small rash for one day but I just want to be cautious.

thanks again

Posted 10/30/2013 12:00 AM (GMT 0)
Take it from someone who has lived with chronic Lyme, Bartonella, Babesia, and Rocky Mountain Spotted Fever - cautious is good!!!

I'm so sorry that your husband didn't understand how important that phone call was to you!!! At least you are beginning to find a way in which you wish to go - and that alone can be priceless.

Best of luck - and be sure to let us know how you are doing!!!
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