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Feeling worse is this normal?

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Lyme Disease
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Posted 12/15/2013 4:34 AM (GMT 0)
I've been on various antibiotics for 2.5 months treating lyme and co-infections. My Dr. gave me 2 weeks off everything but supplements. The 1st week I felt pretty good, but the last 2 days have been awful. My hands and feet are tingling and hurting. My laptop computer is almost to heavy to pick up. I feel extremely hot and cold, with some pressure in my chest. I assume this is the lyme rearing it's ugly head, but am wondering what I can/should do to get through this? Any ideas would be helpful.
Posted 12/15/2013 7:06 AM (GMT 0)
Pictureofhealth, I'm sorry to hear about your symptoms coming back. Maybe you need to get back on your antibiotics? I know my LLMD doesnt recommend being off them for more than just a few days. If I go off mine for longer than a week I feel my symptoms coming back. Have you talked with your doc yet about this? I would call him. Hope you are able to start feeling better soon.
Posted 12/15/2013 5:14 PM (GMT 0)
lymerunner, Thanks for the info. I didn't realize the symptoms would come back so quick and strong.
I have an appt. with my ND on tuesday but may call monday to start something. She has me on a M-W-F antibiotic protocol, adding in new abx every few weeks. Have you ever heard of something like this working? I know I haven't been doing this long but I really want to be done. Now I see there is no turning back. I wonder what the quickest way is? Shots, IV herbs? Any ideas?
Posted 12/15/2013 6:45 PM (GMT 0)
Hi pictureofhealth - Over the last few years, Ive had 6 of these experiences as well. I call them "relapses" because the second Im off of the ABXs, my symptoms quickly return, even when continuing my supplements and herbs. It takes anywhere from 1-6 weeks for me to general feel like crap all over again. Keep in mind, Im not an expert and calling this a relapse may not be the most accurate word for it.

However, I suspect you (like many others) has a strong biofilm based infection. Your LLMD needs to focus on determining which coinfection(s) are contributing to this biofilm, nuke it and keep nuking it in rotating pulses.

I believe the most important change in my health occurred during the second round of my anti-parasitic nuking, where my LLMD used several very very strong anti-parasitic drugs in rotation. My own recovery once she started doing this was remarkable.

I could be wrong, but Im finally starting to see the light at the end of the tunnel when it comes to this crappy disease.
Posted 12/15/2013 8:06 PM (GMT 0)
Thanks vcast, I was wondering what anti-paristic meds you took. I've been on Doxy, Minocycline, Cefdinir, and hydroxychloroquine. Doc says I have mycoplasma and c. pneumonia. She thinks I have Bartonella and Babesia. Did you just take oral drugs? Thanks
Posted 12/16/2013 3:56 AM (GMT 0)
Albenza, Biltracide and Stromectol was in my first wave. This did a good job of clearing out the pinworm and weaker bugs. I had a minor, but noticable improvement in energy, but this could not clear the Giardia which just might be the most stubborn and painful parasite Ive ever seen. darn thing keeps coming back. I must have gotten this on a camping trip or one of the many hellholes the Army tossed me into. This can also come from municipal tap water, because even chlorine and iodine doesnt kill this bugger.

Anyway, Im on my second, third and fourth wave pulses with heavy Stromectol and Tinidazole doses. This is really really working for me. Significant improvement for the second week straight. Best Ive felt in 3 years. Im also suppose to have pulsed with Albenza again this round, but I coudlnt afford it.
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