Doc said Leg weakness not from LD

Hmmm...sorry to hear this. I believe you said you had several pos lyme tests ? Dd you have high SED rate ? That is inflammation in the body. Anything is possible and try to keep an open mind. Also if the antibiotics are helping a lot would try to continue them.

I just saw in one of your earlier posts where you also have degenerative disc disease. That can cause the leg weakness, as well. I have a few bad discs, too, but the weakness has definitely gotten worse with Lyme treatment. Maybe it is a combination of several things and not just one thing causing the weakness. Whatever it is, I hope the drs. can give you some relief soon.

I've heard several people mention leg weakness and some will fall down without warning too, so it seems it is Lyme related.

Well you are treating for lyme, I would focus on that for now....re-evaluate in another 8 weeks. See if you are better or worse/what is better or worse.

You can't treat everything at once, and with lyme you really have to go slow. I know it is hard but if you pick a path and you think it is the right one - you have to stick with it for at least a little while.

I had a lot of leg weakness in the beginning. I was super weak in general. It took about 8 weeks for me to really start getting some strength back. I was pretty much skin and bones at that point though also. Nothing really helped for me it was really just time.

IF you tested positive for lyme, Id treat the lyme with abx and see which areas improve. There are other medications for MS so if the symptoms do not improve or get worse then you can try a neurologist and other medications.

I would say that Lyme left untreated long term can def open the door or act as a trigger for many other medically diagnosed conditions. Keep a log of all your symptoms. With lyme the sypmtoms tend to migrate around and change frequently. BTW if it is lyme it would take several months before you start to feel better again. Best of luck to you.

sueg, also wanted to say you need to go on your own observations. Did you have the environmental exposure in a tick endemic area ? I kept my horses here at home for over ten years. One of the horses here almost died of tick illness. So even though a dr suggested I had MS, I pretty much knew it was lyme based on my symptoms, reactions to abx and exposure. Also you said you tested positive and improved immediately on abx. Your own observations are valuable and read and do as much research as you can.

I live in Wisconsin too. It was a neurologist that finally told me she thought my extreme leg (and arm) weakness was due to lingering Lyme's disease (She ruled out MS, the reason I was seeing here, by physical exam and 3 MRI's ...spine and head) I am seeing a LLMD and she is treating me with several antibiotics. I am shocked by the lack of stamina...driving, holding my camera, typing, walking are all very difficult for me right now. I have very few other symptoms. I hope you get some relief.

I had 2 brain scans showing lesions and a negative spinal tap. And also a positive Igenex Lyme test. Plus the Degenerative disc so
there are a few things in the mix and I am wondering which is causing the leg weakness--hoping it is not poss. MS. I'm doing the tx for LD and having some good days. So who knows??

Hi Sueg,

When I was sick with lyme my biggest problem were my legs:  weakness, falling down, extreme pain in my legs, etc. 

It was when I started a detox regime that my leg problems went away as well as other problems.  I took epsom salt/hydrogen peroxide baths, dry skin brushing prior to the baths, etc.

Are you detoxing at all?  If not, try to do at least 5 detox baths a week and see what happens.  Make sure the water is at room temperature and not hot. 

When lyme bacteria die, where do they go?  If one does not detox to get those toxins out then the toxins just keep recirculating inside the body causing havoc.

Hope this helps,

Denise