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Posted 1/23/2014 1:15 PM (GMT 0)
Hi everyone!

Long story short;

I'm experiencing some pretty bad dysesthesia in my legs. It's an almost constant pricking, burning, pins and needles feeling that gives me quite a bit of anxiety. Pain level is 4 or 5 sometimes.

Is this likely to get better or go away completely with antibiotic treatment?

Thanks for reading :)
Posted 1/23/2014 1:53 PM (GMT 0)
I do know someone personally who had the tingly/burning/heavy legs which has gone away with years of treatment so it is possible.

I too have this on an everyday basis and hope to be able to clear that symptom as well as others. That's the only symptom you have?
Posted 1/23/2014 2:07 PM (GMT 0)
Hi toddpaul thank for the reply :)

Unfortunately, I have lots I other symptoms that are evolving. I'm guessing I've been affected for the past 8 months. What started as a knee injury in July has evolved into:

Panic attacks
Depression
Losing my mind
Joint and tendon pain/burning
Cold feeling in legs
Difficulty walking
Any amount if alcohol kills me
Shortness of breath/cough

Among other things...currently seeking treatment ASAP.

Thanks again for the reply. Do any medications help you for the pins an needles/burning feeling?
Posted 1/23/2014 6:14 PM (GMT 0)
Sounds like yours is very neurological. Are you doing IV abx? That seems the best way to treat neuro-Lyme as it penetrates more effectively.

For the parasthesia in my legs my LLMD at the time suggested B12 injections but I never tried it. It's a fairly mild symptom for me so I didn't bother. I'm treating now with herbs following the Synergy Protocol which is very intensive and causes some good herxing so I'm hopeful it will eventually clear most if not all of my symptoms.
Posted 1/23/2014 9:37 PM (GMT 0)
Hey Todd :)

I'm early on on the process here. I was negative for lyme 4 months ago and am currently waiting for new results from a second test. Should be next week. My primary just gave me Effexor which will hopefully help in the meantime.
Posted 1/23/2014 10:24 PM (GMT 0)
Did you test through IGeneX? I hope your primary is not the one testing you and you're going through an LLMD.
Posted 1/23/2014 10:33 PM (GMT 0)
Hi Joeyphoenix!
Welcome to our community!

It's very unlikely that your Primary will be able to treat you effectively. You will need someone that has been trained by ILADS (International Lyme and Associated Diseases Society) or has a Holistic view of healing and is very good at what they do.

I have had those same symptoms (& tons more) and although my nerves are still healing, I only get a few shooting pains or warm sensations from time to time now. Although it's only maybe once or twice a week.... unless I go out and over do waaayyy too much! LOL!

Please also understand that even if your test comes back as a negative that in no way means that you don't have these infections. As much as 50% of those with these infections won't test positive due to several factors that I'd be happy to list if you would like.

I would say that you should be looking into Bartonella and Babesia and possibly Lyme disease according to the symptoms that you listed. It would be really good if you would read through our "New to Lyme? Start here! " thread if you haven't yet, as it's packed full of important information. Things like symptoms lists (as Lyme rarely is the only infection passed), detoxing help, and a bunch of other information including many links.

Here is another symptom list that you can use to see what infections you likely are dealing with: www.lyme-symptoms.com/LymeCoinfectionChart.html
Posted 1/24/2014 12:27 AM (GMT 0)
Thank you Traveler!!

I apologize for posting twice, I panicked ;)

Thanks for the valuable info. I've read through the "new to lyme" link and find to be extremely helpful. I have so many symptoms, all of which are also lyme symptoms. Long story short I've been to a dozen specialists and have ruled out everything else.

Unfortunately my primary care doctor did order the original test. My second test (results expected soon) was run by my neurologist. I'm not sure where it was sent, but it was the western blot and a tick panel. I'm In the process of finding a llmd. I'm seeing a rheumatologist next week, maybe she can help. Best case scenario at this point, my test comes back positive.

I had a conversation today with a woman who is a llmd but can only treat me if I'm currently being treated by antibiotics. She basically told me everything I need to do to get my doctor to put me on at the very least 100mg/day of doxycycline for one month. At that point I can go to her clinic.

Thank you again for taking the time to read my posts and respond, it means the world to me!! You made my day :)

So great to hear of your success! It's not easy to find someone who can relate and give me confidence that this can get better. You've done that for me.
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