Posted 2/21/2014 2:25 PM (GMT 0)
I wish I could come on here and say I am doing tons better, the truth is I am still stuck in bed on most days.
I am seeing my LLMd monthly, we are trying to lower my the mold in my body, also I have many co infection like mycrosplasm, so we are working on that too.
For people that get seizures I would see if your body is detoxing , there is a test that can be run, I can't think of it off the top of my head, but a LLmd would know which one I am talking about. I found the more I detox, I use epson salt baths, apple cider vinegar, and take CSM daily from my doctor, my seizures are less violent.
I also am taking a antibiotic that helps kill parasites, and we have seen that it is working, some dead ones have came out.
My advice for anyone new, is takes things slow, if you try to take on to much at once , you can land yourself in the hospital. I have been there and done that, now I am going slow.
It's taking time, but my head is clearer now, I still have my really bad brain days, but even those are not as bad as they were. I do see slight improvement with the seizures, like I said before, the pain is really hard to deal with, and I am learning .
I opened a small facebook group for people that just need someone to talk to , like if they are feeling desperate, and I am trying to help people this way. I am pretty much stuck in the house all they time, unless I have doctors appointments. I find many people were where I was about 7 months ago, and someone on here saved me, I will always be thankful for Travelor, because she gave me the strength to keep fighting.
Sometimes all a person needs is a email, or a phone call, I had this happen yesterday with a lady , who had lost hope. I think the best thing we can do is try to be there for each other.
Also in may , there will be a Mayday, I think pretty much all States are involved this year, there will be a massive protest for all of us with Lyme, I wanted to throw that out there, to let new people know , someone is fighting for all of us.
I just wanted to come on here, and say sometimes it's really small baby steps, but we can get better. I was having over 10 seizures a day, been to the ER more times than not , in the last few months, and slowly , the seizures are starting to lesson.
It will take time to build up my body, I have multiple things going on, but I feel I can get better, so don't anyone lose hope.
justme.