Is it Lyme or Just TICS? Also, Hansa Center Exerience?

HI All,
I am new to this site and looking for some helpful advise from anyone who has been to the Hansa Center. Our daughter may have Lyme disease. She is 9. We have never seen a TIC on her or seen the dreaded "bullet rash". However, when she was about 6 she she did have a "seat rash" on her butt after attending school all day, which went on for a couple months and then went away. We are looking for advise if you have a child with what I think are minor symptoms of TICS and whether you have experience with this being Lyme or just a case of TICS that needs time and good food and vitamins to heal. Here's the brief story: Presently what we notice are TICs, mostly jaw movement and finger movement. IT is not noticeable to others, really, just us parents, as we look for a "perfect child". She is doing excellent in school (4th grade), has lots of friends and is in many activities such as: Piano weekly, Karate daily, Art weekly and a couple other weekly activities. The situation is such that other parents and other children do not notice anything wrong at all and are surprised when we bring it up. Our daughter notices moretly because we bring it up to her, not because it bothers her or is noticeable to her in any way. Physically, this has gone on for a couple years and does not seem to have any debilitating or limiting impact to daily life. She has no complaints of any kind. But, she does have this "TIC movement". She had a vocal TIC (sniffling) when she was 7 and that lasted for about 3 months then disappeared. Presently, as I mentioned she only shows jaw movement and occasional finger movement, most noticable when watch TV, which we limit, of course.

1. Anyone know anyone with this type of experience that went on for years and turned out to finally be debilitating or anyone know anyone with "standard TICS" that have a great live and this is more like that case?

2. Not sure if is a typical Hansa Center case as nothing is debilitating - appreciate Hansa clients thoughts on this comment. All advice and experience appreciated.
Thanks so much, Chris

kidchris,

We are suspecting lyme with my son, who will be 4 years old next month. His Igenex results are in, but the llmd doctor today said we need an appt. to go over them, and it would be three weeks away. I'm so frustrated, anyway, I'm sorry that's not the subject at hand.

anyway, one of the very first things that we (my husband and I) noticed with my son was a sudden onset blinking tic, just this past halloween.

Then there it was again the next day, but along with a constant sniffle.
This went on for a week before we called his pediatrician. ped. tested for strep, it was negative. said "lyme is rare" so didn't want to test back in Nov.

Okay, well, the story goes, that the blinking motor tic and sniffling so caught my attention that I didn't notice a few other things at first, until I thought about it later (like a week or two later).

Right away when it happened, by the second day, I was on the computer until 1 or 2 in the morning after he went to bed, for two weeks straight.

At first I thought we were dealing with a tic disorder, a nutritional imbalance thing. BUT, from a few websites, one being latitudes, a forum like this, I kept hearing/reading people saying
the same three things. They were to look into:

tic disorder/tourettes
PANDAS/PANS
and
Lyme Disease

I looked into them. and the more I read, the more I thought about other things I had been overlooking in my son.
Like, why did his stomach lately always hurt.
why was he getting headaches and stiff necks
why did his feet hurt off and on
why the dark circles under eyes
etc., etc.

it took the course of about three weeks for these to add up and me to think to myself, "this isn't just a tic disorder."

Now, three months later, the sniffling thing is long gone, and the blinking is rarely there and when it is, it's so minimal it's hardly noticeable, like you mentioned with your daughter.

But, the other stuff remains.

Sorry this is getting long and I've mostly just talked about my son, but what I wanted to say I guess is that it's not out of the question that it may be lyme.
I did read somewhere online that there was a boy who had tics as his only symptom. Had blinking at 4 then it went away, but came back again at 9 or so. Was diagnosed with lyme, did antibiotics and then it resolved.

That said, if tics are the only symptom I've read lots of info on the nutrition/allergy stuff too. Maybe you've heard of Caryn Talty? She has a website called …oh, I forget, but google her name and you'll find it for sure. Her son's had tics at 3 years old and she got them gluten free and dairy free, etc. and they've been tic free tic for several years now.

Of course I don't know the answer, but I wish you the best finding it.
maybe it's a good sign that there aren't the other lyme symptoms.

At first when I suspected lyme (in Nov.) I thought "oh good! an answer! "
now I'm praying it's really mold or parasites instead.

Hi kidchris and welcome!

I personally did not go to Hansa but know several people who did but sadly they don't post here anymore.  What I do know is that Hansa not only treats lyme but any type of illness.  Dr. Jernigan uses a diagnostic testing machine besides other methods to find the root of one's problems no matter what it is.  I would say if you could afford it that you should take your child there. 

Talk to Heather's Dad since he has taken his daughter there with fantastic results.

I wish you the best!

Denise

Hi there,
My daughter went to the hansa center last April. (Thank you Don)
It did really help with her healing path. We are now working with a great natural path that knows lymes well. We are glad we went to hansa center. The doctors and staff are wonderful. But feel the doctor we are working with is a good fit for our daughter.

You mention in your post that the vocal tics last three months then went away. Do you remember if she had any illness or colds near that time. Her symptoms sound like Lyme, but they also sound like Pans or pandas. There are many illnesses that can trigger a pans response. Strep, Epstein Barr, mycoplasma, lymes and many other viruses, or bacteria.
Please feel free to email me if you have questions. Went down the pans road for 6months before we found Lyme.
Mary:)

Our daughter's PANS reactions included Tourette's-like motor and vocal ticcing, as well as other symptoms.  For her bartonella was the culprit when it came to ticcing. 

Here is a copy of my signature from the ACN forum which pretty much explains her time-line:

DD12 - Born 2001. Loss of speech/fine motor ability 2 weeks after 15 month MMR.

2004 - Dx ADHD, sensory disorder (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.

2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.

2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.

Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, fatigue, nightly fever.

June 2011 - Igenex PCR positive bartonella, Negative lyme (IND IgM kDa 41; IND IgG kDa 93, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.

April 2013 - Weaned from abx treatment. Continue with Buhner herbs, ByronWhite, methylation/detox protocols, Terry Wahls gf/cf/sf diet. Minimizing EMF exposure.

Sept 2013 - CD57 45.

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Slight pain herxing remains with changes in herbal protocols.

Nov 2013 - Improvement of executive function/ADD to 98% with addition of Buhner herbal protozoan treatment.

Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations at this time.

Post Edited (rowingmom) : 1/23/2014 10:20:42 AM (GMT-7)