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UPDATE ON lYME AND CO INFECTIONS

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Lyme Disease
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Posted 12/13/2013 4:36 PM (GMT 0)
My LLMD just emailed me my results:

I am chemically biotoxic, I blamed this on working for a chemical company for years.
I also do not detox well.
I have Lyme co infections like HHV6-, Chlamydia, and Mycoplasma. I am now started to research all of this.

He is not surprised that I am having as bad seizures as I am, with my body in the shape it is. We are continuing to treat with Cholestermine up to three packs a day to rid the toxins, and we will continue treatment on January 14th when I see him again.

For the first time in a long time, I feel that I am not crazy, that these symptoms were real all along, I had so many doctors think I was making it up or faking it. So now to see the blood tests, it literally made me cry, tears of joy. I feel like okay now we know what we are up against we can go after it.

The Lyme test was neg, but like he said the lyme test is only 70 percent so we can't rule it out. I will keep you all up dated on my progress, but today is a great day for me. I am still stuck in bed, because of seizures and my legs not working, but for once in a pretty long time, I have hope. So don't give up, no matter how bad it gets.



just me.
Posted 12/13/2013 5:46 PM (GMT 0)
turn Woo hoo!! yeah Congratulations Justme!!! Hope is a beautiful thing!!! :-) Happy dance time!!!

I'm so very glad to hear that you have finally found the right doctor for you!!! I know it's been a very long (and scary) road for you. Like you said, at least now you know what you have to tackle!

I'm surprised he puts the Lyme tests as high as 70% though - all the estimations I see are anywhere from 40% to 60% - but at least he seems to know not to rely on those tests!!

The best is yet to come! Woo Hoo!!!
May your healing path smooth out some now!

Many big, gentle hugs!!!!
((((((((((hugs))))))))))
Posted 12/13/2013 6:21 PM (GMT 0)
That is great news Justme!!!

Now you can finally start an efficient treatment!! I hope you get results soon!!!!

Very happy for you!! I guess a lot of pressure fell off your shoulders with that news

:-)
Posted 12/13/2013 6:32 PM (GMT 0)
Thank you , I am just so happy they found it, now we can start to treat it.

justme
Posted 12/13/2013 7:07 PM (GMT 0)
I'm so glad you got some encouraging news. I hope life will start going uphill for you this coming year.
Posted 12/13/2013 8:14 PM (GMT 0)
AMEN AMEN AND AMEN!!!!!!!!!!!!!! I've been praying for you and will continue to do so! Thank God for your doctor. I'm in my cubicle holding back the tears of joy (I work around a ton of people) but know I am soooooooo happy that you have results.

I have HHV too...all those nasty things. It's horrible. I'm tackling the coinfections and it's no fun but you said a word that I need to print out and post on my wall. "HOPE!"

Keep us updated! I love you and can't wait to hear the next positive story!!!!! (Because it will be positive)!
Posted 12/14/2013 1:50 AM (GMT 0)
Wow Justme. Wow, Wow, WOW!!

What a HUGE step forward. I am so very grateful that this new doctor is finding those missing pieces!! Congratulations on this achievement. All my prayers are with you. What a wonderful start this will bring for the new year. Good luck! I wish you Godspeed in the rest of this journey.
Posted 12/14/2013 4:06 AM (GMT 0)
The last three months I have been completely bedridden, seizure just out of control.

I really believe I am on to something with this new doctor, he seems to really care about his patients.

I hope soon, I get my legs back, and can just be in my front room so I can spend some much needed time with my dogs.

Thank you all for your kind words.

Justme.
Posted 12/14/2013 1:46 PM (GMT 0)
just me!!!! oh my!!! You are on the right path finally!!! Now you have real hope to get well and have the suffering end and I can see it happening for you. You finally found the right doctor and are finally being heard. I know how hard it is when mainstream medical makes you feel like you are the crazy one. I was actually told I needed to see a shrink. That hurt me so badly I can't even tell you. When you look up to doctors and they let you down like that you start to have lot of mistrust for the medical community itself. I am so happy for you and I know you will get well. I am finally after years and years of seeing ordinary doctors and being mistreated, I am getting well with a great LLND. Good luck to you. Keep us posted of your progress every day.
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