Posted 1/20/2014 5:03 PM (GMT 0)
Well, I started experiencing joint pain and panic attacks when I was eight years old. I had fatigue my entire adolescence, but there was always a 'reason', i.e., my parents' divorce, or heavy periods, depression, etc. I just went along with treatments, but I can say that I never really agreed with what was going on. Never once was I tested for food allergies, and turns out I am highly allergic to dairy and gluten, which would trigger attacks.
When I was about 19, I started feeling unbearably anxious with lots of neck pain/cracking. Lots of stress at the time. Eating disorder started, then, during treatment for that, I kept complaining of neck pain/cracking. No one would listen, attributed it all to eating disorder. That ended, but I was sick, sick, sick for the years after that. I am 34. In order to get anything done outside of the house, I've had to plan everything carefully. I have had horrible, scary days with unbearable pain/spaced out feelings/weakness/heart palps, etc. The eating disorder didn't tax me terribly, as it was short-lived, and all of my physicals, blood work always came back normal. Then, this past year, in Feb of 2013, I fell very ill, suddenly. Sudden weakness, sudden anxiety, intense flu-like symptoms. Went into the hospital, had to stay overnight, all they could tell me was--virus of unknown origin. I was so scared, because all I had were pain/nausea meds and no answers, aside from being told that my liver enzymes were slightly raised. I knew something was wrong. Then I started getting pain in left side of scalp and it ran down to root canaled tooth on left side of my head. I thought I had a tooth infection, went to dentist, sure enough, an apical abcess above that tooth, they told me I should extract it and I'd feel better. Instead, after extraction, I was in insane pain, worst of my life, with lightning bolts through my head on left side, strange nerve sensations on that side of my face, numbness, down my neck, left shoulder, and pings of sensation in my forearm. As well as flu-like symptoms. I had a couple of night-time hallucinations of seeing bugs on the ceiling. I was terrified. Saw tons of doctors, my mom came to stay with me. I thought I was legitimately dying. Things kept coming back normal, aside form white blood cell counts changing. Nothing too crazy. Time passed, I slowly healed the extraction, but it took *much* longer than expected and drained a weird taste for a long time. Yet, I was told, by a couple of dentists, that looking at the x-ray, I looked great. Doctors were super-rude, sometimes, ignoring my questions. My infectious disease doc was the worst.
Saw an LLMD in Mississippi on a whim. Well, took a couple of months. By this time, I was so sick, I just assumed I would die, eventually. Then, tests came back positive. And, here I am.
Thanks for letting me tell my story here. I never have and needed to get it out.
What do you think about those hot baths? Do you think they make you herx worse, or do you really feel they make a positive difference? Are you able to drive? I am not, due to eye/balance problems. Do you think working helps keep your mind off of things? What things do you do other than medicine/detox to help cope?