Posted 4/25/2014 8:05 PM (GMT 0)
I'm going to see Dr. B in Moorsetown in a couple of weeks and what drew me to the practice there is that they do autonomic response testing. It's a long story but I haven't really had a doctor managing my infections for quite some time now, so I have literally no idea what's going on in my body other than my own clinical diagnosing (based on all I know about each infection and the symptoms they tend to cause, I can kind of guess when each is flaring up but it's hard for me to know what I actually do have and what I don't).
I tested Igenex positive for lyme (again, haven't seen a test for this in at least 2 years though by now), I always had really high levels of EBV and mycoplasma pneumonia (the mycoplasma was always a really high igg but not the igm, which I'm never sure what that means, whether theh igm just eventually goes down because the acute infection turns into a chronic one but is still active, or whether it's not active anymore and my body is just doing some autoimmune thing and just producing crazy amounts of antibodies, or if those antibodies are being produced in response to dead cell bodies...the list of possibilities goes on and on).
On top of it I've always been pretty much the poster child of bartonella symptoms, but again, since what we know of bartonella symptoms can often be based on people with a clinically made diagnosis reporting symptoms, and people with co-infections (in which case how could you know if it's bartonella or something else?) ...those symptoms seem to be flaring up like crazy lately, but it's tough because I've never tested positive for bart so I guess I don't fully believe that I have it, or believe that maybe symptoms that are classically considered to be bart symptoms are actually caused by something else...etc.
Not to mention all the other issues, MTHFR, hormones, a disc problem, scar tissue from a surgery, dietary and stress stuff...
...so I'm hoping that this new doctor doing autonomic response testing will sort of clear this all up for me (what I have and how active it is and all of that) - for those of you who have had this done or know anything about it - how does this work? Are they able to tell you just what you have, or how severe it is? I guess I'm just looking for reassurance that this is the right step for me as I'm about to use the only money I have from back benefits from disability to pay for this and if it doesn't pan out...I won't have any money for any treatment unless I miraculously recover and can work again..............