I have been sick since September of 2012. Started with a severe dehydration that landed me in the ER for over 5 hours. Prior to this, I was going to the gym 3-4 days a week, playing with my kids and dogs outside all the time, and truly enjoying life. The docs told me after the dehydration, I'd need to wait a week to fully recover enough to start my gym routine. I waited, and when i went back, I couldn't do what I used to do. I was on the eliptical for not even 5 minutes, and the whole gym was spinning, my heart was pounding, and I thought I was going to pass out. I tried a few more times after this, with the same results.
I had noticed that I was extremely fatigued, my heart would race, and I was constantly dizzy, and my joints were killing me! Having a history of heart problems in my family, I made an appointment to get things checked out. I was tested for all kinds of ailments. Lyme was negative...as were all the other tests.
I wore a holter monitor for 24 hours, which showed that I had tachycardia (my HR even when sleeping was over 100 bpm). I was referred to a cardiologist, where I was given a stress test that I was unable to complete. This cardiologist said, I was out of shape and needed to eat better.
My PC Doc referred me to another Cardiologist who performed a nuclear stress test and imaging, with good results. I was healthy. However, this cardiologist after reviewing all of my symptoms said that if he had to give a diagnosis, he would say POTS.
I started researching it, and my symptoms lined up. Not alot of treatment for it, so I sucked it up. Went from March of 2013 until September of 2013 with no treatment, feeling like crap and wondering if I'd ever feel better.
In September, after starting to feel significantly worse (headaches, brain fog, worsening fatigue and joint/muscle pain, and twitching all over) I happened to attend an
open house for an ND in my area, because a friend of mine was doing free chair massages. The ND was giving free 20 min consultations, I figured it couldn't hurt to talk to her. After telling her my symptoms, she asked me a few questions, and finally said that if she had to bet, she would say I had Lyme! I was shocked!
I had been bitten and treated when I was a freshman in high school. One round of Doxy, and I seemed fine. I do not know if I have been bitten again since then or if this is from the bite over 20 years ago.
I was referred to an LLMD, and after reviewing all of my labs, symptoms and talking with my husband, he said it was Lyme. He went further to explain about
the inaccurate testing, and how Lyme should be a clinical diagnosis, not just based on labs. If it walks and talks like a duck, it's a duck!
I'm currently taking 1,000 biaxan and 1,000 Tindamax, with a bunch of supplements (magnesium, phyto-multi vitamin, vitamin D, japanese knotweed, cat's claw and a super strength probiotic)
I've been on the meds now for over a month, and I do not feel a bit of difference. Last week I actually felt worse, which I assume could have been a herx?
I'm happy to have a diagnosis, but overwhelmed. I cannot control my crying, I cry for no reason at least 4-5 times per day.
Can anyone tell me if I should be feeling better by now? How long it might take to feel results?