Mayo Clinic?

Kathy, I am sad to hear about your son's illness. I don't have information about the Mayo clinic but was wondering if you know what type of antibiotics he has been on? Most antibiotics are specific to a certain bacteria and often need to be taking in combination with other class of antibiotics to be effective.

Is there a possibility that your son may have a co-infection that is not being treated with his current prescriptions? There are gram-positive & gram-negative bacteria, parasites, protozoans, mold, and viruses. If you frequent this site often, you may have read how most people who take antibiotics try different combinations until they find one that works well for them. Has your LLMD done this for your son?

I too had to take a break from antibiotics for two weeks due to side effects so I can certainly understand why you have taken him off of them.

Thank you Healing98 and Pathways. I am new to this site, so I'm sure I've missed information already given. I will continue to read.

My LLMD has tried different antibiotics. After our first visit, he gave prescriptions for several different antibiotics to use. He said to try each for at least a month, and if he was improving to continue, but if not, to go to the next one. My son was able to tolerate some, but with little to no improvement. Some caused such extreme herxes (fever, nausea, and flu like symptoms) that we had to quit. He was on IV antibiotics last year, but developed a severe rash on his arm where the bandage was so they decided he was allergic to the tubing and pulled the one in his arm and inserted a silicone one. Turned out that he was allergic to the silicone on the bandages, so when they put the tubing in he had a major reaction resulting in pulling out the new tubing. I felt he might have been getting better with the IV abx, but that put an end to it.

I'm pretty sure he has co-infections, but don't know what to do as we have tried so many antibiotics. My next thought is that maybe we should have tried more detox things when his Herxing was so bad. It must mean he needed that antibiotic? Our Doc said to stop if he was getting that bad and to try the next abx on the list. 20 months later and he is worse, not better. I am so worried about taking antibiotics for that long--especially with no improvement. His brain fog is so bad he is unable to do school work (he was previously an A student). I am looking into more natural solutions, but there is so much out there, I don't know what to believe!