Cholestyramine?

hi everyone!

has anybody taken cholestyramine as a toxin binder?

i had suspected possibly having lyme, so i started seeing a LLMD who actually didn't suspect it. he ran a bunch of tests on me, negative for lyme, but tested positive for the genes that can't detox mold and biotoxins, and my blood levels show significant exposure to biotoxins (very elevated c4a level and other numbers he said suggested it as well).

he started me on cholestyramine, and said to start slow and work my way up. he also said i may feel worse before better.

i just started yesterday (only took 1/2 packet yesterday and just another 1/2 today). so far i don't feel anything...no worse or better. i'm just curious how long it usually takes to feel "worse before better" and then how long it would take to notice improvement of original symptoms. i know i barely have any of the csm in my system so it's probably way too soon to notice anything. i'm really impatient and just curious of others' experiences.

i'm really new to all of this...thanks!

Hi there!

I have taken cholestyramine to bind toxins but I have experienced some problems with it. Initially I noticed it caused me to have acid reflux (which I believe is fairly common from what I have read). Then after a few weeks of taking it I started having minor heart palpitations. The longer I took it the worse they got so I did ultimately stop taking it altogether. Every once in a while I will take a small dose to see if I can tolerate it but within hours I start to experience the palpitations.

Having said all of that I have yet to come across anyone else who has experienced the same problem. I seem to have unusual sensitivities to many things that don't seem to bother most.

Good Luck!

cleonova said...
Hi there!

I have taken cholestyramine to bind toxins but I have experienced some problems with it. Initially I noticed it caused me to have acid reflux (which I believe is fairly common from what I have read). Then after a few weeks of taking it I started having minor heart palpitations. The longer I took it the worse they got so I did ultimately stop taking it altogether. Every once in a while I will take a small dose to see if I can tolerate it but within hours I start to experience the palpitations.

Having said all of that I have yet to come across anyone else who has experienced the same problem. I seem to have unusual sensitivities to many things that don't seem to bother most.

Good Luck!

Sounds like it started releasing some metals. Get your methylation pathways secure and try it again. You will get worse before you get better. When problems start, cut back a little. It can take a very long time to get rid of metals.

Charity, there are no stupid questions, that's for sure! And I am certainly with you about feeling like I don't really know what I'm doing! I'm really glad you asked about Cholestyramine, its the first time I've heard of it.

cleonova said...
Georgia Hunter,

Forgive me for asking a stupid question but how do I go about clearing the methylation pathways? I only began treatment in December and more often than not I feel like I don't really know what I'm doing

Thanks,
Charity

Good question, I wish I had an easy answer. Most of us have genetic mutations that hinder us from eliminating toxins/cellular debris from our systems. Some of us are worse than others. The easy answer is to study MTHFR mutations and learn as much as possible. Dr Amy Yasko has a free online book titled "Autism, Pathways to Recovery." Since it's free, I recommend everyone read it. You may not understand, but it gives plenty of examples of things that can help. While the book is mostly about Autism, the methylation and transsulfuration pathways affect all of us, especially people with chronic infectious disease. You could do a 23andme genetic test for $99 and see exactly what genes are causing your trouble. Supplementing these lagging pathways would speed up healing and minimize herxes.