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Posted 1/18/2014 3:57 PM (GMT 0)
Hello again. I am currently between diagnosis. Already diagnosed with Fibromyalgia. Neurologist found a lesion on my brain so now I am going for a lumbar puncture to test for MS. After reading about Lyme I thought that may be a possibility too.   I have many other symptoms but my question is about vision problems. I am already legally blind in my right eye since birth so losing my vision has always been a fear of mine. Over the past few months and especially the past week my vision has gotten very bad. The issues I am having are very unusual though. I saw an eye doctor a few months ago and he said there wasn't anyting wrong with my eyes.   -Colors where there are none -Flashes of light -Very bad floaters -Afterimages -Recently my eye does not want to stay focused it seems -Hard to read more than a few lines of text, even with my new glasses on   Does any of this sound familiar to anyone? Post Edited (Akkami) : 1/18/2014 11:41:33 AM (GMT-7)
Posted 1/18/2014 6:16 PM (GMT 0)
Yes, those do sound all too familiar.

Once a person has had their eyes examined to be sure that there's nothing that Eye docs can see wrong, if the person has Lyme or is suspected to have Lyme, these symptoms are fairly common. Very frustrating, but common.

Just to be sure that you realize this - MS and Fibro are very common misdiagnosis of Lyme disease. As a matter of fact, I was diagnosed with each of those things. If your symptoms don't really fit MS, then please be very, very careful to not take any steroids for MS treatment until Lyme and other tick-borne infections have been ruled out. Steroids will lower the immune system function and will allow any infection (including tick-borne infections) to spread through out the body much more easily.
Posted 1/18/2014 6:34 PM (GMT 0)
Thaank you. I fel less crazy now. I am having a lumbar puncture on Monday per the MS doc's request. I plan on seeing a LLMD (I finally got a list of ones in my area!) regardless of what my MS doc says. I just got a Western Blot done locally, but from what I gather the only reliable test is from Igenex. Still waiting on the results.
Posted 1/18/2014 7:23 PM (GMT 0)
Traveler: Did you eyesight ever recover? I really hope the answer is yes. confused
Posted 1/19/2014 6:19 PM (GMT 0)
Actually, yes! I had my eyes checked last summer and was told that my eyes are quite healthy, and at 50 were doing quite well. I have some issues that I've had all of my adult life - astigmatism and far/near sightedness issues - but was told that my eyes were very healthy and aging well. :-)
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