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Question on Absence Seizures
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Lyme Disease
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BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/30/2014 12:43 AM (GMT 0)
Im posting this as an inquiry but it also could help a child that I work with. I work with a 9 year old girl with a history of absence seizures. They began infrequently but increased in the number of petite mal seizures she had each day. I believe they said it was about
20 or more per day. She also has a history of hyperactivity.
There was never explanation as to the reason for the seizures. I would like to see the parents have her tested for Lyme. Before anyone labels me maniac I know she has spent her entire youth area at a relative's summer home. The area is heavily wooded and infested with ticks. As a matter of fact my friend and her husband both got Lyme there. The husband was on meds for 2 years. Do you think I should mention this to the family ? Her aunt is a very close friend of mine.
opugirl
Veteran Member
Joined : Nov 2012
Posts : 3923
Posted 3/30/2014 1:06 AM (GMT 0)
I might mention it to the aunt?
That is a tough one. When I was really really sick I had something similar to absencey seizures but its more like a mental thing where I just wasn't 'there.' Like if you asked me what my name was - I wouldn't know. It was still, to date - the most terrifying thing I've ever experienced.
I still experienced a fair amount of brain fog but right after I was on abx it went away within about
a week.
Jasmine Grace
Veteran Member
Joined : Jun 2013
Posts : 815
Posted 3/30/2014 1:07 AM (GMT 0)
I get absence seizures... And I'm being tested for Lyme, based on a whole range of symptoms including that one.
Does the girl have any other symptoms of Lyme? Did the seizures start after a flu-like illness?
Is it expensive to get Lyme testing where they live? Can the family afford the testing without financial stress?
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/30/2014 1:20 AM (GMT 0)
I know the father has a good job and prob has insurance. I dont know if she has any other symptoms bc I have not asked. I have been thinking about
this girl a lot just trying to get a handle on what is going on with her. But I know she has ADHD and learning difficulties. My son is also the same age and has Lyme. Two of his main symptoms were adhd like behaviors and learning difficulties. She is currently taking anti-seizure medication.
Jasmine Grace
Veteran Member
Joined : Jun 2013
Posts : 815
Posted 3/30/2014 1:26 AM (GMT 0)
I would suggest it as a possibility if I were you.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/30/2014 1:27 AM (GMT 0)
thanks opugirl, I experienced the same thing, confusion and memory loss. It effects speech and cognitive function. It immediately improved once I started tx.
Garden Peace
Veteran Member
Joined : Sep 2012
Posts : 4191
Posted 3/30/2014 1:42 AM (GMT 0)
I'd also mention it to her aunt to see if she would bring it up and if she won't then you could. Some of it could be immunization related too, so if they'd try detoxing her for heavy metas, that might help her some.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/30/2014 1:49 AM (GMT 0)
I was a little reluctant to call the parents directly. I think there is a reason I crossed paths with this little girl. Yes I do not know if she experienced a reaction to the immunizations. She reminds me a lot of my son before his treatment. It is very bad where she vacations every summer. Area is endemic and she grew up running around there so it is worth mentioning I think. I have also read about
several children who had lyme and experienced absence seizures.
Maine76
Veteran Member
Joined : Jan 2014
Posts : 993
Posted 3/30/2014 3:01 AM (GMT 0)
My 13 yr old hasn't had an official dx yet but he has lyme and he has absence seizures.
Post Edited (Maine76) : 3/29/2014 9:04:11 PM (GMT-6)
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/30/2014 3:12 AM (GMT 0)
Thanks so much Maine76. Let me know how you son does.
Pirouette
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Joined : Mar 2014
Posts : 6235
Posted 3/30/2014 2:55 PM (GMT 0)
What is the difference between absence seizures and petite mal seizures?
A couple years ago when my symptoms started to intensify, I was experiencing what I've always thought were petite mals - maybe every other day but for only a couple weeks. They haven't happened since (I don't think). These episodes were very brief (a couple seconds) but I was completely 'out' (not unconscious but unaware) and when I 'came to' I had absolutely no recall other than time had passed. Scary stuff.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/30/2014 4:18 PM (GMT 0)
Yes the seizures are the same according to the information I have gathered.
stacestar
Veteran Member
Joined : Jan 2014
Posts : 532
Posted 3/31/2014 3:27 AM (GMT 0)
pretty sure my son (dx with lyme) was having some absence seizures from Dec. to early February. On and off; Since treatment started in early Feb. he hasn't had any at all.
I say go ahead and mention lyme to them. I've actually mentioned twice to two people I know regarding their children. I always tell them that I realize it may not be the case (that they have lyme), but that I just thought I'd mention it, b/c something about
the situation reminded me of my son's experience.
Elleon
Regular Member
Joined : Feb 2014
Posts : 366
Posted 3/31/2014 3:52 PM (GMT 0)
Hmmm I have this same issue with my nephew. He has consistently complained about
his "knees hurting" since he was able to walk and talk. He started having seizures around 3 years old. He is on meds now that stopped them.
This past summer he was supposed to get weaned off the meds because it was 2 years seizure free for him. But before they could start to wean him off, they started again. Only this time, they didn't register on any of the tests he was given so the doc called them "spells" and he is on a different medicine now to control them.
I don't know how to mention to my sister that it could be Lyme. It's my twin sister and me and my nephew have a very strong bond... I pretty much helped raise him. He is going to be 7 in July. I have read that knees hurting in children is a big sign of Lyme.
Honestly, I have no idea how to mention Lyme to her and probably won't. My whole family thinks this disease is all pretty made up anyways.
Maine76
Veteran Member
Joined : Jan 2014
Posts : 993
Posted 3/31/2014 4:01 PM (GMT 0)
My daughters first symptom was severe eczema and then knee pain at 6-7 yrs old.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/31/2014 8:28 PM (GMT 0)
I inquired with the girl today. Started seizure medication in second grade. Had some on and off in younger years. First noticeable seizure was in the summer while at the summer house. Talked to a relative and dazed off and disconnected from conversation from what I could discern. Will contact the parent for other information. Thanks for the info on rashes, pain etc.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/31/2014 9:33 PM (GMT 0)
www.ilads.org/lyme_disease/Psychiatric_Brochure_08_08.pdf
Very Good ILADS Brochure on Lyme Presentation in Children Psych etc.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 3/31/2014 11:55 PM (GMT 0)
They are testing her. ^5 Jasmine. et al.
Jasmine Grace
Veteran Member
Joined : Jun 2013
Posts : 815
Posted 3/31/2014 11:57 PM (GMT 0)
That's great to hear! Maybe it will provide some answers :)
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 4/1/2014 12:01 AM (GMT 0)
Thank you everyone.
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