That is one of the reasons why some people don't understand what is going on with us. We can get from 'ok' (bearable) to almost not being able to stand in just 10 minutes.
It's hard to deal with, difficult to live with too. Sometimes you start a chore and you feel like you can do it, cause you're kind of ok, then BAM, over with it... can't finish it cause you're all of a sudden feeling like utter crap...
I try to live by my pace, my distorted rhythm - lol. I don't care if people look at me as if I'm dramatizing things. I know better.
You're getting to the right attitude to get better Sueg!!
you will go back to the old way, just patience to get through this first