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So many symptoms, too many docs?

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Posted 3/20/2014 6:59 PM (GMT 0)
When to ignore something and chalk it up to Lyme, or when to go to doc, when/if I should get tests etc.

I have my LLMD, my pain doc and a crappy internist (that I rarely see). Then the typical derm, gyn, eye etc. If I have neuro symptoms should I see a neuro doc or just stick w pain doc?

When something is bothering me for a while, do I chalk it up to Lyme and hope it'll get better w Lyme treatment, or do I go to doc to rule out other stuff?

I'm just so sick of going to a doc, something isn't normal but they don't know why so run a test, that test isn't normal so they want to do another test etc. Or, they find a cyst and want me to get MRI every year to make sure it hasn't changed.

I know I have to kind of be my own doc but it's a full time job and I'm NOT a doc!
Posted 3/20/2014 7:08 PM (GMT 0)
I hear you and I don't know. Intend to ignore things myself, which it wouldn't recommend.
Posted 3/20/2014 9:53 PM (GMT 0)
I'm confused, do you have Lyme or no? I would stick with the least number of doctors as possible!
Posted 3/21/2014 1:17 AM (GMT 0)
Unless all the docs are Lyme literate, stick with your LLMD. They will be the only ones that understand not only what these diseases do to a body, but when to say that it's not being caused by a tick-borne infection.

The one exception is that generally, you - as a woman - will need a Gyn doc whether or not they are Lyme literate.

You can use the search function on this site and find how people have dealt with their symptoms that are like yours, compare your symptoms to the symptom lists that we have in the "New to Lyme?" thread and determine if you really need to see a doc, or just ask your LLMD.
Posted 3/21/2014 4:24 AM (GMT 0)
Thx! I knew a moderator would have a good answer!

Of course I have to keep my pain doc to get pain meds (can't take advil aleeve or asprin).

My psych and pain doc aren't lyme literate but they do understand it and don't question it at all. So far, none of my docs have done the eye roll thing :)
Posted 3/21/2014 9:53 PM (GMT 0)
That's awesome!! Congrats on having some good docs in your corner! There are more and more mental health doctors that are becoming Lyme literate, or at least Lyme aware - which is really necessary!!! Although I haven't heard too much about pain doc's being either Lyme literate or Lyme aware - I'm really happy that you have found them, and they are helping you.

I've always been like Maine - ignoring things for far too long. I also discovered the hard way that there are absolutely NO Lyme literate or Lyme aware docs of any kind in my area.
Posted 3/22/2014 4:42 PM (GMT 0)
I stick with my LLMD, I trust him, and I know he will tell me when I need to go and see another specialist if it's not Lyme related, or something that needs to get checked out.

So, I have my LLMD (I see him every two months, mail him when I have an urgent question or when something is not right). I have a lazy GP, I use him for prescriptions and sick notes, he says he doesn't know anything about Lyme, and he's not even trying, but it's handy to have a GP that I can abuse every now and then smilewinkgrin
November last year I started seeing a neurologist for my migraines and clusterheadaches, and the ever lasting pain. I promissed myself I would go 1 time, see how she reacts when I tell her I have Lyme, and then decide whether I would go back or not. She was really ok, didn't suggest I needed psychological help :-) and is determined to help me with the pains, without judging.

I don't tell other drs, unless it's really necessary.
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