Which treatment protocols have you had success with?

Rifampin, doxy (or Mino), and plaquenil combo proved the most significant progress for me, even though it knocked me to herxville for 4 weeks before rebounding.

But that was after many other strong combo's like IV Rocephin, Mepron x2, Zith, Bactrim DS, and pulsing Tindamax.

Your mileage may vary.

Hi,
I have had Lyme for twelve years now, and have done every treatment possible.
To include abx, rife machine, qxci machine, odemed, intravenous collodial silver, herbs, whole body detoxing,I could go on and on.
Everybody is very differant, what works for one may not work for another, so , you may find it difficult to understand that trying to follow another persons healing path may not be the answer for you. I have found over time that flower essence has given me some of the best results. This is a good source for energy healing for me.
You might want to check it out!!

Hi Chloe, I have been sick for over 5 months now. I never had a rash either, instead I caught this from someone's tear that I met and the Lyme and Bartonella germs ended up getting on my lips. I was heavily self treating for the first while and immediately placed myself on minocycline (I had a prescription for acne that I never filled) just 4 days after the infection, I was in a continual herx like reaction. Then I added in Banderol & Samento which also really helped knock back the Lyme but never did knock it out completely. After that I placed a huge order of Houttuynia in which I immediately took 5 massive dropper fulls as soon as I got the product in the mail, I decided that would be my Bartonella test. Sure enough my body reacted and my shins started burning.

When I got put under treatment with my LLMD and LLND, I first started with minocycline + rifampin, although I spent lots of days taking dropper fulls of the Cowden protocol as well. This helped my bartonella symptoms but it was Lyme that was getting more intense and I could feel automatic nerve contractions, like my eyes would start automatically blinking all on their own. Or I would get ringing in my ears, muscle spasms, all kinds of Lyme symptoms.

So I asked for the most aggressive protocol I could get from my LLMD and I told him I wanted to go on the tinidazole back in mid march. I was so happy when I got my tinidazole in the mail, I was like okay pulse number 1 starting tomorrow! I was happy and scared at the same time and even had taken the next day off to see how my body would react to the new antibiotics. He also gave me Septra DS for bartonella so my new regime would be minocycline + tinidazole + Septra DS. Sure enough it was powerful! It was intense full body inflammation the first day, I had an emotional herx where I was freaking out, I would wake up in the middle of the night and every joint in my body and muscle would be aching. It was pretty powerful stuff and not a fun 1st pulse, I wanted to go back on the rifampin at the time ! lol but I stuck with it. Towards the end of the 1st pulse I was freaking out pretty bad. But then I pulsed again this time around my knees were killing me (actually my knees were always generally sore with this disease on and off), as well as my testicles. Then the 3rd pulse my prostate herxed and I had intense inflammation and pain there. By this time I talked to my LLND and we added the Plaquenil and A-Bart into the regimine. Then my 4th pulse it was just my knees left. Then only my 5th pulse, my knees were now no longer sore, neither was any other part of my body. At the end of my 5th pulse on the 'off days' I was getting ever so slight mild symptoms coming back which I attribute to left over Lyme struggling to survive. Like very mild vibration sensation in my brain in the morning. But then I did my 6th tinidazole pulse.

Today I am on my 2nd off day of my 6th round and I start the 7th tinidazole pulse tomorrow. I am symptom free. I think at this point most of the bugs are gone but I might need to focus on more detoxing at this point in time.

So my 'core protcol':
Minocycline 100 mg 2 x day + Tinidazole 5 days on 2 days off 500 mg twice daily + Plaquenil 200 mg 2 x day + Septra DS 1 pill 2 x a day.

Support anti-microbials:
A-Bart, Houttuynia, Banderol, Samento, Teasel, Grape fruit Extract, Japanese Knotweed, Black Walnut Combination, Serrapeptase (bio-film)

Detox:
Burbur, Parsley, Sparga, Pinella, Greens +, Vega one 2 scoops daily, Genuine Daily detox, Chlorella, spirulina, lots of water and lemon water

Yeast:
Nystatin, Concentrated Garlic Extract, Pure Coconut Oil capsules (taken all together)

Probiotics:
HMF forte, lots of organic probiotic yogurt, probiotic coconut mixture, and I also have drinkable probiotic yogurts too.

Extra:
Ashwaganda (energy adaptogen support), Sleep + (for sleep, a melatonin timed release capsule sleep aid with passion flower), Krill Oil, Omega 3 vegetable, Meriva-500 (concentrated curcumin for inflammation reduction and cytokine control)

On the way (still working to improve my protocol):
Wild Cherry Bark Extract (good against lyme)
Red Zinger Tea (also powerful against lyme)
Tribiotics (to kill the germs whatever might be left)
NT factor (to repair mitochondria damaged from minocycline)
Oral Glutathione (to repair and detox intracellular damage and debris)

So I have a 'core protocol' a 'detox protocol' a 'herbal anti-microbial support protocol' a 'yeast protocol' a 'probiotic protocol' and an 'extras protocol'.

I'm continuing to add to my protocol to make it even more effective.

Post Edited (LymePickle) : 5/6/2014 7:17:28 PM (GMT-6)

Lymepickle you are very fortunate you were only sick for a short time before you got treatment. Gosh, I was diagnosed with CFS and depression before I knew what was really wrong. That's weird you caught Lyme from a tear. I remember reading that.
Nice to hear you have improved. Maybe if we all got proper diagnoses we'd all be so fortunate.
=]chloe

Hi Jasmine Grace,

I think different protocols work for different people.  What worked for me was following Dr. Jernigan's protocol from his book and that was over 8 years ago and I am still recovered/healed! 

What I suggest to everyone who asks this question is if one is "able" to read, buy some books and educate yourself.  I personally recommend Stephen Buhner's book "Healing Lyme" and Dr. Jernigan's book "Beating Lyme Disease"...  Even if you don't follow their protocols you can sure learn so much!!

Hope this helps,

Denise