Finally got an appt. for Columbia University Lyme research center!

I wish you so much luck and prayers. I have been sick a very long time and I know it's scary. I only learned a year ago why I had been sick though. I'm glad your husband being a Dr. is going to help you. Thank goodness your brother in law spends time there and was able to give you information! :) keep the faith!!!!! Is your husband a medical Dr. or does he have a doctoral degree? Did he figure out you had lyme? Let us know how it goes!!

My husband is a dentist. Sometimes I wish I could go back in time as we made some poor decisions early on that has now bought me here. My husband wasn't very helpful when it came to detecting Lyme and having him as my husband pretty much messed me up. I found a deeply imbedded tick and an oval rash 2 years ago. Could not get the tick out for the life of me and ended up leaving the head in. I looked up Lyme online and the description of the rash didn't match the rash I had. I thought I had an allergic reaction to the tick bite. My husband talked to a Dr. Friend and he told him to prescribe me the 1 time preventive dose of Doxy. As you can imagine, that didn't do anything. I get so mad, if I just had gone to the Dr. He would have put me on 3 weeks of Doxy and I wouldn't be here today. On top of it, the Doxy dose I took most likely was an attributing factor to me testing negative for Lyme. Well, 2.5 months later I came down with all the Lyme symptoms.

Tickbite... I'm sorry to hear your clinic experience was not positive :(.... I'm praying that the Columbia one has some better Drs. From what I hear, they are the leading Lyme research facility in the country. The Dr. That called my husband said they will also work along with my Dr. With my treatment. With the 2 day appt. they gave me, I know they will be doing extremely thorough testing, so maybe we'll get some more answers as to why I'm not getting better.

Yeah, so many Drs. Are clueless and so many LLMDs could be doing so much more than they are (including my Dr) if they just spent a little more time aducating themselves in this disease. I really hope your Dr. Is able to help you.

I'll keep you updated with what happens... Maybe they will do something helpful that you would be able to suggest to your Dr. To try...

Thank you... I'm really praying for a positive experience. From what I hear, this is a research facility trying to find treatment for chronic Lyme type symptoms, so I'm thinking they follow ILADS guidelines. The patients that go there are people who have long term Lyme symptoms and have not been able to get help elsewhere. It's incredibly hard to get an appointment there. But yes, if my experience there is not positive, the fight will go on elsewhere... :).

Thank you so much!! I have 3 kids, ages 6-10, so not too small but still need their mommy for many things. My husband is not the most helpful guy... Mostly because he's so tired from work. Sometimes he forgets he has a sick wife as I'm not one to complain too much unless I'm in extreme pain. Ugh, the last few days I've been herxing so bad. We did an overnight stay at a Hotel over the weekend and I spent a lot of time in the hot tub. I think that's what caused the herx.

I am so happy to hear about your appointment! So you are coming my way! =)

Just found out its going to be 5K to go to the clinic plus testing fees. I don't know if my health insurance will cover any of it. They don't accept insurance and my insurance doesn't want to pay out of network. Looks like its gong to be a lot of phone calls to the insurance Co. I hate that we pay over 2,200 a month for health insurance and then they hardly cover any of my medical bills! So frustrating!

Hope everything works out in your favor. That was smart of your husband to use his title. Doctors take care of their own!

What a wonderful opportunity for you. Did not know the place exists and hope they can help you.

Here is a link to the website if anyone is interested in reading about it:

http://www.columbia-lyme.org/

It really sounds great! I hope it's as good as it appears on the website!