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Labs back & MTHFR C667

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Posted 3/11/2014 10:43 PM (GMT 0)
Hi,

I just had a follow up appointment with my LLMD and went over my labs that she took (over 30 different ones). The ones that were red flagged were as follows:

Low Vitamin D (which has been a constant struggle for me)

MTHFR C667-I only have one of these gene mutations-she said my body can't metabolize folic acid

T-3 Reverse- 33 (so she wants me to start a compound medication to get this under control)

Chlamydia pneumonia IGG-1:512 (she said I must have been exposed to this bacteria in the past)

So, basically I was wondering if anyone had any comments or info to share specifically about the last three. Of course, my Western Blot came back negative this time whereas before bands 39 & 58 showed present. Per my request we are going to wait three weeks to get the T-3 at a normal level then I will be starting the antibiotics. After starting on the antibiotics we will be sending off labs to Igenex.

I am so thankful my LLMD is considerate of my desires and not forcing anything on me. Anyways thanks for letting me vent this to you guys I feel like such a weirdo when talking to "normal" people about all this mess.
Posted 3/11/2014 11:12 PM (GMT 0)
i believe i'm hetero for C667 too. Yes, you don't want to take folic acid, you want methylated foalte and b12 (methyl)
As far as the RT3, how much t3 does she have you on?
Were you previous hypo before this?
how was the chlamydia tested?
Posted 3/11/2014 11:21 PM (GMT 0)
Hey Mommy to 2-Your title makes me happy....I started researching this mutation and thought well guess my chances of having kids just got even slimmer. I will start SRT3 at 5 mcg twice a day. I've never had any thyroid issues to my knowledge prior to this & the chlamydia was tested via blood tests (I hope that's what you meant).
Posted 3/12/2014 12:23 AM (GMT 0)
my first was very easy to conceive, First try. My 2nd ,not so much. I had a lot of health issues by the time we were trying for number 2 (who BTW is 18 months old).
I ended up having to see a reproductive immunologist who heaped me conceive my 18 month old.
I had no clue i had the MTHFR mutation before i started to see her.
Did you found out your mutations via 23and me?
I found out i had just MTHFR via a blood test but the rest of the mutations were done through 23 and me. Which i suggest doing if you haven't.
I had to take blood thinners my entire pregnancy (inject) and i had to take prednisone to keep the inflammation down, plus i had an auto immune attack on my placenta (hence the pred)
It was a pretty awful preg.
THAT being said i didn't even know i had any of these mutations with my 7 year old.
So yeah, don't lose hope conceiving, it just might not be as easy for you. Or it might!
I too have thyroid and adrenal problems and now i'm questioning lyme.
what made dr test for Chlamydia? this is Not the sexually transmitted one, correct? what do you do for it?
Posted 3/12/2014 12:35 AM (GMT 0)
Well I was looking for a place to post this, and I've found it. The FDA is wanting to take Folate off the market. Please read this:
www.anh-usa.org/fdas-sneak-attempt-to-ban-another-b-vitamin/
Posted 3/12/2014 1:07 AM (GMT 0)
this is absolutely and positively ABSURD. WE people with the mthfr nut cannot take FOLIC acid. This is asinine!
Posted 3/12/2014 1:08 AM (GMT 0)
Gingerann--
Do you take Vitamin D?
you should take 10,000 iu's to up your D and 5,000 to maintain.
Posted 3/13/2014 12:11 AM (GMT 0)
Mommy2be-I had my labs done through Labcorp. Yeah, sometimes I question the Lyme but since I have been feeling bad for so long (unlike me at all) I deep down feel I have it as well as the thyroid issue (which in the past three years I've been through a separation, new job, new city, divorce, plenty of car issues, shame of the divorce because my husband wasn't "in love" with me, an armed robbery-this was recent) which my Dr said is probably due to my body being in so much turmoil.

The Chlamydia pneumonia is not the sexually transmitted one (this was my first question too!). She said that it just shows her that I have been exposed to walking pneumonia at one point in my life. From what I gathered she said that helps know something about the bacteria in my body (anyone can correct me if this is incorrect). One of my good friends had walking pneumonia a lot so that could have been it.

What have you had to change in your lifestyle with the gene mutation-other than food/vitamins?

Yes, I'm starting to taking my Vitamin D again.
Posted 3/13/2014 12:24 AM (GMT 0)
Definitley take your D. I would do 10,000 until it gets to the 80's of so, then maintain at 5,000.
I'm so sorry for all the stress you have been through. Just one of those events is enough to send us unto turmoil, but add it all and whew, it does a number on your body :(

I take vitamin b12 i was doing methylated but some people can't tolerate methyl, so now i'm taking adensol and hydroxy. Plus you will need to take folate.
I eat mostly organic and i eat very clean , I went paleo in Jan and by far this i feel has heaped me the most.. I try to not use a lot of chemicals. On my body and in my home.
I'm in the process of having my amalgams removed by a holistic dentist.
I support my adrenals.
I take higher doses of vitamin C
I take a good probiotic and tons of supplements.
so do you need to do anything about the chlamydia??
you had your lyme testing via lab corp?
Posted 3/13/2014 12:50 AM (GMT 0)
To my knowledge nothing needs to be done about it. This is the CDC's definition of it:

Pneumonia or bronchitis, gradual onset of cough with little or no fever. Less common presentations are pharyngitis, laryngitis, and sinusitis. The spectrum of illness can range from asymptomatic infection to severe disease.

I had my lyme testing via a local hospital in October and then with LabCorp. In about a month or so I will be sending my blood off to Igenex once I start on antibiotics.

Would you mind if I PM you-I don't want to bore everyone with all these questions I have for you :)
Posted 3/13/2014 12:57 AM (GMT 0)
sure. Go ahead.
so you had lyme testing done but you plan to have it tested via Igenex, why?
Posted 3/13/2014 2:51 AM (GMT 0)
Traveler thank you for posting this! I emailed everyone I could!
Posted 3/15/2014 8:28 PM (GMT 0)
@mommy-My Dr suggested sending my blood to Igenex to see what their testing would say. I know that this shouldn't be a surprise but my first test came back with two positive bands, the second was all negative according to Labcorp and just based on the tone of her voice it was almost like this truly surprised her. I could be way off but maybe she's having doubts?
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